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Ulcerative Colitis
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Posted 9/9/2011 7:51 PM (GMT 0)

Hey please excuse my spelling

I was diagnosed with ulcertive colitious about a 6 weeks ago and after a had a week long symtom showing of bloody diarrhea. Ever since getting being diangnosed and they put me on 40 mg pred and 6 Asacol HD a day i have felt like a guinea pig. For the first to 3 weeks i  eating things like hash browns sausage and fryed egged( no cheese lactose intolorant) for breakfast. Things like handbergers and turkey coldcut sandwhiches for luck. Heck even steak from the grill and meatballs with alfrado was apart of my diet.  Im very food dependant on my parents and they try to help but i guess they thought that grilling the meat made it better. I drunk lots of powerade and water. Slowly but shortly my GI and i noticed that my syntoms were not getting better and that my blood work showed that i was still highly inflamed so he raised me up to 50 mg pred. I saw him the 3 days ago and when i told him my stools were finally solid he told me to go back down to 40 I started keeping a food diary today and im going to stay doing so Im  always around the house and im always hungry. I used to lift weights for about 1:30 mins a day for 5 to six days a week but havent done so since my flare up. Im now walking around at 150.

Basicly i havent had any diarah in over a week and i just found out what mucus is lol . I have a little mucus on my stools which looks weird but is solid. I will be asking alot of questions on this discussion board just to get a few peoples opinions and insite but ill go slow.

This is my diet for like the last 1 and a half weeks or so.

Salmon, canned tuna, baked chicken breast, roasted chicken,baked turkey.( Usually only have 3 servings of meats).

cantaloupe maybe 3 slices a day, unsweeted apple sause., saltine crackers maybe 20 a day, cream of wheat, 2 tp 3 ensures a day usually diluted with water and only a half cup at a time

I know my diet is still wrong with scd diet and all but im looking for suggestions to get me into remission or at least better funner meals.

What should i be eating and how much of it cause i wanna gain my weight back and be healthy in doing so

Posted 9/9/2011 8:00 PM (GMT 0)
Hi, welcome to the forum!

Keeping a food diary is a great start. You don't have to follow the SCD, that's up to you and your personal preferences. Like you, I want a more interesting and varied diet, and so often pay the price when I eat a food that doesn't agree with me!

I think your diet looks pretty good at this point. It's pretty basic and bland, and seems like it wouldn't cause too many issues. I think that if your diet is no longer causing issues within the next week or two (making sure that these foods that you listed don't cause any problems is a good starting point for learning what works and what doesn't), you should start adding things in, one at a time. Give your body a few days to adjust, and then see what happens. You'll know pretty quickly whether or not a food item is affecting you, and because you're only adding one at a time, you will know the cause pretty easily.

Finally, when adding foods, be cautious. I don't suggest adding in hot wings, fried chicken, pizza, etc. right away. Greasy, heavy foods seem to be a major culprit for a lot of colitis sufferers, so you may want to try more fruits, veggies (if you can digest them), carbs (to see if they bug you), and dairy products (again, to see if they affect you).

Good luck!
Posted 9/9/2011 8:18 PM (GMT 0)
 

Thanks for the advice. my main thing is im not tryna live like no punk but im tryna get better. I may add more fiber foods and see how they work. Do u know how do u know when u made the wrong choice. Like stomach pain? Or like will it be something like i ate something bad 2 days ago and now i have diarrhea

                                                                                 

Diagnosed with pancolitis 8/1/2011 at 22.
Currently on Asacol HD, 40 mg Prednisone, Enema, Dexilant when my stomach hurts
Vitimans: one a days, fish oil
Tumeric and ginger teafrom time to time. Wanna wein in Calcuim and Vitiman D and maybe a probiotics.

Posted 9/9/2011 8:42 PM (GMT 0)
BeatUC2011,

It looks like you have made some changes to your diet for the better, definately keep a food diary and I agree about staying away from  greasy, fatty, processed, high sugar and artificial sweeteners foods.  Try to stick with natural whole foods that take time to prepare.  White rice is always good for bulking things up.

I noticed that you drink ensure,  many of us here cannot drink them because they have alot of oils in it that can cause diahrea I would stay away from them if possible.

Definately add a good probiotic to your day, I take 2 different ones(in my signature) and both work very well.

