Surgery on Friday!

I can't believe it is almost time!  I don't even know what to feel anymore. I actually made it through an entire day without crying, so I am making progress!  I know the reality will hit me HARD when we get to the hospital tomorrow.    I've been reading the boards and it seems SO many people have had complications with their ostomies/j-pouches. This scares SO much!  It will destroy us if she goes through having her colon removed only to have more complications. I know I sound really negative...and I am...so much has happened in the last 3 yrs and none of it has been good. It is so hard for me to trust in the fact that she just might be HEALTHY and happy again. I'm afraid to get my hopes up.  Of course I don't say these things to her, but I know she is cautiously optomistic also.  She is handling things really well   I am so proud of her!  It's only been a month since she got out of the hospital for her last flare and now here she is going back in for another week! 

I have to call the hospital tomorrow morning to see what time they want us there, and then she will spend the night at the hospital doing the bowel prep   I don't imagine either of us will be getting much sleep in the next 48 hours.   I will give you guys an update on Friday. Please send lots of healthy vibes, wishes and prayers out to Children's Hospital in LA on Friday around 7:30 am

Lots and lots of postive thoughts headed your way. And remember, the people positng on message boards are generally people who are having trouble of some sort...the people who aren't having trouble don't need the support!

Actually only a small percentage experience complications. It just seems like a lot when you read these boards, because the people who are satisfied rarely post. They are out living life. I had my surgeon give me phone numbers to his previous patients. I talked to two girls around my age and they did not experience any problems mentioned on the j-pouch boards. In fact, they practically laughed at me, because they never even heard of such issues. I know it's hard, but try and stay off the boards. Good luck.

My prayers are with you.

MustLoveDogs..you don't sound negative at all. You sound concerned and hopeful it will go well for your daughter considering what she's already been through.

You've done your homework and know of the possibilities, but some complications don't mean it's a failure or she won't heal after it's dealt with.

Hang tough, you've been a rock through this, and if your daughter is handling it well, that's what's important. She's ready to move forward to get to feeling better.

Let us know how things go tomorrow. Sending calming wishes your way. Give your daughter a hug from all of us.

qxx

Good Luck! Good Luck! Good Luck!

All will go fine! 

My son had surgery 11 months ago. He had c-diff a couple of times after surgery. make sure your daughter takes probiotics while in the hospital. My son also has had pouchitis a couple of times. He still has accidents almost daily and no bowel control during sleep. your daughter shouldn't have as much problem with accidents because being 13 she should understand that she needs to go before she feels it. my 6 year old still hasn't quite gotten this concept. life after surgery isn't perfect and there are many potential problems. compared to UC these post surgery hurdles are a walk in the park.

looking back, i had no idea my child was as sick as he was. he's now so full of life, so normal. he takes probiotics, a multivitamin and occasionally something to combat pouchitis. no more 30 pills a day, half of which were essentially poison in my opinion. he can eat pizza and popcorn. he doesn't miss countless school days. I only wish he'd had surgery earlier.

I hope ya'll breeze through without a hitch, and that your daughter can go on to live the healthy life she wants. I'll be thinking about ya'll. let us know how things progress.

-veronica

Sedning you all lots of ((((HUGS)))) and best wishes.....think positive, I know it's hard but the mind is a powerful thing so just keep thinking as positive as you can. Strength will get all of you through it!

Hope all goes well for your daughter!

Stay positive! everything will be alright.

I am sending tons of hugs and well wishes to you and Paige!

This has to work for her and she will feel better very soon!

You are a great Mom and I am so hopeful that life will just get better and better for your family!

Hang tough and take breaks when you need to...best of luck that everything goes really fast,

well and easy!

Take good care and can't wait for an update

((((((((((((((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))))))))))))))))))

Thinking of you today- plse. let us know how everything goes. Hugs!

I hope everything went well with your daughter and you.  I wish her a full recovery.  Yay Yah NO MORE UC FOR THE REST OF HER LIFE!!!!