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how I got into remmission from Ulcerative Colitis in 7 weeks

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Posted 1/5/2012 3:59 AM (GMT 0)

beeswax said...
Somedude, I actually think the diet looks pretty good, all those organic, fresh, non-processed foods. Most of her original post includes suggestions for recipes and foods that you can eat. There are more suggestions of foods to eat then restrictions on foods not to eat. There are many people who post on this forum that do not eat wheat, gluten, dairy, and who follow the SCD diet. Your decision to go into attack mode is pretty offensive. I stopped posting on this forum for quite a while specifically because of negative attacks. If you don't like the diet fine, go read and post on topics you agree with. I don't see what you are getting out of being negative here beyond possibly just trying to reinforce your own beliefs and methods by tearing down someone else's.

Huh? Lol I am not going into attack mode. I don't like the diet, but I can argument about it. She is doing just fine, she is sticking to her diet which is amazing, I am trying to envision if I can follow such a diet.

Let me give you an example. I like black cars, you might like red cars. I can give arguments why I don't like red cars and you can give arguments why you don't like black cars. Do you consider this offensive? lol
Posted 1/5/2012 4:02 AM (GMT 0)
I edited my response to include Max89. I actually found him more offensive then you. You are just being argumentative. No offense:)
Posted 1/5/2012 4:04 AM (GMT 0)

beeswax said...
I edited my response to include Max89. I actually found him more offensive then you. You are just being argumentative. No offense:)


Mr. Burns " exccccccellent" ...I am off the hook. Phew. smilewinkgrin
Posted 1/5/2012 4:06 AM (GMT 0)
Too funny!!!
Posted 1/5/2012 4:38 AM (GMT 0)
I have 3 young children to think of a husband and I normally come last although lately i have put myself first for obvious health reasons. I work with young people who just do not understand my condition nor do I wan't them too. I want to lead the normal life I had before. Perhaps Somedude you are younger than I or don't have as many people relying on you for their day to day needs. I do and thank goodness I do because they are my inspiration and my support, my children have witnessed my UC, and have cuddled me when I cried, have had to wait for food because I could not control bm. Now they don't I have more time and much more control and I am grateful for this, diet is such a small sacrafice in the BIG PICTURE.. beeswax I understand negative comments hurt and when we are not well we just don't need the grief.

mum of 3
Posted 1/5/2012 5:08 AM (GMT 0)
hey max and dude -

just wondering since you don't show anything in your sigs, what are your symptoms, meds, diagnoses, supplements, how long, etc.

i also struggle with quality of life issues - but for me, i'd rather make my own choices and not be suckedd into the whole pharma deal - right now i am drug free and hope to stay that way - i've always looked at meds as a band aid tilll i can find the answer to the problem -
Posted 1/5/2012 5:09 AM (GMT 0)
The diet isn't really that big of a deal, its not easy, don't get me wrong...but if you commit to doing it, it only takes a few weeks before it becomes the new routine. I've been on a strict SCD diet for almost 4 months, I'm not sure whether its done much (hard to tell what is working when I'm on so much stuff) but fact is that its so much a part of my routine at this point, that it really doesn't even phase me anymore. I'm eating better than I ever have in my life, I feel more energetic and while I haven't had as much success as "mum of 3" has had with it in terms of obtaining complete remission, I doubt I'll ever go back completely to the way I was eating before.

Its not like we choose UC, and its not like it isn't going to lead to some inconveniences in life...but limiting what I eat seems like a relatively minor thing to do if it can improve the condition at all, especially if it gets people off meds, I'm tellin ya, long term use of most pharmaceuticals is just not going to be healthy.
Posted 1/5/2012 5:23 AM (GMT 0)
its great that some people can get off meds but not everyone can and that shouldn't be seen as a failure which is how soem of these posts can read (I think unintentionally). There is a role for medicine.
Posted 1/5/2012 7:56 AM (GMT 0)
mum_of_3 - thank you for sharing this wonderful story.

Tell me - how long were you "on" caffeine for? How has your energy level changed? This is probably the most inflammatory item I consume daily(instant bowel movement), but my body craves it. I'm down from a 100mg caffeine pill to a green tea capsule on most days. I'm still searching for an "energy booster" to replace caffeine, maybe breathing exercise

Were you on any drugs at all ever? So nice to be off drugs eh, they are my handcuffs...

