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Ulcerative Colitis
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Posted 4/9/2011 6:56 PM (GMT 0)

Hello

I'm a newly diagnosed UC patient. I'm glad i found the forum b/c it has really been helpful.

 

I had my first flare up at the end of December and it lasted about 3 weeks. At the time, thought it was just a virus. Then again at the end of February into March. I actually went to my GP for hemorrhoids in mid Feb because they were so bad. Then when the symptons appeared again, went back to the GP and he referred me to a GI (also had a lot of blood in stool). The GI ordered and immediate a colonoscopy (used Suprep) which confirmed the diagnosis. I was put on Flagyl for 10 days, then after that period of time on a hydrocortisone enema 2xs a day for 10 days and also Apriso 5 capsules and now down to 4 a day. Beside the obvious discomfort of constantly going to the bathroom (mine was worst in morning.. going anywhere from 5 to 6 times before leaving to go to work and at night same thing.. and just a few during the day) was the extreme fatigue and still trying to get my energy back. My sister is a Registered Dietician and has given some great advice.. like foods to be careful of and low fiber diet (something which is totally foreign to her in her line of work :) ) She also suggested children's chewable vitamins. I just started to flare up with hemorrhoids again :( which is horrible. I just started a suppository prescribed by the doctor.. hope if works.. I'm calling on Monday if not any better.. anyone have any advice for that... and for the newbie????

Posted 4/9/2011 7:05 PM (GMT 0)
Hellp & welcome,

I have dealt with a lot of the same things you mention. It's not fun to be a part of this club... Are you doing better since starting treatment with Apriso annd steroid enemas? When I am flared up, the mornings are always worst for me. I wouldn't eat all day to avoid using the bathroom, then when I got home from work, I would have dinner and spend the rest of the evening running in and out of the bathroom. Once you get the inflammation under control, you won't have these problems anymore. You may want to ask your GI about prescribing a mesalamine enema to use when you're doing with the steroid enemas. A lot of people do very well using continuous rectal meds. Diet hasn't made much of a difference in my condition but many people with IBD do very well on the SCD diet. You can look it up on google if you're interested. It's very indiviidual as to what foods cause people problems. For me, I've never noticed anything specific that causes isssues except artificial sweetners and too much dairy.
Posted 4/9/2011 7:11 PM (GMT 0)
I just finished the steroid enemas a week ago and that's the same time as my dosage of Apriso was lowered to 4 a day.  I haven't had diarrhea since then.  I'm a very active person and a large organization at work and hate the fact I don't have the energy (although coming back slowly at least :))... and the frustration with hemrroids again.
Posted 4/9/2011 7:44 PM (GMT 0)
I wish I had some advice on healing hemorrhoids. I have had them in the past and it seems nothing helps too much, I do use calmoseptine to sooth and protect and it helps me more than prep-h or a&d (it's usually behind the pharmacy counter but OTC). Sorry you're dealing with them & the exhaustion. I think you will get your energy back quickly, it sounds like you're improving :) I never have any energy, it's difficult to deal with. I feel like I am always dragging but I've always struggled with energy so it's nothing new. People probably think I am lazy but It's not laziness, it's really very hard to get the energy to do anything.
Posted 4/9/2011 9:50 PM (GMT 0)

notsosicklygirl said...
I wish I had some advice on healing hemorrhoids. I have had them in the past and it seems nothing helps too much, I do use calmoseptine to sooth and protect and it helps me more than prep-h or a&d (it's usually behind the pharmacy counter but OTC). Sorry you're dealing with them & the exhaustion. I think you will get your energy back quickly, it sounds like you're improving :) I never have any energy, it's difficult to deal with. I feel like I am always dragging but I've always struggled with energy so it's nothing new. People probably think I am lazy but It's not laziness, it's really very hard to get the energy to do anything.

daily 500 mg salofalk (mesalasine) supositories helped when my hemorrhoids were too bad. it's a shot with two good results: hemmies and UC also.
Posted 4/9/2011 10:40 PM (GMT 0)
I used 1000mg suppositories the whole time I had the hemmies and it didn't help. Recently I went to the GI and found out I had a fissure. I am wondering if the hemmie I thought I had was actually the fissure.
Posted 4/10/2011 8:06 PM (GMT 0)
Sorry to hear of your recent diagnosis! It sounds like you are getting great treatment from your Dr and are on the right path. Have you tried adding a probiotic to your regimine? We use VSL #3 and my daughter swears it helps with her energy level. Best wishes to you
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