justwrong,
Why dont more people know about this drug? - How come people arent giving the option of trying this drug, instead they are getting pushed into surgery or Bio drugs etc?!
Great question. IMO, big pharma is in bed with doctors. I don't know about in Europe, but I know that in the US doctors do get big bonuses in the form of paid cruises, golf outings, luxury vacations, etc... for high producers (those who write the most big ticket $$$ drugs). And big pharma can't make any profit on LDN - since it only costs around $29, per month, so they are pushing doctors to only prescribe 5asa pills and the supositories or enemas (which if you don't have good insurance coverage, like me, can cost as much as $700 per month!), and the high side effects of the biologics, not to mention their cost ($7000-10,000 per month) - makes it quite a profitable venture for all except the patient.
In my experience, most regularly trained doctors, GP, GI do not want anything to do with LDN. Even when you show them the studies, they tell you "it's not the standard of care" or "it's not proven to be effective" or some other BS. You'll need a doctor who is more alternatively inclined - who is willing to see and know about alternative treatments because he/she recognizes the shortcomings of big pharma's reach of big profits and big side effects.
IMO, LDN should be the drug of first resort and NOT last resort, because it has almost no side effects, boosts your immune system, is cheap enough, and helps for a whole host of conditions.
How long have you been on it? - How long did it take to start working? Are you currently experiencing any UC symptoms?
I"ve been on it for 6 months now. Because I was on the SCD diet, after the 4th day of my being on Transdermal LDN, I started to see the difference. And it seems to be that people who follow an SCD diet (which for many by itself will help with so many symptoms of UC), get much better and faster results. ANd that makes sense, because for most of us UCers many foods (foods not on the SCD diet), are a constant irritant to an already inflammed colon which has been compromised by this auto-immune disease, in which your system is attacking its own colon as it perceives it as being foreign.
I am doing well. My BMs are formed and I usually go about 2 x per day, without any urgency. Now, as soon as I get off the SCD diet, that changes pretty quickly, and I can count on discomfort, urgency, and blood.
Some people will tell you it isn't remission if you have to live in the straight jacket of SCD for the rest of your life. But does it make sense to FORCE your colon to accept foods it obviously doesn't tolerate and makes it inflammed? Yea, that part certainly sucks big time! Especially to someone like me, who used to love good food. But I've finally come to the conclusion, after a few painful "cheating" episodes, that it just isn't worth my risking my colon because I'm missing my favorite foods..
Sorry this has been such a long reply to your query.
I hope this helps, and I hope you get to try LDN. Just know that you need to do your research and due diligence before you do. I've started a few posts on "Transdermal LDN put me in remission" - parts I,II,III - wherein I explain about the importance of knowing about which type of LDN and its fillers and their reactions, etc.... So you may want to search that on this forum.
If you can't find the info, let me know and I will post it here for you.
Good luck in your quest. Let us know what happens.