Did Dr mentions Organic vs. grass fed chicken? Grass fed seems better, no?
Why no fish in a can. Yes. I'm single and lazy some days. lol

Are you able to share the Doctors name? I don't see a problem posting here, if you'd rather not my email is in my profile.
Thank you if you can share, and thanks again for writing up your success story!!
Posted 1/5/2012 1:51 PM (GMT 0)
My Naturopath lives in Sydney Australia her name is Janelle Camuglia ND I did send you an email i went off my drugs 3rd week into diet while I still had symptoms I drank coffe since I was 17 I am now 47, I was on coffee for 30 years. I have a health bar that has replaced my coffee addiction which I am surprised as I never thought I would give up coffee I tried the cereal drinks such as eco but it just does not do it for me. I did not ask why no grain fed I just followed the diet maybe I was ready to get well, my fater had pseed away and ther was no more stress about the dementure he had and his situation. I think if some thing is bothering us that gives us stress, guilt it has to also be dealt with. I would love to see someone else try this diet to know if it works for them as well as it has worked for me. So if anyone goes to a naturopath and uses these product or similar I would love to know. I think that going off the meds was a very important part of the diet also working, but I cannot proove that.

cheers mum of three
Posted 1/5/2012 2:00 PM (GMT 0)
somedude and max,

Wow, your negativity is palpable!

Why negate someone's success story? Just because it doesn't fit into your little box?

I have changed my diet and done supplements too and it has put me into remission.

I did it because I am keenly aware that continued inflammation means eventual colon removal, and to me, that's not a good option.

I don't believe "living normally" is made up of taking all sorts of heavy duty, expensive $$ drugs, with tons of side effects - which eventually stop working and then you're given a choice of living with a "bag".

Preferring a red car to a black car, is VERY different than making life choices that would promote/prevent your colon's removal.

How about showing some restraint and perhaps even some respect, for someone who's suffered a great deal and found a way to go into remission which doesn't include Big Pharma?

Posted 1/5/2012 2:14 PM (GMT 0)
InSoFla well done congratulations for being in remission its a wonderful place to be, and no more drugs but the best thing is the colon is stonger and having more bowel control it makes me all cheery...

mum of 3
Posted 1/5/2012 3:04 PM (GMT 0)
I looked up Rejuven X on the internet and it looks like a rice-based protein drink. Just in case anyone was interested :-) Didn't see any US sellers and it did look expensive ($80). Probably better for people who have trouble with solid food to get them nutrients than sugar-filled stuff like Ensure.
Posted 1/5/2012 3:08 PM (GMT 0)
I am now on 1/2 a scoup twice daily now of Rejuven x and 1 teaspoon of Vital green stice daily shaken with 300 mls of rice milk and 1 Boswellia tablet twice daily nothing else no meds nada and am in remission. I must check and see how long it takes me to use a tub as it is 700gm a container.

mum of 3
Posted 1/5/2012 4:13 PM (GMT 0)
I do not post often but read 3 to 4 times a week. I too have found a diet that works for me. A smart person once told me that if you EAT for convenience or all taste you Will have problems with UC or not. I too have achieved remission
and will be slowly decreasing the amount of asacol I take. I lost 60 pounds when I flared and now have 50 back, it took awhile but that is normal.MUM of 3 you should hold your head high that you had the courage and discipline to change what you needed to for yourself.

By the way she listed all the ingredients , if you do not want to buy the product buy something else. I think that most of us need to eat to live not live to eat. Most food you buy has so many chemicals in it you would be scared if you looked it up what they use some of them for.
Posted 1/5/2012 4:15 PM (GMT 0)
kidvt212 - well said. One can fight with what works, and wonder/sulk why we are not more like our "normal" friends. Or we can accept what we have(probably my biggest life challenge!) and figure out what works for us best
Posted 1/5/2012 4:18 PM (GMT 0)
Accepting that I had to live with UC for the foreseeable future was my biggest challenge.
Once we cross that hurdle things look different and we can move forward.
I gave up explaining to folks why I can't do this or that a long time ago, let them think what they want.
Posted 1/5/2012 5:28 PM (GMT 0)
Here's my take; I have UC, my husband has Diabetes and High Blood pressure. We have managed to figure out a high protein, high fiber diet that works for both of us, and take many supplements to combat inflammation, and also some prescription meds. We also exercise daily. I take Asacol and he takes quite a few others that we are trying to wean him from (because of a high deductible health plan!)

