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good golly, will this never end?

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Ulcerative Colitis
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Posted 6/16/2011 7:08 PM (GMT 0)
OK, so after 4 mos of vicious flaring (and on-again, off-again for past 2-3 years), I finally bit the bullet and started Azathioprene (100mg) in Dec 2010. Pretty soon after I started, the edge came off this thing and I have been able to sleep at night, function throughout the day, get some color and energy back.

But, I don't feel as if I have fully rounded the corner. I still am making numerous trips to the pot throughout the day and some with urgency. I called my GI several weeks back and informed him about this. His response was that he saw the medicine as basically working and to give it some more time. I will be seeing him for follow up appt at end of month.

Add'l facts: taking asacol tabs and mesalamine enema. These are what put me into remiss when I was orig dx'd 7yrs ago. I've lost confidence in these meds. I'm supposed to take ememas nightly, but I've been non-compliant, due to my perception that they lack effectivness. I know, I should get back on regular routine.

I take extra fiber, probiotics, vit D, fish oil. Sometimes quercetin, robert's formula. Tried LDN...was not impressed. Was for many years on gluten, dairy, yeast free diet. no processed sugar. Was in remiss for about 4-5 yrs, was it the diet? Or was it the meds?

So, if anyone has any thoughts on this, maybe suggestions or insight as to what is going on here, I'd appreciate it.

Thanks

Matt

 

Posted 6/16/2011 7:38 PM (GMT 0)
A Phlying Phish,

I'm sorry to hear about your fight against the disease.


I think you ought to take all the meds. Give them time to work.

Nobody really knows what triggers the remission. Once I was sure that it was probiotics (3 years), another time my diet (15 years), and many other things for shorter period of times.

If you so feel, reintroduce the diet. Maybe it gives you the proper push to reach the needed remission.

We need to try all things possible and decide what benefits us and what doesn't.

I wish the meds work faster this time.

Good luck to you.
Posted 6/16/2011 7:43 PM (GMT 0)
Explain your symptoms exactly, how they've improved...and YOUR noncompliance schedule of the 5ASA meds.

ARe you using them now?

q
Posted 6/16/2011 8:05 PM (GMT 0)
symptoms: multiple trips to bathroom throughout day (10-20 throughout) first part of the day I see actual bm (2-4x/ morn); remainder if day is some small bm, usually just gas and mucous. Some urgency. No more bleeding. No cramps. Sleeping through the night ok.

Non-compliance: I should be taking enema's nightly, but have not been. Two reasons for this: lost faith in the effectiveness of meds and started to think I actually felt worse on days after using enema. I know, I need to get back on it.

Posted 6/16/2011 8:06 PM (GMT 0)
I am using the 5asa's, 3-4x/wk, rrather than nightly.
Posted 6/16/2011 8:41 PM (GMT 0)
Use them nightly and lessen the fish oil for a short time. Just see if that improves.

Regarding the ultarinflam X...what are the ingredients..maybe you're sensitive to something in there.

ARe you taking fibre?

q
Posted 6/16/2011 8:59 PM (GMT 0)
sorry, that med info is out of date. haven't used the ultrainflam-useless. hopefully signature info is now up to date. i don't know why it posted on some of my msgs but not others.
Posted 6/16/2011 9:06 PM (GMT 0)
I am recently joining the UC life; it has not been easy to accept for sure.... was diagnosed almost 2 months ago. My doctor prescribed Lomotil to stop the frequent, urgent bathroom trips, it is a LIFE SAVER!!! I currently take Lialda 1.2g X 4 a day. And the Lomotil as needed. Tried Aprizo for 2 weeks to see if it would work as well as the Lialda with a lesser dosage. I seem to have alot of hair loss, still trying to figure out if that is from being so sick(to the point of not being able to eat at all) or if it is part of the 3% listed in the side effects of the script.
Hope this helps!
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