Can you help me stay positive?

I'm sorry about all thats going on right now Thoreau, but what dietary adjustments have you made? It could be a possibility that something you're consuming on the daily is really feeding into the disease.

Thank you for your replies.

Stereo: I've eliminated all refined sugars. I don't do milk, or much of any dairy except cheeses. I stay away from most processed foods. I did eat a decent amount of store-bought plain (sugar free) yogurt a few days ago, and it most certainly made things worse. I was really wanting to put on some weight, so I tried it. I hoped I could handle it, but it wasn't the case.

ByeByeUC: Thanks. I'm doing what I can to be positive, heal myself, and still have a life. It's a juggling act, for sure. I am really glad your j-pouch makes you so happy (from looking at your signature). I'm personally not ready for that yet, but it's in the back of my mind... that possibility.

Thoreau said...
I want to believe that I can heal, and save my colon.

You said it yourself. Look man, the body is a slave to the mind. It's a car your brain is driving and when the whip needs fixin the mind has to tell the mechanic what to do. Even though he's great at what he does, he's an idiot without the blueprints. Its up to you to concentrate hard enough and manufacture the schematic. You already have the correct mindset bro, now put it in action. Get mad, sad, laugh, whatever you need to do. Do it.

Wanna know what has healed me the most in my 17 yr ride on this monster's back? Not drugs, herbs, clever diets, or funky things they wanna put up my butt whether I'm asleep or not.. It's LOVE. Love for YOURSELF, self-preservation in all it's finest glory paL! Once you love yourself enough to survive.. start loving others just as much. Trust me it will catch on and others will begin to love you back. Now you got yourself a bundle of sticks. Try breaking those compared to just one.

This UC beast has tried to whack me 3 times already. I've even felt what it feels like to die. Kinda freaky but I'm still here, and every time I wake up to another day I tighten the saddle on this mofo and yell giddyup. I wasn't born a prince.. I'm a King by choice. If UC is to be my horse then I'm going to ride off into some form of porcelain sunset of MY creation, not this disease's.

Write your quote down and stick that badboy in your wallet. This is an excellent forum packed with many many caring and knowledgeable members willing to help you as much as they can, for free. I wish I could say the same about some of the GI docs I've been to.

Peace and Love

Notsosicklygirl: I feel tired of constantly putting effort into this condition. However, I in general have a really great attitude, that doesn't always get portrayed well on here. I'm a fighter, and most of the time can't help but make my friends and family laugh just being who I am.

I've tried 6mp; was actually on it for 5 or 6 years. It wasn't effecting me strongly enough, but would have hurt my liver if it the dosage had been raised more.

I will remain resilient, but at times will be emotionally down because of this illness. It's better to vent, talk things through, and find strength than to hold it all in. That's why I might sound defeated on here... because this is where I vent.

Thank you for your concern. You are always looking out for me, and it's great. Much appreciated!!

Can you combine a low dose of 6mp with allopurinol to lower the toxicity to your liver? That's what I did when I started 6mp.

Your mindset isn't making you sick. You're not making yourself sick, and already you're most positive and realistic.

I...personally. would have surgery and move forward with life, for it would probably have to happen eventually.

q

hello i would like to add an experiment that if you feel stronger soon maybe you could try

it worked for me though it might not work for all

perhaps you could try a month of totally resting your colon

eat nothing but porridge (mixed with water, not milk - and no sugar or fruit just plain porridge and water)

vitamin supplements (iron, vitamin B in berocca fizzy tablets, cod liver oil, calcium)

drink nothing but water. no alcohol. no fruit juice. no milk no cheese no dairy

take an anti-thrush tablet, to nuke any candida albicans in your gut

take as many different brands and types of probiotics as you can - the refrigerated ones with lots of bugs. plus yakult fermented milk drink

twice a day

after about a week of nothing but porridge, water, vitamins and probiotics

you could graduate to include tinned soup for dinner. but very bland non-acidic types... without dairy or cream.

for example, pea and ham soup

but just eat that nothing more for a whole moth. yes it's not ideal for a balanced diet but it rests your colon

and while doing that, if you can take time off work, rest for a month

lie in bed.

sleep and do nothing

read a book

clean nothing do no chores. just rest

rest your body and your colon

it may help who knows

it got me out of it - diagnosed in 2009 but never had to take medication after trying this.

cheers and good luck
and while

I am going to give you some bad advice but it is what I am currently doing. I stopped the remicade, I stopped the prednisone I started doing at home hemacult tests that I mail to my gi doctor and basically quit. I treat my pain with the drugs from the doctor, I have been diagnosed and suffering since I was young. I am 30. I am done completely with surgery recommendations, going to the hospital, taking dangerous new drugs, and dealing with the side effects. I am sticking only to the sulfa drugs when needed and tons of iron pills when needed (I just ended a 97 day flare this morning). I take huge amounts of vitamin b, d, and fish and coconut oils. I basically am done listening to my gi doctor and have gone back to my regular doc. I complete;y understand your frustration. they prescribe all of the surgeries and treatments like they will somehow change our lives and at the end the dissapointment is sometimes more than I can handle. I am actually doing better treating my disease with my general practitioner than with the gi doc and other specialists. My gp knows me better and I have a great deal more respect for him. with all of the other treatments I was still in a flare for over 3 years with no end. doing this on my own I have been able to calm the storm. I know when to go to the hospital for dehydration and mineral deficiencies since I am allowed to test at home. I had to sign releases in order to do this but it has made me feel more in control of the disease. all of my advice may be bad for others but you know what? we all have so little control of what this disease has done to us that it feels empowering to even get a small measure of control back. God bless you I hope you can find a solution for your methods of treatment and find some relief

Ehhhhhhhh. I can agree with both sides, on one hand, you could be suffering from an auto immune disorder for any number of reasons that may or may not be preventable.

HOWEVER, the pattern of my condition has led me to believe my colitis is due to pure stress. Stress can kill you, it killed my grandpa with heart disease because he held everything in.

I was in my first real rocky relationship in 2009 when I first started getting alot of symptoms (no blood at the time, no pain).

In 2011 I was diagnosed, (tons of pain and blood) and happened right after a big conflict with friends and a relationship left me stress and alone.

So you never know. It takes time to repair damage, but usually you just have to walk away from it and really let it go and realize acceptance so you can move on from things, and not harbor a disease in yourself.