Alternative Treatments

ItsAlwaysSomething said...
I was not aware that any fully qualified doctors contributed comments to this forum.
Please correct me if I'm wrong.

I used to look forward to logging in to HW to see what Napacabs had posted. He was an orthopedic surgeon who controlled his UC with the SCD and VSL#3DS after finally giving up with Remicade. His posts were very knowledgeable and inspiring.
www.healingwell.com/community/default.aspx?f=38&m=2187895

I believe most supplements irritate the colon. You should try vitamin (IV’s) or transdermal creams. Lee Silby http://www.leesilsby.com/crohn.php
(it’s a compounding pharmacy) makes transdermal vitamins for people with crohn’s and UC. Try and eliminating the supplements you are taking for about 3 months and see how you feel. When I stopped taking supplements my UC improved.

I also see you are taking levothyroxine. You should read the following studies published in medical journals below about the gut and the thyroid. They state the thyroid hormone specifically T3 (triiodothyronine) is responsible for gut mucosal growth, barrier function and causes mucosal hyperplasia (hyperplasia: increase in number of cells) etc… There was another article which unfortunately I can not find or cite an article that stated T3 (triiodothyronine) caused intestinal cells to replicate 3 times faster.

I tried (T4) levothyroxine as levoxyl it helped my UC but when I incorporated the right amount of T3 (triiodothyronine) within 3 months I practically had no symptoms if any of UC.
Through experimentation and research I found that 5% of T3 from the amount prescribed of T4 levothyroxine was the correct amount the body required. But your levothyroxine would have to be reduced by 5 or 10 mcg. Armour thyroid (natural dessicated thyroid) has too much T3 if taken solely for thyroid replacement.
http://www.power-surge.com/educate/hypothyroidism.htm
Let me know if you want more information on this. And most important do not eat gluten, dairy products and coffee they reduce the amount of thyroid hormone that go into the cells. Your allergies could be caused by your thyroid medication not being optimized. I had allergies, sinusitis, wheezing, etc.

http://www.surgjournal.com/article/S0039-6060%2896%2980280-7/abstract

Thyroid hormone (T3) is an important regulator of gut mucosal growth, differentiation, and barrier function, but its mechanism of action in the gastrointestinal tract is largely unknown. The present studies were carried out to define the molecular mechanisms by which T3 alters gut gene expression.

http://www.sciencedirect.com/science/article/pii/0022480486901204

The effects of thyroid hormones on the formation of stress ulcers in
the rat.

http://books.google.com/books?id=A3_Ji7vbQ-0C&pg=PA565&lpg=PA565&dq=thyroid+intestinal+mucosa&source=bl&ots=rz876oC_FC&sig=j5Y-Ubcmov28-JQ_ggHL09TaE6k&hl=en&sa=X&ei=wOUPT8alNLDC0AGZxM2sAw&ved=0CCcQ6AEwAA#v=onepage&q=thyroid%20intestinal%20mucosa&f=false

“Effect on small intestinal mucosal morphology and function: hypothyroidism causes atrophy whereas thyroid hormone administration leads mucosal hyperplasia (hyperplasia: increase in number of cells) throughout the small intestine. Thyroid hormone induces crypt mitoses, resulting in significant increase in total mucosal thickness.

Hi have you ever tried alterative naturopath and diet, if not it is really worth a try.  I live in Australia and will give you the email address of my Naturopath if you like and you would have to give her all your information about what medication you are on, info from your last colonoscopy, bloods, if had urine sample etc.  Where you get your aches and pains, how many bm how much mucous all the juicy stuff.  I have never been to see her and it took a few weeks for her to study and look at the best means of tackling UC but she sent me a diet.  In the diet she says avoid but means dont eat and it took me 7 weeks and I no longer need medication at all.  It may not work for you but my colon was really bad, I stayed at home, it was really difficult with 3 young children.  Could not butter their toast of a morning without rushing to the toilet a few times and of couse throwing the toast out because it was cold.  If you email:  Janelle Camuglia [[email protected]] please let her know Annette recommended you.  Maybe she can help you even if she can recomend the right things to go to a naturopath near you to get perscriptions for to try.  The first 7 weeks were the hardest, and my medication was not working, so 3 weeks in I stopped taking my medication.  I am still on the diet but now only on a maintenace type regime of supplements.  I dont actually take phrobiotics anymore, I am pretty sure the Trenev Trio that had to be refridgerated even in the post it came in an ice pack to keep it cool.  If you can avoid surgery it gives you more options for the future as it wil always still be there. 
I am in remission thanks to the naturopath, it does not work for everyone as I have read that on here many times but the possibilty that it may work, and I never thought I would be here now considering Set 2010 I was at my wits end, the meds did not work I may as well have flushed them down the toilet.  LOL I probably did. but now I have my life back, the weight I put on from Pred has gone.  Once again this is just my experience and road to recovery and I hope it helps you make a choice.  But whatever you choose give it time to take effect if you choose a diet based way dont cheat but keep notes if you experience extra bm to have a record of what does and doesnot work.  Good Luck I hope you find remission whatever your choice.

mum of 3 

-BabeintheWoods

I would not recommend taking thyroid medication if you do not have a thyroid condition. Actually, it might cause hyperthyroidism or an excess of thyroid hormone in your system which causes colitis in some healthy individuals. And also bulging eyes that can not be fixed.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0003524/

I believe that my UC could not be managed because of my undiagnosed thyroid condition. According to the articles above the thyroid has a role to play with intestinal health, so, it would not be a bad idea to have a doctor check for thyroid antibodies and measure the amount of thyroid hormone in the blood. My purpose of writing the above posting and several other postings was to raise awareness that if someone has unmanageable UC the thyroid should be another place to check. Especially if one feels tired or exhausted all the time.

Post Edited (deepblue sea) : 2/6/2012 9:48:01 PM (GMT-7)

BabeintheWoods said...
Some of us favor conventional pharmaceuticals, others of us want to emphasize alternative medicine. One thing that we all have in common is that we recommend probiotics.

Probiotics did nothing for me except drain my pocketbook. Maybe if I could afford VSL3 they would work. Worth a shot though...

how bad is your UC i had UC for 6 1/2 years and recently got a jpouch NEVER FELT BETTER !!!!!
if its ad and your wondering what to do get the jpouch sadly i diddnt think twice i told the doctor i wanted surgery i figured it would be like a boob job i was wrong but im just as happy i got it !!!!!! i greatly only had a 2 step so i think it's wise to get it before your having a bad flare up because i hear a lotof people saying with a 3 step surgery the 2nd one is tough but it also depends on your age and activity level. if you get it i strongly sugest yoga about 1 or 2 months before surgery if possible because i was able to recover quicker than most the avg. recovery is 1 month i took 2 1/2 weeks. but i also had a ostomy bag and for a while and didnt want to get rid of it thankfully i had a life changing moment and was able to proced with the last surgery. if you have any questions i would love to help im ususally not on this forum so my email is ..... [email protected]
i wish you the best of luck with your dessicion.
you can also look at my website wchich is ...... www.myostomyconfidence.webs.com

If anything gives you a rash or discomfort you should not take it, I had trouble if I tried to take vitamins it made my uc worse yet the diet and the rejuvenx, boswellia and the other things the naturopath origionally put me on somehow amazingly worked I dont know how. I hope what every you give a try you give it at least 2 to 3 monthes to show some type of change good luck I look forward to hearing how you get on.

mum of 3