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Pain...wondering if it is related to Prednisone taper?

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Ulcerative Colitis
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Posted 2/20/2012 9:10 PM (GMT 0)
I had been on 40mg of Prednisone for a while and the doctor had me taper to 30mg a little over a week ago. I seemed to be doing fine on the taper with no returning symptoms. But a few days ago, I began to have that soreness in my intestines from the ulcers. I hadn't had this pain for quite a while. I am wondering if anyone knows if the returning pain is because of the tapering? I have also been trying to do a little more work (just got out of the hospital almost three weeks ago), so I was wondering if the increased activity could be a factor? I find that when I sit down for a while and rest, the pain nearly or completely goes away. When I am up and moving, it increases.

Anyone have an similar experiences?
Posted 2/20/2012 10:51 PM (GMT 0)
Welcome to HW. Is the pain GI related? Do you have other symptoms of UC? I had pain when I was tapering off prednisone but it was in my joints. I didn't have any GI pain until I was close to tapering off and I had a relapse of my UC. At that point, I had to go back up to 40mg and start the taper over. Of course, this probably isn't the case for you, especially if you're not experiencing any other symptoms of UC.
Posted 2/20/2012 11:09 PM (GMT 0)
Yes, I was diagnosed with fulminant UC, but after many treatments my symptoms have begun to slowly diminish. This pain I am having is in my intestines where it is ulcerated the worst. I do have other symptoms such as bleeding, etc., but like I said they are not severe like they were thanks to the treatments and a lot of prayers.
Posted 2/20/2012 11:42 PM (GMT 0)
In my prednisone taper I too began to get pains in my colon when I got to 30 mg. I noticed when I was in remission on 40 mg I could tolerate coffee but when I got down to 30 mg there was pain every time I drank it. When i stopped drinking it the pain didnt come back. This disease is quite weird.. Now when I have coffee on 20 mg I never get that pain but I do get urgency. Have you made dietary changes to better your symptoms throughout your taper or are you not making restrictions? I noticed that I could be a little less restricting on 40 mg but once I dropped my dose I was a lot more sensitive.
Posted 2/21/2012 8:34 PM (GMT 0)
Yes, I have changed my diet completely...almost entirely gluten-free, raw fruits and vegetables bother me, very little sugar, no caffeine, no dairy, etc. What you said makes sense, maybe I should try eliminating something I am eating now and see if it might be be bothering me.
Posted 2/21/2012 8:53 PM (GMT 0)
Maybe. In my experience, I've had to taper slower than 10mg at a time. When I did, I experienced what you're talking about. But when I decrease by 5 mg each week, I seem to do better with the intestinal discomfort recurring....You might discuss it with your doctor or nurse!
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