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Urgency issues

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Posted 2/1/2012 9:16 PM (GMT 0)
So I feel great, I have one to two bm's a day, they are a nice brown color about a foot long, fully formed, width is good and no blood since November 2011 (YAY! knock on wood).

I do notice that when I have to go, I have to go!!!!  I am usually around a bathroom anyway but I do travel for work and like to go on vacation so I will not always be.

I think now that I have such a volume of poop, it's harder for me to hold.  I don't like holding it b/c I think I will damage my rectum.

Any tips?

Posted 2/1/2012 9:49 PM (GMT 0)
Inflammation=urgency.
Have you used mesalamine retention enemas? I see you had some issue with Asacol but the enemas are not systemic and unless you are allergic to it should be a great benefit for urgency. It's usually the lowest area of the colon that is the last to heal and the hardest to heal through oral or intravenous meds.

You could try a steroid enema instead but try not to use it very long since I hear it can thin mucousal tissue which would be a bad thing.

Glad to hear you're doing better.
Posted 2/1/2012 9:53 PM (GMT 0)
Yeah I second the gardener, somewhere in your colon there is still inflammation. Probably in your rectum.

nice brown in color and a FOOT LONG?! that's one long sausage lol. I don't believe you. Next time, use a tape and come back with real numbers. ;)

Post Edited (Somedude) : 2/1/2012 2:57:58 PM (GMT-7)

Posted 2/1/2012 9:58 PM (GMT 0)
wow, 2x daily at 1 ft long? I think a low-residue diet might help. That is too much stool.

Post Edited (DBwithUC) : 2/2/2012 9:10:57 AM (GMT-7)

Posted 2/1/2012 10:02 PM (GMT 0)

DBwithUC said...
wow, 2x daly at 1 ft long? I think a low-residue diet might help. That is too much stool.

Must have felt good when all that came out... OoooooOOOOOooo....I feel like a new person... hahaha
Posted 2/1/2012 10:28 PM (GMT 0)
Somedude, you are hilarious !!

Actually, I am also looking for same tips. I don't get the 'signal' but when I get it, its like 911, run baby run, SOS.
Posted 2/1/2012 10:34 PM (GMT 0)

deltaforce said...
Somedude, you are hilarious !!

Actually, I am also looking for same tips. I don't get the 'signal' but when I get it, its like 911, run baby run, SOS.

Sorry to hijack ..I notice you take imuran 200mg.. how much you weigh?!?! That's one heavy dose. Your immune is ZzzzZZZZZZzzz' ing all day...nighty night lol
Posted 2/1/2012 10:37 PM (GMT 0)
Beth, I was just thinking about you, good to see you around.

I agree with the others that 2 foot long stools is a lot in a day but as long as they are firm and normal, it's probably not too much of a problem. How long have you been on Remicade? Have you always had the urgency? It may just be that you need to give yourself more time to fully heal. I notice that I have to go when I have to go too, even though I've been in remission for quite some time. I don't know if it's that it's urgent or if perhaps, I just like to go when I feel the urge.
Posted 2/1/2012 10:50 PM (GMT 0)

notsosicklygirl said...
Beth, I was just thinking about you, good to see you around.

I agree with the others that 2 foot long stools is a lot in a day but as long as they are firm and normal, it's probably not too much of a problem. How long have you been on Remicade? Have you always had the urgency? It may just be that you need to give yourself more time to fully heal. I notice that I have to go when I have to go too, even though I've been in remission for quite some time. I don't know if it's that it's urgent or if perhaps, I just like to go when I feel the urge.

If I remember correctly, when I was pre-uc, I could hold it up to 30min. If you can't hold it more than 5 minutes, I think stuff is still messed up in there.
Posted 2/2/2012 2:52 AM (GMT 0)
a good breakfast glass of rice milk and some healthy home made mueseli of organic: puffed buckwheat, puffed millet, rolled oats these 3 are the base of the mueseli then add some goji berries(no other dried fruit), sunflower seeds, spiced pumpkin seeds, LSA, Almond meal, Quinoa flakes or seeds, chia seeds(For Energy). The add some fress fruit 5/6 blueberries and 4/5 cut up strawberries or a banana, or seedless grapes pour on some Rice Milk Dairy Free, and you will have a healthy breakfast that will help keep you regular may even go more of a morning before work once your body gets into a routine and clear out the poop. But this is a gentle, healthy way. The first three aree very important and the goji berries are really good for you I add the rest for flavour, body, texture I have tried a few different ways but this is really good. I tried some of the brought ones heaps too expensive and always have something that upsets my UC. My naturopath put me onto the first three I then added the extr a little bit at a time till I got it right. It is a light breakfast easy to digest, my naturopath said stay away from shop mueseli and especially corn flakes, bran any gluten products when you have UC
Posted 2/2/2012 3:07 AM (GMT 0)
Pre-UC, I could hold it all day. Now, I don't desire to hold it very long. I think I could but why bother if I am close to a toilet? I used to hold it because I was at school and I don't like using public toilets. I can definitely hold it for a while right now but urgency can creep up at any time. I don't try to hold it if I don't have to.
Posted 2/2/2012 3:27 AM (GMT 0)
Probably you can improve that thru portion control and keeping another food diary for a while. Being in remission doesn't necessarily mean that we function as good as new-- so there might still be some needed adjustments in concession to that reality. / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 2/2/2012 5:22 AM (GMT 0)
That's my biggest issue too, holding it in...I too have formed and fairly nice sized stools, still have some frequency but the holding it in (or lack of being able to) is what's really pissing me off...especially after 21 yrs every day straight....it sucks!
Posted 2/2/2012 12:49 PM (GMT 0)
    Beth...oh do I ever remember those urgency issues rolleyes !  Not fun.  At least I  didn't have to get out in the mornings and go to work.  I had a portapot, four altogether, stationed in different rooms of the house because I could not make it to the bathroom....and we have a ranch type house.    Maybe you could try a bit of Immodium?  Just a suggestion.
Posted 2/2/2012 2:03 PM (GMT 0)
Hi - so glad to hear that you are feeling good and having healthy poops!  AHHHH - power of a healthy poop!

