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Who's tried LDN, and what are your results?

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Ulcerative Colitis
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Posted 8/23/2011 10:24 PM (GMT 0)
Update:
Well, I definelty have more energy when I get the appropriate sleep.  No bleeding, unless I strain too hard, then bleeding from an internal hemi.  My stools though are small (2 thumbs size), brown.  I go about 3 or 4 x everyother day, then some days almost nothing...hmmm.  I definetly have more gas, my intestines rummble alot, almost like gas bubbles.  The psyllium seed powder has helped me alot.  Now not sure if this is remission or not.  I still stick to a good diet, no gluten, *sigh*, minimal sugar, etc.  Just wondering if i will still see improvements from he LDN.  It has been since 7/14, so I have to give this a good amount of time to see the full effects. 
Not sure if I want to stay on LDN indefinetly though *sigh*.  Maybe buying me time until something comes along to eliminate the bad bacteria.  This disease is very frustrating...so time comsuming
Posted 8/23/2011 11:17 PM (GMT 0)

Hopeful4uc,

Glad you are doing better.

In some LDN takes a few days, in others a few weeks, or sometimes months - to actually stabilize.

But at least you're getting some positive results without all the terrible side effect, no?

Posted 8/25/2011 8:54 PM (GMT 0)
13 days and still symptom free!! Whoyah!!! LDN for all who suffer!!! I just don't understand how I could have such a complete turnaround!! But I am thankful for everyday like this! Thanks for everyone's support, I will check in again soon.
Posted 8/25/2011 10:40 PM (GMT 0)
jray1971,

Great news!

Keep us posted of your great progress!

Posted 8/28/2011 4:48 PM (GMT 0)
jray1971-
That is awesome news!  So happy for you.
I think I'm seeing some improvement as well.  Some days no bowel movement, others about 3-4.  No blood though, hurray!  I really want no symptoms at all, but I think my inflammation is being reduced and hopefully the colon is on it's way of healing.  I even enjoyed that MN State Fair two days ago and eat good healthy foods without any reaction, however I did have a frozen yogurt cone and my tummy was turning a bit...but no urgency, etc.
I do think the psyllium seed powder has really helped me alot.
Keep posting your progress, nice to hear the sucessful stories.
Posted 8/28/2011 8:29 PM (GMT 0)

Hopeful4uc,

Sounds like you're much better too.

That's great.

Keep us apprised of your progress.

Posted 8/31/2011 5:11 PM (GMT 0)
I started LDN last night! I'm really hoping this will work!!!
Posted 9/1/2011 12:23 AM (GMT 0)
mom2girls,

Great news. Good luck.

I hope you start to get good results soon.

You're on transdermal LDN, right?

BTW, are you on SCD diet? I think that would certainly speed up your response in conjunction with LDN.

Posted 9/1/2011 3:26 AM (GMT 0)
I'm on oral w/ acidophilus filler. I never notice a difference when I start try the SCD, but will certainly try again!
Posted 9/1/2011 10:59 PM (GMT 0)
mom2girls,

OK, so I forgot.

Yes, I think you'll get better results with the SCD diet.

Posted 9/2/2011 1:08 PM (GMT 0)

mom2girls-  So happy you are trying LDN!  I am having wonderful success with it.  I've seen improvement at about 2 weeks, then gradual improvement thereafter.   

I stuck to the SCD diet modified a bit to add rice and also I needed to get back on mesalamine enamas to help get the inflammation down and I added psyllium seek powder....now it has been 7 weeks and I have formed stools about 1 to 3 x's a day.  No blood , no mucus...I think I'm reaching remission... I'm starting to add wheat bread, and yogurt to my diet and no problems!  I think it's actually helping in my stool formation.  However, I still eat very healthy, lots of veggies, fish, chicken...I'm not quiet ready for red meat yet...but don't miss it too much, lol.

Hallelujah!  A first in 8 years!  wow!  On a quest to help others!

Keep us posted on your progress!  remember to give it time!

 

 

Posted 9/2/2011 1:41 PM (GMT 0)
Thank YOU hopeful4uc! I really needed to read your post today! I'm very discouraged! I had a lot of blood, pain and urgency this morning! I wake up tired! I feel like I'm not being a good mom to my girls. I had such a good week last week and then this week its nad again. I feel like im on a constant roller coaster. All i want to do is lay around. I pushed myself to go to the gym this morning. I'm going to see this through, but I'm just so frustrated! I'm eating very healthy, on supplements including the psyillium seed, l-glutamine, fish oil, VSL ds 2x a day. I just need a break!
Posted 9/3/2011 6:19 PM (GMT 0)
Hi.  Just wanted to update.  I am over six months in on LDN.  I feel great.  No blood, minor urgency if any, and some days only going once maybe twice a day.  It is  hard to believe that after being so sick and flaring for three years  I am doing so good.  Hang in there everybody!
Posted 9/3/2011 6:49 PM (GMT 0)
Boxermom2,

Box, great news!

Posted 9/3/2011 6:53 PM (GMT 0)
Thanks Sally! I needed to hear that. How did you feel when you started LDN? Did you have any side effects? I'm exhausted!
Posted 9/3/2011 7:32 PM (GMT 0)
Mom2girls- I was very sick when I started. I had exhausted all options and had just lost my second baby. It took about 3-4 weeks for things to start getting better on the LDN. Things formed up and no blood. Frequency has just now gone way down. I did feel tired at first. Also, I felt my joints were achy also. I feel good now though. Good energy. I also think that the UC affects those as well. I know it makes you tired. Just give it a good 6-7 months before you give up on it. I am doing really good. Humira and Remicade faliled me but this has given me my life back. I was skeptical at first but so glad I tried.

I wanted to add that I think the two Immodium every morning and the Welchol were the missing link for me.  The Welchol is a cholesterol med that binds up the bile acids and slows down the gut.  My GI gave it to me for the purpose of slowing things down and it works.  Look into it.

Posted 9/3/2011 8:30 PM (GMT 0)
Thanks for the suggestions, Sally! I'm determined to see this through! Just ready to feel better and to be a better mom to my girls.I know it's probably all in my head, they don't notice anythings wrong, but I just know I'm not my best! So good to hear about your success!
Posted 9/5/2011 5:41 PM (GMT 0)
mom2girls:

You are welcome!  I too was extremely exhausted when I first started LDN...I think my body was working hard on doing what LDN wants it to do!  However, if and that is a big IF I get adequate sleep like 7 hours a night, then I'm doing really well.  Also I used to have bad body aches like arthristis and no more with LDN.  So it is healing the colon and allowing my body to heal. 

I swear by the psyllium seed powder, mesalamine enamas for about 3-4 weeks and supplements mentioned above by several members and it's given back my life!  It's only been 7 weeks and bingo firmer stools, no urgency unless I eat way, way too much sugar...not good for anyone anyway.  I have anywhere from 0 to 3 BM's a day all formed.  So keep it up, treat both ends and hang in there!

I wish other UC sufferers would try this, because it does work where other conventional meds failed.

I will keep posting my progress and I am so thankful for this forum! :-)

Posted 9/5/2011 8:19 PM (GMT 0)
Hopeful4uc,

So glad to hear about your continuing great progress and results.

:-)  

Posted 9/5/2011 8:25 PM (GMT 0)
I am so happy you're doing so well boxer. I have followed your story for quite some time and I am happy you've found something that works for you.
Posted 9/5/2011 9:05 PM (GMT 0)
I have locked this due to length.

Please continue discussion:

https://www.healingwell.com/community/default.aspx?f=38&m=2204683

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