semi remission!!!

Went to GI today after my second infusion of remicade and was told everything was looking so well that i didnt need to come back for another 3 months! (just for blood work) I still have the d but im only going 1 - 2 times a day! GI says the d might not ever go away completely but im ok with that as long as i stay at 1 - 2 a day with little/no urgency. Im very excited to finally get the UC under controll! Now all i need is to deal with my lupus/joint issues. It seems to be very mild at the moment but i cant shake the feeling that its gonna pop up to say hello sometime soon. I see rheumy on june 16 to go over new blood work and to see if i need new meds or an adjusted dose. I hope I can get both of these diseases into remission. I just want to be normal again. I am very greatful to have my UC under controll. . Its so nice to get in the car and go without even thinking about a bathroom! I dont mean to rub it in for all of you still suffering but im just so excited to get where I am after a long painfull battle. I hope all of you find relief like i did!

That's awesome. I consider myself to be experiencing semi-remission as well, not quite over that last hurdle yet but I can see it in the distance. Making the change from Salofalk > Azathioprine has helped enormously.

quincy said...
Hi...it's great you're feeling so much better!

There are continual cycles of flares/improving/remission on the forum...never apologise for feeling well! It gives hope to others who are taking the same meds, etc.

Hope the appointment with the rheumy gets you pain relief.

q

Well said Quincy, my thoughts exactly.

However, I wonder why your GI said you might have D forever, just the way your gastro system works I suppose... But I think you can get your stools to stiffen up a bit! Way to go man!

Woooooohooooooooo!

Now..disease-free bm..?

How about trying fibre supplements to possibly bulk up the stool...that can help immensely!

I would suggest changing from align probiotic and getting back on a rectal med.


I'm pretty positive most of us are happy you're feeling better....try not to lessen yourself feeling better. Sympathy and empathy are good, but not when it's counterproductive for your own well-being.

q