I just wanted to add that some people (i think me included) have IBS in addition to IBD.  That could be a factor with urgency.  Maybe paying attention to what you eat prior to the urgent moments might help?

Anyway - sounds like you are feeling great and I am so happy for you!

Posted 2/2/2012 2:39 PM (GMT 0)
Beth 75, 2 x 1ft long poohs/day???? Maybe the water in the bowl is magnifying them, in any case photographic evidence is required.
Ok, "Game On!", let's see who can do better.
Posted 2/2/2012 3:05 PM (GMT 0)
I should clarify, when I go once a day it is about a foot long or maybe the toilet bowl makes it look that way (I think of the subway commercial, "$5 dollar foot long" usually pops in my head. When I go twice a day it is about 6 inches or less each time. It does feel really good! I was wondering if I should do rectum kegels or something (kind of joking about that ; )

Thanks all for the good advice. I think my colon is still healing. When I had a flex sig in Dec the GI said that there was some slight inflammation in my rectum, but I am doing even better than I was then.

Unfortunately I can't take any mesalamine's, my kidneys don't like them, though my colon did. I am doing better and better so I don't want any steriod's, I am trying to take the least amount of drugs as possible, though if I were to get worse I would prob have to.
Posted 2/2/2012 3:08 PM (GMT 0)
And now I will never think about Subway again. lol. ;)

I'm jealous of your poops. Mine are almost always really thin since getting UC. I think I have some scarring in my colon that makes them that way because I eat a ton of fruits and veggies and it makes no difference. I miss my pre-UC poops.
Posted 2/2/2012 5:35 PM (GMT 0)
I was thinking the exact same thing about Subway. Now whenever I see or hear that commercial and the little jingle, I'll be thinking of Beth's foot long poops.
Posted 2/2/2012 5:47 PM (GMT 0)
LOL, I am thankful I've never liked Subway.
Posted 2/2/2012 6:04 PM (GMT 0)

notsosicklygirl said...
LOL, I am thankful I've never liked Subway.

 

How can you not like Subway...Subway is the best alternative to fast food or food on the go.

There's healthy stuff there.

Posted 2/2/2012 6:22 PM (GMT 0)
I live in a city and we have delis that have sandwiches with higher quality meats and cheeses. I don't like the bread at subway either.

lol, the idea of passing a subway sub is making my fissure hurt.

this is a good sandwich shop:
http://mendocinofarms.com/

Look at the options there vs. Subway.
Posted 2/2/2012 6:30 PM (GMT 0)

Somedude said...

deltaforce said...
Somedude, you are hilarious !!

Actually, I am also looking for same tips. I don't get the 'signal' but when I get it, its like 911, run baby run, SOS.

Sorry to hijack ..I notice you take imuran 200mg.. how much you weigh?!?! That's one heavy dose. Your immune is ZzzzZZZZZZzzz' ing all day...nighty night lol

I weigh 176lbs (~25lbs of water from previous Pred courses). I am in flare for more than a month (christmas gift) due to NSAID+Azithromycin combination and 30mg Pred, which is my regular dose, wouldn't help. I can not change it to long acting oral mesalamine due to no Rx coverage so GI asked me to up Imuran to 200mg. I think its pretty ok dose. I was 150mg before.

@ Beth75,
to that Subway analogy, you really made my only fastfood difficult. Thats the only one that fits my taste and cost bill when I am not at home. Now everytime, I go to subway and order footlong veggie patty I am going to recall this thread, else have to settle with $1 pizza slice...

Hope you get well with urgency. Someone suggested Imodium but I honestly don't think it as a solution, once in a while that should do the job but getting rid of or controlling the baseline inflammation is necessary to get rid of urgency. If I noticed correctly, thats the last symptom you get rid of when you recover from inflammation. Pls correct me if I am wrong.
Posted 2/2/2012 8:45 PM (GMT 0)
sorry I should have put a disclaimer in about subway....

I have taken kaopectate when I travel or when I get my stress stomach (2x per year) and it helps me hold it but then it is even worse when I have to go, my colon is like a loaded weapon
Posted 2/2/2012 8:55 PM (GMT 0)

notsosicklygirl said...
I live in a city and we have delis that have sandwiches with higher quality meats and cheeses. I don't like the bread at subway either.

lol, the idea of passing a subway sub is making my fissure hurt.

this is a good sandwich shop:
http://mendocinofarms.com/

Look at the options there vs. Subway.

 

you live in Cali thats where the deli is, I'd like to try it but I'm in Canada and on east side lol.

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