Who's tried LDN, and what are your results?

Probiotic,

I dont' know what HFS slippery elm drink had in it.

But if and when you do try it, I would recommend you get it as organic slippery elm powder, it's the purest form of it.

I did post where I buy mine in an earlier post, if you are interested.

Have you tried any goat or sheep cheese?

They contain a different protein in it, and many who can't tolerate cow dairy, are able to handle sheep or goat cheese pretty well.

Let me know what you think?

Yes, all the foods I've been missing....but that's going to change soon, I hope...

BabeintheWoods said...
You might be playing with fire.

I can see both philosophies here. Once I am a long way out of a flare ( 13 months now ) I do like to test the strength of it. However if you don't know how to put an abrupt stop to a flare you better not. I had a flare starting from 'Assault' pre-workout powder last week. I gave up energy drinks one year ago and only drink pure water, and lets see, yep that is all I drink besides coconut water. So these pre-workout powders are risky but I am basically addicted to their effects. This one results in the best darn pump in the weightroom, just fantastic want to keep lifting heavy all day. But it caused a firehose out the back end within hours. 3 grams of Arginine and other things seems to be the cause. I gave up on 'Assault' but still had to settle my system down. I had not used any psyillium seed powder in about a year but it seemed necessary so I ate fish and psyllium with some natural protein powders, bag of VSL3DS for a couple days and got right back on track. The burning fire is out, the liquid rinse is out and I am back to one bm per day. Had I continued I guarantee I would have seen blood within 7 days.

Just wanted to update on the last comment I made (yesterday I think).

I have seen a much needed return to form in the past two days. I decided to try psyllium seed powder again for one night two nights ago, and had predictable results yesterday morning: formed movements with far less liquid. However, I decided not to take it last night just to see if the form would stay without the psyllium dosage, and lo and behold, I had a lot of good form today. I'm still having a relatively high number of BMs, but far under what I was before, and the form is starting to return after this past weekend, which was nasty.

This effectively settles a burning question about oral LDN for me: the avicel filler had nothing to do with the disappearance of my form over the weekend and Monday. If it were the filler, I would still be having liquid movements, given I took no psyllium seed last night.

Definitely sticking to the oral LDN for a long time here. I thought I would do the same with the transdermal, but it didn't have much effect after two months. The oral has dropped my BM count per day significantly, though it is still far from where I want it, and form has returned to the movements, meaning alcohol was likely the cause of the 'liquidation', not the avicel filler.

jray1971,

Yes, it's the LDN. It's not a fluke, and I am glad it's helping you.

Great news.

Have you given any thought to a natural substitute for the asacol?

Slippery elm bark powder is just that.

Things are still improving even being on the oral LDN.  I added in psyllium seed powder and mesalamine enamas and I have seen significant improvement.  The psyllium seed must have anti-inflammatory properties in it, the bleedy has just stopped right away the same day actually.  So I think all this working together is helping me out significantly...yes!  BM's are 2-4 daily and that is it, no bleeding, even the urgency has stopped...

I just received the transdermal LDN, may try that tonight.  I have better color in my face, I have more energy, I must be absorbing nutrients now...on my way to remission. 

I am so greatly for this forum and over the years, yes years, I have been watching carefully what people are doing and what is getting people into remission.  Everyone is different, that is why UC is so difficult to heal. 

I really wished I would of tried this a year or so ago, but I don't think I had all the pieces to the puzzle at that time.  I will report on my progression of healing as time goes on.  So excited, I actually had a little bit of mashed potatoes, a little frozen yogurt and my colon has been just fine, where before I would have D and bleeding right away...
Thank you LDN!

Hopeful4uc,

Great news!

So glad you are doing better and better.

It's possible that as your gut starts to heal, absorption gets better, so maybe the oral LDN is the way for you to stay, no?

Anyway, you cank keep the transdermal LDN as a standby if you need it.

However whatever you do, just keep doing it, as it's working!

 

INSOFL

Have you given any thought to a natural substitute for the asacol?
Slippery elm bark powder is just that.

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I dont know anything about it..I had been drinking different varieties of gut sludge and they all make me feel sick to my stomach so I have cut out everything except the LDN literally. I haven't taken Asacol since the beginning of June because it didnt seem to help or make any difference in the severity of any of my symptoms, they were just terrible with or without it. I did find Slippery Elm Bark Powder in capsule form and will add that to my 'take with meal' supps. Thanks.

I cant believe the LDN worked so fast for me, cant imagine how its possible and I still feel like the other shoe could drop any day. My fingers are crossed that it keeps going like this. :)
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INSOFL

Thanks, I truly hope so, It just seems so incredibly fast...:) I guess I just dont understand the science of how it works and can't imagine how it could work so fast. But I am thrilled!!

InSoFla said...
It's possible that as your gut starts to heal, absorption gets better, so maybe the oral LDN is the way for you to stay, no? However whatever you do, just keep doing it, as it's working! [img]/community/emoticons/smile.gif[/img]

Couldn't agree more. There is little reason to switch to the transdermal, Hopeful, if the oral is working so well.

The oral is doing incredibly for me. I'm on day 15 now, and yesterday I only had 4 BMs beyond the normal morning yesterday (shooting for zero after the morning; that's my goal). When I started I was having 6-10 beyond. 4 is the lowest number I've seen in a long, long time. Transdermal never got me that far, let alone as quickly as two weeks.

It seems that oral vs. transdermal is a highly individual thing, just like everything else with this darned disease (i.e. diet). If one works for you, there's absolutely no reason to risk trying the other.

I hope others read this who didn't have success with the transdermal and try the oral. The same vice versa (tried oral without success and will try transdermal).

Gonna have to update my sig soon here. I'm hardly taking any psyllium seed or VSL. They may not be necessary given the impact oral LDN is having. Pretty incredible

InSoFla

Thanks
I got my transdermal last night
i dont expect it to work overnight
i have alot of gas atm and very inflammed
but im going to give it ago with the transdermal and see if it works
if the transdermal doesnt work i think i will go for the oral LDN

Its really great reading everyones success with the LDN , its given me alot of hope
I might get some kinda of relief from UC
Never had any remission since i got it

linahawk,

Glad you received your transdermal LDN.

Do you know how to use it?

You'll be applying it around bedtime, ideally between 10pm - midnight. You put a demarkated dose on your forearm, the area just above your wrist (where the skin is the thinnest and you can see the veins), and you rub it in until it's all absorbed. Even when it's absorbed, it will still be wet to the touch, so I let is air dry for about 20 minutes. And the next night, you would alternate and the your other wrist, and so on...

If you are on the SCD diet, you will see pretty quick results, if not, it may take longer.

What diet are you on?

Good luck.

Update-
Started on the 19 Aug
So far im feeling so much better
Still having a few BM In the Morning but the rest of the day im feeling pretty good with minimal BM
My urgency is slowing down..still have a little bit of gas but im feeling better
Im also taking Cipro so im not sure what is causing me to feel better
not sure if the LDN is suppose to work this quickly?