HealingWell
Search Close Search
☰

ok, NOT TO BE GROSS - but...

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/20/2011 11:47 PM (GMT 0)
Has anyone had a problem with poop leakage? I have had colitis forever and am now on canasa suppositories. Recently I have been having a terrible problem with poop leakage...I don't know if it is a symptom of the suppositories or of the colitis. I am not having any other colitis symptoms right now. I think it might be the enemas, but am not sure. I am also on asacol 4 of them 2 x day. Recently had flex sig and was told colitis is in remission but doc found an ulcer in the low rectum. HELP!!! : : sad
Posted 12/21/2011 12:44 AM (GMT 0)
Not poop leakage, but sometimes w/ the suppositories, when you pass gas, the supps leak out. I wonder if that is what you are experiencing. Just a thought.
Posted 12/21/2011 2:20 AM (GMT 0)
Would that it were just the suppositories!!! Which, I might add, are gross enough. but, alas, no. It is more- it is the actual brown matter. Anyone else? thanks for your reply, though, because I've had that also.
Posted 12/21/2011 8:30 AM (GMT 0)
Happens to me when my colitis acts up. Sounds like an inflamed rectum there, that wants to get rid of a little mucousy poop -- quickly before you make it to the toilet. Keep up with the rectal meds.
Posted 12/21/2011 2:15 PM (GMT 0)
weenie,

It sounds like the suppository mixed with mucus.  The mucus will be a browny running colour and it can also have a strong smell.  The mucus will leak if the inflammation is right at the rectum.  You should maybe use something like cortifoam which is stronger the the suppository.

Are you using metamucil to soak up some of this liquid?

Increase your probiotics?

Posted 12/21/2011 2:44 PM (GMT 0)
I am new to the forum and not sure how to reply to specific comments yet, but will figure it out. Thanks for the great, quick feedback so far. It is so wonderful not to be alone in this anymore as I know no one with colitis. I notice a lot of people take pro-biotics. What are they? Also, are metamucil wafers helpful?
Posted 12/21/2011 3:00 PM (GMT 0)
weenie, 

Probiotics are very important for us with Colitis.  The probiotic put the good bacteria back into the colon that is lost with the frequent Bowel MOvements.  When the flora in the colon gets out of wack the bad bacteria takes over and things go for the worse.  I take probiotics 2x daily.  The ones I find beneficial are in my signiture at the bottom.  Many people here take VSL#3 with great results.

Metamucil wafers I have not had but im sure they are fine.  I use the metamucil powder and not the sugar free one as it contains aspartame.  The aspartame will make diahrea worse.

Metamucil is important to absorb the liquid in the colon, bulk the stool so it's easier to pass-so your not straining, and keep the colon walls clean.  I take a tablespoon in a glass of water every night before bed.

Posted 12/21/2011 3:54 PM (GMT 0)
I also take probiotics--VSL 3. It could help as it helps alot of us but you may want to add in gradually -some people can take alot at once..but I needed to build up as to not get any discomfort. Ditto for fiber...add in slowly. I take the Metamucil wafers--they taste good and they bulk the stool and make it easier to pass. I also tried the powder (not sugar free) but got the same results and I like the taste of the wafers and they are easy to throw in my purse. You may have to experiment w/ brands...some like Benefiber but alot of us do well w/ Psyllium (Metamucil)

Def. keep up w/ the rectal meds.... I use Anucort (steroid supp) along w/ Rowasa enemas. The steroid helps and some like the foam (which is a little stronger) Hope you will feel better soon...passing stool when you don't want to is upsetting.
B
Posted 12/22/2011 6:23 PM (GMT 0)
Thanks for the replies. I am going to look the probiotics up on the internet, especially ASL 3. Can you tell me where you get it? Also, as I mentioned, I am on the canasa suppositories and they are causing leakage. Do you think I would have better luck with the foam? My doc is out of town and another doc in the practice said it might be worth a try, but it might be a lot more expensive. The canasa supp. are already (even with insurance) $100.00 a month.
Posted 12/22/2011 9:10 PM (GMT 0)
I get my VSL3 from Sigma Tau Pharm...the number is on their site on the internet..be warned though, they are expensive...a box of 30 packets is around $86. You can try to get your Dr. to write you a prescription for VSL 3 DS (double strength) and maybe your insurance will cover some of it. They also need to be refrigerated right away.

I don't have the leakage with the Rowasa enemas that I get w/ the steroid supps. I never used the foam but those who do, love it and say it doesn't leak and is easy to retain. Let us know what your plan is and how it is going.
Posted 12/22/2011 9:14 PM (GMT 0)
Hateuc,
Thanks for info. Am still on supps with leakage and am definitely going to try for foam or enemas when my doc returns. Am also going to look into probiotics. Do you have UC or just proctosigmoiditis and what is that exactly? is that an ulcer further down? This is all so expensive! Very discouraging. BTW - I love your name!
Posted 12/22/2011 11:34 PM (GMT 0)
Thanks, the name says it all! :) I know it is horrid how $$ all these meds are..so ridiculous. I have Proctosigmoiditis which means my UC is basically in my sigmoid and rectum. It is UC but just says where my inflammation is. This matters only to help w/ which meds to use and also for any life insurance purposes. If you need anything else, let us know. This forum is the greatest!
Posted 12/23/2011 1:17 AM (GMT 0)
You know, I can believe that this issue, which I also have, is related to UC/IBD, however, if you do a google search, it appears that MANY people are having this problem!

I can't help but suspect that there is something else going on also...whether it be low level ionizing radiation damaging the lining of people's intestines, or hybridized, GMO wheat proteins gone awry wreaking pure, unmitigated hell upon the intestines (and rectums) of certain unsuspecting genotypes.

I know, ridiculous right? Go ahead and do a google search for "anal leakage."
Posted 12/24/2011 3:41 AM (GMT 0)
bump
✚ New Topic ✚ Reply