Hair thinning on Lialda...

I've been on Lialda, 3 pills a day, for 3 months and the hair thinning seem to start at about 2 months. It's not coming out in large amounts but it's enough coming out every day that is making my hair noticeably thinner. I take a high potency multivitamin with biotin so I don't know what else I can do beyond that. I've thought about tapering down on the Lialda... perhaps a lower dose would make this stop?

I really don't want to lose anymore of my hair. :\

I was on Pred in October and got off of it mid November... Do you think it would still be in my system?

I think it could still be in your system....everyone seems a little different. Wow fadoozle that is alot of hair loss...I have really thick hair but I don't think I lost anywhere near that much. Lialda has been such a good drug for me that even if I was still losing hair I don't think I would go off it.

It's not that it's still in your system as much as it affects the general "schedule" of hair growing/dormant/shedding process.

How much hair is lost during the day? what's lost has been in a dormant stage already, but if you're not having much loss at this point, I would say it's probably evening out.

It can take a year for the sheduling to get back on track.

Remember, we lose 100 - 150 hair a day...normally.

q

Here is part of my post from a few weeks ago, on the topic as well.

I was on predn "only" for 2-2,5 months and had started Lialda during that time (4 pills a day). Two, three weeks after tapering off predn completly and after taking Lialda for 3 months, my hair went crazy. I was literally shedding. Even though I have short hair, after few weeks my DH noticed that something was wrong. A man, he isn't supposed to notice that kind of thing
What was worse, I was overseas for the whole summer, and had no contact with my doctor. Was really worried that it was Lialda side effect and I would finish being bald in a couple of months. After being back to US I saw my GI and dermatologist. They both said that it can be due to several reasons: flare-up taking its toll, predn - taking its and Lialda - on top. Moreover, I got seborrheic dermatitis sometime in the course.... Yay! Lucky me! But both of them were quite positive that it would pass. Esp dermatologist was pretty sure that my hair would grow back, he already saw some new hair coming through (I've believed him, even though I couldn't see them). He just put me on Biotin 5mg per day, he said to discontinue the multi (it was powerful as well, with biotin in it, but in much smaller dose than those 5mg). And now, voila!
I've been taking Biotin since the beginning of Sept this year (and Lialda, cont) and my hair already looks better, a lot thicker. And since I have short hair, I can already feel the difference. Seborrheic dermatitis is still there, and the medicated shampoo is not a gentle one, that for sure. I also color hair every 4-5 weeks top and still, they are coming back.

WingZero,

I'm sorry about your hair loss. Since getting UC, and even with being in remission, I've lost so much hair - probably close to half. I"ve tried biotin, folic acid, all other supplements and nothing has helped. There is another factor at play: malabsorption of nutrients due to UC.

You might find a lessening of hair loss if you cut back on the asacol, but will you be able to do that without suffering the effects?

Unfortunately I haven't found the answer to hair loss yet :(

I am losing ton s of hair. I was about a year a n a half ago also. It actually stopped falling out when I started 6 mp. As soon as I stopped it 10 months later the hair started falling out again. I am also on pred. If "exclamation point loss" is when you see the white ball on the ends, that what I have. It seems easily distributed

fadoozle,

Do you mean overall thinning of eyebrow hairs or that you are significantly missing the outer 1/3 of your eyebrows? The latter would be a sign of thyroid malfunction, most likely hypothyroidsm.

fadoozle,

Yes, that's a sign of hypothyroidsm for sure.

When you have them re-check your thyroid functions, please make sure they test for all values, i.e. TSH, T3, T4, antibodies, Total T, reverse T3 as most doctors only test TSH and that is not the sole determinant critera for hypothryroidsm.

Let me know what you find out. Good luck.