Metamucil(fibre) should be added, start slow and gradually increase the dose.  Metamucil will absorb water in the colon,bulk the stool and help make things easier to pass.  Don't take the one with aspartame not good for UC.  Fibre foods might cause more pain right now so I would stick with lean protiens, cooked veggies and carbs like rice.

Enemas should be used nightly until things settle down, and then you could cut down to every other night and gradually decrease. 

Once your symptoms settle your weight will start to go up.

Posted 9/9/2011 8:49 PM (GMT 0)
Have you had stool tests and a colonoscopy?
Posted 9/9/2011 9:07 PM (GMT 0)
 Yea i was diagonosed after my colonoscopy and my stool test was done b4 i had one. I have active pan ulcertive colitis

Diagnosed with pancolitis 8/1/2011 at 22.
Currently on Asacol HD, 40 mg Prednisone, Enema, Dexilant when my stomach hurts
Vitimans: one a days, fish oil
Tumeric and ginger teafrom time to time. Wanna wein in Calcuim and Vitiman D and maybe a probiotics.

Posted 9/9/2011 9:11 PM (GMT 0)
You'll know when you eat something that your body doesn't like, cause you might have stomach cramps, diarrhea, constipation, etc. Some people even experience bleeding. So, essentially, you'll have flare symptoms!
Posted 9/9/2011 9:24 PM (GMT 0)
When I was first diagnosed and in remission, but my body was still sensitive to foods, I had deep fried breaded onions from Burger King. Well, I ended up having abdominal pain after a couple of hours of having those. Unfortunately, everyone's reaction to certain foods is completely different, so basically it's a game for you to play with. You know your body, in a short while you will know how your body reacts to certain foods. It's a frustrating game, but it'll be worth it once you get it all figured out.
Posted 9/9/2011 9:24 PM (GMT 0)
Thanks for the information BeatUC. I can completely relate to how you're feeling. I was on prednisone, lost my figure and I was unable to taper down without symptoms reappearing. You have to try to think positive while all of this is going on. I think that is one thing that has pulled me through. You have been on 40mg of prednisone for about 5 weeks? You saw better results on 50mg? I have seen some members mention higher starting doses being more effective. You may want to go back up to 50mg and taper down slower. The problem for you, is that you've already been on prednisone for quite a while and the dose you're on is high, that's exactly why you're having so many side effects, like over-eating and losing muscle. It's very hard to stay in shape while on prednisone because it makes you want to eat all the time and since we are not feeling 100%, it's very difficult to motivate to get out and do something active.

I have to be honest, I don't think diet has impacted my condition at all. Many members have different beliefs about the effects of diet on UC but for me, I eat as you describe, fried, bacon, burgers, cheese, steaks... You said you don't eat cheese but what I am trying to explain is that I actually eat worse than you and I am in remission. For me, I am trying to stop blaming food for my symptoms. You may want to try SCD diet to eliminate a lot of the sugars/carbs from your diet and see if that helps you to achieve remission. It did not help me but it helps many people and it's definitely worth a try. If you can control this with diet, that is wonderufl but I wouldn't put all my eggs in that basket because it is very rare that I see someone here who is using diet to control their UC. Usually they are on at least 5ASAs along with diet, often times they are on more.

Given your situation, I think you may want to get a 2nd opinion from another GI if possible. It doesn't seem like yours is doing enough or being aggressive enough to get your colon healed. Are you on steroid enemas? Has your GI mentioined Imuran/6mp or Remicade? Has he mentioned trying antibiotics? Are you taking probiotics consistently?
Posted 9/9/2011 9:33 PM (GMT 0)
Thank everyone ,i may cut down on the ensure because laterly my stomach has had alot of constipation and crampting. Would it be a good idea to see like with my current diet just to make positively sure that what im eating is good is to maybe try it once at a time and see what happens.

Like should i try and ensure dialurted and see what happens causei usually just add everything together. And i think applesuase may bother me but i dont know for sure .

Also i will add a probioticc and definatley will reasearch Metamucil
Posted 9/9/2011 9:37 PM (GMT 0)
I don't think ensure has great ingredients. I know artificial sweetners always get my stomach in knots. I would look at the packaging and see if they are in there, if they are, please try something natural.
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