May I join the club? :-D
For me it started after my last flare, when I tapered prednisone. My period has started just a few days after I took the last pill of predn and I was terrified I would go into full swing flare once again. Ugh, one really strong pain killer and I was up and running. Since then, either day before my period or the first day of it, is just an awful, always scaring experience
Strange, but I have been on contraceptive pills like forever. And this started after I took the round of prednisone (my first and olny one so far) and had had the break form pills the same time. Since then, I'm back on pills, different - yes, but the symptoms persist.... What a wonderful world