Got the approval to start Remicade from my insurance

I have a coordinator from the Remi manufacturer - called Access One - send me a letter stating that my Dr asked them to step in on my behalf.  I don't know if this is normal protocol or not but I like it :) I called them up and asked them what it is that they do.  They work with the doctors, hospitals, insurance companies and Remi manufacturer to coordinate the whole transition.  She told me that my insurance will cover the Remi 100% and all I need to get is a referral every time I go in for an infusion - I have a HMO - which is no problem.

Now, I am waiting for my docs office to set me up with my first infusion.

Right now, the bleeding has stopped due to cortenemas but I am still having issues.  My gut still hurts, urgency comes and goes, D or C comes and goes.  Random urges hit me in the evening.  I am still having that nagging left sided pain and that ooey gooey feeling in my gut.  I'm not doing too poorly but I'm not doing great either.

I am truly hoping this helps me where all the other meds have failed.  But I don't want to get my hopes up too high.  So I will just take a day at a time and hope for the best.

I call that plain ole icky feeling that you get in your gut ooey gooey lol

Awesome, good luck!

I hope it works well for you Sherry.

Good luck, Red- I hope you have wonderful results from it!

of those of you who have used remi how long did it take to kick in and notice a difference. I thought I was feeling great from it but as they lowered my pred syptoms started rearing their ugly heads. So back up on the steroids for now.

Thanks all :)

My GI's nurse called me yesterday. I guess there was some mix up with Access One and miscommunication with the GI nurse about my covered benefits which is why it took longer than it should have. As of now, I am scheduled for my first infusion, next Wednesday, Sept 7th at my hospital. The GI nurse said that she was going to call back because the hospital prefers a year long global referral but I have never had the year long but only monthly. So she was going to call my primary to see if they could make this happen. But so far, it is still scheduled as planned.