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Sudden adverse reactions to Pentasa that I've been taking for awhile!?

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Ulcerative Colitis
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Posted 10/19/2011 12:28 AM (GMT 0)
Hi,

I've been taking Pentasa for more than a year, this might not make sense to many and even to me, it doesn't make sense but here I go,

4 days ago I started experiencing pain/bloating, diarrhea and mucous and the beads started showing up(this is normal for many but for me started 4 days ago) in my stool.

I was worried because the stool had mucous mixed with some blood. I started going 3-4 times a day to release some funny looking small stool with Pentasa beads and I decided to stop it cold turkey 2 days ago,

TODAY: I had a decently formed stool again and went only once with no mucous/blood and so much less bloating.

How can this happen so abruptly?

This happened with Asacol for me too. One day my body just said, I can't take Pentasa anymore.

Anyone else experience this?

I'm on mercury/cadmium chelation therapy with my osteopath. Maybe it's the cause but I'm better off without Pentasa?

I'm only on LDN now hm...
Posted 10/19/2011 2:43 AM (GMT 0)
CollegeStudent ,

It's not unusual for IBD people to "develop" allergies or intolerances to things out of nowhere, albeit foods or meds, which they may have taken for awhile.

But it's good you've identified the source and can avoid it.

I've been wondering how you've been doing.

Besides this, how have you been feeling?


 

Posted 10/19/2011 3:03 AM (GMT 0)
I've been doing well.

I wasn't feeling so great 3-4 weeks ago but things have calmed down. Had to be on MORE drugs temporarily like 6mp and Entocort but I came off pretty quickly without getting worse.

I'm only on LDN for now I guess with a variety of supplements!

Also found out that the protein supplements(Muscle Milk and Myoplex) that I used to take for 5 years before developing IBD contained so much HEAVY toxic heavy metals over the USP limit, according to WebMD and ConsumerReports, so I started chelating recently with my new doctor after doing a DMSA chelation provocative.

A few studies concluded that heavy metal toxicity induced autoimmune disease in mice so yea....
Any amount of heavy metal shouldn't be in my body period.

How are you? I see that your diet has gotten pretty loose without causing you problems! Congrats :)
LDN works!
Posted 10/19/2011 4:03 AM (GMT 0)
Man this post had me freaked! Thank god you're still doing ok. Asacol screwed me up after a while, gave me even more severe joint pains. Had to stop it cold turkey as well.
Posted 10/19/2011 11:56 AM (GMT 0)
CollegeStudent,

Yes, alot of the commercially made muscle milk contain not just lot of metal toxicity, but loads of sugars sometimes as HFCS or sometimes disguised as something else.

That's the reason I will only buy the Mercola whey protein, specifically pro-optimal whey (my choice), also it has the benefits of coming from no hormones, no antibiotics, and grass fed cows.

Did you start to feel better when you got the metal toxins out?

Yes, LDN does work!

I am feeling good, thanks.

Posted 10/19/2011 12:41 PM (GMT 0)
Hi badslinke,

I hear that you're doing good!
Yeppie! Stay well!!!

InSoFla, I actually didn't feel good during my first round of chelation. I got a slight fever and headache but it went away but I have more energy to exercise and study late for my midterms without getting TOO tired without coffee haha.

I do want to take Mercola's Whey but with the amount of that I consume, it is sort of expensive to buy it lol.
I haven't had any muscle milk in the last 18 months and I'll keep staying away from it!

Post Edited (CollegeStudent) : 10/19/2011 6:53:07 AM (GMT-6)

Posted 10/19/2011 12:50 PM (GMT 0)
CollegeStudent,

Yes, it is expensive.

Yes, better to stay away from muscle milk for sure.

Posted 10/19/2011 11:10 PM (GMT 0)
You know CS, you really ought to look into dried egg whites for your protein powder. They are said to have a higher bioavailability and provide greater protein absorption, and are totally additive free. It's JUST egg whites, that's it. That's what I'm taking now. There are some commercial brands of dried egg whites out there that have crap in them, so be careful. I use Rose Acre Farms.

Egg whites are way cheaper than any of the whey powders.

Food for thought :-)
Posted 10/20/2011 1:37 AM (GMT 0)
Woah..
Thanks for the recommendation!

Can't believe I never heard about this product before. I worked at GNC a few years back but didn't see one.

Anyway, thanks :]
My guts should have no problem taking this.
Posted 10/20/2011 2:41 AM (GMT 0)
haha nice. That's what the HW community is for!

Here's to doing better :-)
Posted 10/20/2011 11:17 PM (GMT 0)
Thanks thanks <3

It's been almost 4 days since I quit Pentasa but I still see some Pentasa granules mixed up in my stool.

It's one resilient son of a *****. I just want all of it out of my system already. dammm

I still wonder why it hasn't dissolved in my intestines. I certainly haven't eaten anything that looks like Pentasa beads...
Maybe my intestine's pH changed? They're supposed to dissolve under certain pH i think???
Posted 10/22/2011 12:41 AM (GMT 0)
YFGM (you got me). Have you spoken to any medical professionals about this? You're at least stable now no?
Posted 10/22/2011 5:51 PM (GMT 0)
Yes, I still see my GI every 2 or 4 weeks depending on how I feel.

I left him and message and he called me back and told me to stop it for a week then try taking it again to confirm whether it's causing me problems.

Yep, I'm stable right now.
How are you right now?
How much beans do you eat on daily? lol I just added black beans to my diet. Adding them to rice.

You're only on oral LDN right? I believe it's the avicel filler based?
Seems like many people have issues with the filler.

I wanna try the sucrose filler based LDN when I'm done with this 30 day supply, just to see if it's effective or not.
Posted 10/22/2011 10:00 PM (GMT 0)
CollegeStudent,

I've read before by some that sometimes the pentasa can stay in the colon for a while, don't worry about it, it will come out eventually.

You're on avicel filler LDN?

Yes, if you even think avicel might be a problem, I would recommend switching to sucrose filler.


 

Posted 10/23/2011 4:12 AM (GMT 0)
I actually have the transdermal LDN too from a few months ago. I don't know if you remember but my GI prescribed me both. I'll try the transdermal LDN tonight.

I wanna experiment lol. I'm not in a flare so I think it's alright.
Posted 10/23/2011 11:53 PM (GMT 0)
CollegeStudent,

Glad you still have it, but mine has an expiry date on it, so you may want to check yours.

Let me know how you make out with the transdermal LDN.

Posted 10/25/2011 1:11 AM (GMT 0)
Ya I'm doing the oral with avicel. I do about half a cup of (cooked) beans a day, 4-5 days a week. Still do psyllium but not as much now cuz I dont need the extra bulk. THings are pretty well formed these days. I'm back on the VSL DS at massive doses cuz I finally got insurance that covers it.

I'm doing fantastic right now. 3-4 times day, consistently formed, still gas with some mucus but tolerable. It's not 100% remission, but is the best Ive been since 2006 really. I attribute a lot of it to LDN, no question!

What's your gameplan?
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