anyone else's family drive you nuts??

my mom literally drives me insane. she's always known that i have an alternative medicine approach to healing. she's so against it and anything i have to say. i feel bad for her that she is so negative. i just don't know what to do. if i had enough money to move out, i would, but since i was so sick this year, i couldn't work the entire 2011 year. it totally sucks so now i'm trying to save up so i can get as far away from her as possible. she's upset that i don't want to be on my meds anymore, but i don't see the big deal. if i get sick again, i'll take meds again. does any of your family annoy you as much as my mom annoys me?

somedude, i was not on medications at all prior to 2011. that's when i was diagnosed with u.c. in jan 2011. i was on a lot of different medications but nothing worked until remicade. i just think that i am feeling fine now and don't wanna get so dependent on the immunosuppressants. she said that while i'm living in her house, i will take my meds. if i don't, i'm getting kicked out. it's just such a sucky living situation and i can't wait til i'm on my own. i just wish she would switch places with me to know how it feels.

bananagirl said...
somedude, i was not on medications at all prior to 2011. that's when i was diagnosed with u.c. in jan 2011. i was on a lot of different medications but nothing worked until remicade. i just think that i am feeling fine now and don't wanna get so dependent on the immunosuppressants. she said that while i'm living in her house, i will take my meds. if i don't, i'm getting kicked out. it's just such a sucky living situation and i can't wait til i'm on my own. i just wish she would switch places with me to know how it feels.

I understand how you feel, I don't know what to tell you, she is pretty adamant. How about you pretend to take your meds, does she watch you. You could come live with me....

Oh and by the way:

You didn't get colitis because you were deficient in these:

1 packet of VSL#3, 3000-5000 iu of Vit D, 1/2 tsp barley powder, 2-3 Tbsp slippery elm powder, Vit B-12, zinc.

And I doubt that those will revert your colitis. It will help in some ways, but I will never put faith in stuff like that, EVEN THOUGH I take most of those myself.

Tough situation. I agree with everything being said and also understand your point of view. Its your body you should be able to do what you want. I have a 19 year old who has been treated for depression and anxiety...once he hit 18 he didnt want to take his meds. I can't force them down his throat and he is legally an adult (whether he acts it or not) soooo I have bottles of pills that I paid tons of money for that he never took. I now refuse to pay for stuff for him. If altenative medicine keeps you healthy great...I'm all for it but try to understand that not everyone has the faith in it that you do and your her baby and she wants you to be well...nothing hurts more than seeing your child hurting and you can't do a darn thing to help them.

Let me share something w/you. When I was first diagnosed I was put on asacol only. I went into remission for 4 months. Flare came back. I was put on prednisone & 6mp. I went into remission and stayed in remission for over a year so I was like "**** these meds I don't need them anymore". Probably 6 months into my "no meds" remission I caught a nasty cold. This cold lasted almost a month then started going away at the same time I started getting pale looking and different symptoms from my past flares. I didn't even think it was uc comming back, but it was. The worst choice I ever made was stopping meds because going into the worst flare of my life with no meds was like a clear runway for uc to destroy me. I lost 30 lbs in a month and had pain that had me curled up in bed crying in pain. I went from diagnosed with mild/moderate uc to being diagnosed with sever uc in 2 years. Wondering if I would have stayed on my meds if I would've had that huge bad flare and had been diagnosed with a worse case of uc. You're already on remicade. You need to weigh your options very carefully. Not trying to scare you, just letting you know what happen to me when I quit my meds. How long have you been in remission from remicade? What has your gi said about you wanting to stop meds? I think you should stay on your meds for a while and then talk to your gi about tapering remicade an 6mp. Do you have bad side effects? Just enjoy your life if you're in remission and think about tapering later on down the road!

That stinks that you have to be around someone who is disrespectful about your ideas. I understand what you're saying, you don't know Remicade will continue to work and perhaps you will find something else that works for you. It's really your choice, it's your body and you're the one who will suffer the consequences if you flare up. She shouldn't belittle you, you're an adult and you're capable of making your own decisions. I have heard some people don't respond to Remicade if they stop it and restart it but I've seen some who do - it's not always an issue but it's something to keep in mind. There are also clinical trials, antibiotics, LDN and other treatments you may do well with. My mom is not "nice" either so I understand how frustrating it is when your mother makes you feel like crap. I live far away from my parents, it's nice because they aren't able to be overbearing.

Everyone seems to have a strong opinion about alternate treatments for UC. The bottom line is that you need to listen to your body and do what makes the most sense for you. Gather as much information as possible and be serious about your approach. There are a lot of voices out there that beat the drum for conventional treatments or alternate approaches, but since we're all different there is no single cure everyone. The golden key to health can be anything.

Although I know big pharma drugs have their place, my background and personal experiences have driven me to seek natural solutions for my UC. If you haven't been doing so already, you may want to develop specific plans for your alternate treatment approach and start tracking your progress. You will want to identify checkpoints along the way to determine if you need to add, change, or subtract herbs, foods, etc. Maintaining and improving our health is no place to take shortcuts. If you share your detailed plans and approach with your mother she may feel more comfortable with your desires for a natural cure.

I've learned the past several months that a good diet is critical and that inflammation is the enemy. The old-school G.I. specialist I was assigned told me flat out that I could eat whatever I wanted and there was no alternative protocol proven to help people like me. His recommendation was and continues to be 6MP. My response has always been "It ain't a-gonna happen". We can all go with the flow and trust the 'process', but if we don't improve it's nobody's funeral but our own. Information here on this forum clearly shows many people are improving after changing their diets and applying new, natural protocols.

Good luck and hang in there. One way or another we're all in the same boat and looking for a permanent solution to UC.

My cousin bothers me, so I understand what you mean. She thinks I have crohn's. She even told me to go tanning when I explained why I shouldn't be out in the sun while taking imuran, because I'm too 'pale'.

It's your body and illness, do with it what you will, without listening to anyone else.