I hate my doctor!!

Hi, am new to this forum and not a US citizen. am 27 married woman. I live in a country in North Africa ( people there have white skin). Today I discovered that I have Ulcerative colitis. I have been diagnosed 3 years ago but at that time I didn't know what UC was. My doc didnt bother to tell me this is a life long serious disease!!! just prescribed meds which I felt better after taking them. I went on 3 years not knowing what d hell was going inside my colon! I didnt modify my diet much. I cld eat everything nd still was doing great. last month after havin my second flare up I decided to do some research abt this thing called UC. its been 22 days now and am living just on rice and carrots. I feel very weak and afraid to try anyth else after all I hav read abt this disease. my doc said I shld cut out all diary including yoghourt and didn't prescribe probiotics untill I asked for it. seems as if I knew more abt my disease than my doc does. am considering changing my doc soon.
English isn't my native language but I hav done all my studies in English and been to the states several times.

am glad to find a forum abt UC for support, something which is not available where I live ( support!!)
UC challlenger,

Hi, yes I had colonoscopy. My UC is limited to my left side. Am currently on on Sulfasalazin ( (brand name Azulfidine in the U.S and Salazopyrin in Europe) 3 pills a day (8 hours separating each) and other antibiotics. am just worried that would kill bad and good bacteria altogether!


UCH

UC challlllenger,

Welcome to the forum.

It's great that you've done research and know about your UC - most of us have to be our own best advocates.

You definitely need to find a doctor who you can talk to, who can give you options as far as treatments, and who can answer your many questions.

 

am living just on rice and carrots

I am concerned you are not getting enough protein and nutrition,  and amino acids are the building blocks of you.

Is there any way, you could tolerate some grilled fish or meat? However, I would recommend you eat it without carbs. I am a big proponent of food combining, which if you do not do correctly can create havoc on your gut.

But also, you mentioned probiotics, I would recommend VSL #3 - it is the only probiotics made for UC, with 450 billion cultures, and if you can get a prescription from your doctor they make it: VSL #3 DS (double strength).

You may want to get your blood work done, if you haven't already, as you may be anemic. Also, whilst they do it, have them check your vitamin d3 levels (  there is a correlation between IBD and low vit. d levels).

Also, drink lots of clean water - very important.

What about rectal meds? Canasa suppositories or enemas?

 

InSoFla,

My blood tests say am not anemic.

diarrhea stopped 3 days after medication yet am still losing weight. I lost my appetite as I keep worrying abt what might happen in the future. I've read abt people losing their colon and other dramatic stories and when I sleep, I keep having nightmares.
I tried to reintroduce some meat last week but got a bad day bec of it ( bloated with severe abdominal pain). I do drink plenty of clean water, though, and no rectal meds, the doctor didn't prescribe any.

I am seeing another doctor tmrw.

Thanks

Welcome to the UC Forum! You might also find some helpful information on diet and other topics on the Website ccfa.org. It organizes activities for IBD patients in the U.S. & raises funds for medical research, but many types of advice given on its Website would apply to you, too. Best wishes! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

I second the rectal meds inquiry. If your inflammation is limited to the left side then rectal meds are a more direct route than oral meds. Depending on how far up the inflammation is and your tolerance/preference, you could ask for both enema and suppository samples if your doc has them available.