I started with Remicade for five years, and have had two clear colonoscopies in the last couple of years; went off Remi, and then to Asacol 8xdaily. Now I'm down to 6xdaily, and feeling great. If I vary too much off of my usual diet and eat a little more sugar than I'm supposed to...I don't feel well. So, I've come to know what foods, etc., make me feel great...and which ones don't...and I stay away from them. No processed food for us either!! I think no matter what medical issue you have, you need to choose what's best for you whether it's diet, meds, or something else. As you age...it becomes a must to research diet, supplements, and meds. Good luck mumof3, sounds like you have found the answer for you!

Posted 1/5/2012 7:16 PM (GMT 0)
mumof3,

It's great to hear of your success.

Keep up the good work!

Posted 1/5/2012 7:24 PM (GMT 0)
Sounds like a great plan Lonie, but i'm curious, didn't your Gi doctor ever tell you fiber is a no-no if your in the active UC stage? Brushes against the intestines creating more inflammation, and none of us want to go anymore than we have to. ;)
Posted 1/5/2012 7:27 PM (GMT 0)
I don't have ulcers anymore -- so fiber doesn't bother me. If I don't eat fiber, I get constipated. Better to have solid stools moving through. And nope, never said a word about fiber to me.

Posted 1/5/2012 9:05 PM (GMT 0)
Well everyone you are awesome and I hope you all realise how much we have all achieved, for those of us where the diet works we are blessed, for those where meds work they are also blessed as long as it works. I get alot of firbre from rice milk and I try very hard not too run out of it. Would love to have made cabbage juice but it sounds tricky I looked it up you have to ferment it for 3 days then strain it, chill it then keep some to add to the next batch. Do they sell cabbage juice anywhere in the US cause they certainly don't sell it here in Adelaide, Australia. Lonie you are so right about keeping the stools moving through. everyone have a nice day now

mum of 3
Posted 1/6/2012 3:31 PM (GMT 0)
Well for the past few days I have been introducing some new foods into my diet, walnuts, wasabi peas, and a very few salted peanuts. So far all is well. On the expense side of life either way UC is expensive, the governement subsidise the drugs which is fantastic but the real expense is what it takes from our lives and how it restricts us so to me some things cost more that others to be healthy I am willing to have an ongoing expense that if it gives me quality of life is everything.

mum of 3
Posted 1/6/2012 5:45 PM (GMT 0)
I don't know how I feel about this. When my (young) daughter was diagnosed with UC I was encouraged to no end by such posts. I have spent, no exaggeration, many tens of thousands of dollars on "alternative" treatments, diets prescribed by naturopaths, a library of IBD books, homeopaths, alternative testing etc. In my experience, naturopathy is as much of a cash cow as the pharmaceuticals are and practitioners prey as much on the desperate. Of course, there are good and bad in all fields but I would hate for ANYONE dealing with this crappy disease to be made to feel as if they are too lazy or gluttonous to be "healed" by natural means. FYI, my daughter was raised on an organic vegetarian diet and ate primarily fruit and veg from local farms delivered to us weakly. No processed foods. The fact that I have to even write that "explanation" goes to the heart of why such posts are so irritating - they are blaming the victims. In my case a very young girl who ate better then all of her peers and 99% of the population. But there's still stigma attached to IBD, that patients are not up to the task of "healing" themselves. So, "mum of 3" I hope your remission is long lasting if you are who you claim to be, but to all others, please don't let these posts drive you insane or make you feel even more like crap. I've learned to screen them out though for some reason this one does show up on my "BS radar". Don't know why, could be completely legit but a brand new poster showing up with a long list of supps which helped her sail into remission? Not sure. If you're here to sell something, you should be very very ashamed of your self (you certainly wouldn't be the first though) and should just go crawl back under the rock you came from.

Post Edited (killcolitis) : 1/6/2012 12:25:20 PM (GMT-7)

Posted 1/6/2012 5:54 PM (GMT 0)
killcolitis, great point: "In my experience, naturopathy is as much of a cash cow as the pharmaceuticals are and practitioners pray as much on the desperate."

I know several people on Dr. Shultz's regimen and wow, is it ever expensive!
Take your average overpriced health food store stuff and multipy by 1000%.

Big pharma, naturalpathy, snake oil =ALL designed for max profits.
Cash cow indeed!
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