Fecal Transplant Log Part II

@banana girl - i had my FT with a doctor in ROchester, NY - its documented here in a thread called Fecal Transplant via colonoscopy.

I resent it to your new email.
Let me know if you get it.

Today's update;
No blood, ate more cashew nuts again yesterday which makes my stool really soft. Even if there was a tiny amount of blood somewhere in there, there is no way I could see it with the stool being this soft. It does kind of feel like softer stool seems to make healing easier for my colon, not sure why maybe just the fact that I always seen no or basically no blood when having softer stools. Maybe it's just a psychological effect. I am not intending to stop munching cashews tho because they are definately not making me worse.

Got another little obstacle that came up yesterday; our 1 year old baby just got sick from stomach flu (picked it up at kindergarten where it's spreading at the mo) so not sure how I will manage the FTs at this stage or if it's even a good idea while we have flu floating around in our house.

EATING: According to SCD but not eating yoghurt. Omega 3 supplements from krill
DRINKING: Green tea, chamomile tea with honey. Coffee in the morning
SYMPTOMS: 1 BM/24h, no/tiniest traces of blood, no urgency, no discomfort, no mucus
MEDICATION: 10 mg prednisone (been eating for 43 days now, tapering down), Asacol
WEIGHT: stable around 73 kg (I'm male, 1.74m tall)
DAY SINCE STARTED FT: 32, performed 27 so far

Post Edited (curl3d) : 3/30/2012 10:53:19 AM (GMT-6)

Hi johnscott,
Frankly I dont think they make much more difference but I really don't know. I'm pretty sure they are not making it worse tho so it feels like its worth trying. I think the only risk I'm taking right now is from irritating the colon by inserting the enema.

IMO:

FT will almost never stop UC in its tracks (immediately) and without other adjunctive meds. Once remission is achieved, I think you'll be able to wean of most/all meds and onto a healthier protocol. Cdiff is one exception to this, and seems to be a "miracle cure" without any further therapy.

I think in general...trying to achieve UC remission is the hardest battle, as the colon needs to heal and start functioning properly again. FT seems to be extremely effective restoring gut flora balance and helping in that quest. However, other meds may be needed along the journey to get there. I do believe that once gut flora is restored, you'll be much more successful with your remission battle.

Again there are variables that affect the FT success rate: Donor compatibility, subcategory of UC, protocol, etc. I think subcategory will prove to really divide our UC group in the future.

BTW, my son has strep again. He has been continually getting strep throat since being on Remi. Subsequently, he's had to go on abx several times since his FT protocol began. However, his new flora has hung on and battled through it just fine. We did use S. Boulardii and home made yogurt during the abx. Anyway, I think this proves that FT can recolonize a new host. FYI: We will be meeting with an ENT to plan a tonsilectomy.

guess what; now I've got stomach flu :-P Was kind of expecting this. Waiting for puking to calm down so I can eat my daily prednisone pill

We all got it now unfortunately, I've been vomiting 10 or so times since 5am this morning but it seems to be calming down now, drinking some water and dreaming about a smoothie.

Have had diarrea too from the flu but not too worried about the effects on my colon. In worst case I'll have to do a few more weeks of ft once we are out of this flu. I didn't have any blood whatsoever today. Tried to take a pentasa earlier but my body wasnt very impressed by that as it was trying to empty my bowel.

Allswell,

Our timeline is a one year remission with status quo...then start the Remi wean. The wean itself may take a year as we will keep pushing the infusion back a week while watching closely for UC symptoms.  

We'll have to try and fit a tonsilectomy into the schedule as well.  Don't know if there is ANY correlation between his strep and the Remi, FT, etc.?   Could be totally random and bad luck, but after 5 strep throat infections in one year, I don't want to wait anymore.       

Sorry to hear about your struggles. It seems most people who use FT for remission, were on other meds concurrently...However, many of those people were able to wean themselves off the meds afterwards.

Post Edited (trojen) : 4/2/2012 5:15:25 AM (GMT-6)

Today's update;

1 day post stomach flu. Feeling better today. Kind of tender around my stomach from all the vomiting. Had diarrea yesterday from the flu but have not been to the toilet today. Couldn't see any blood when having diarrea.

Had a smoothie for breakfast and it tasted fantastic. I think I'll have another one in a while. Planning on taking asacol together with my lunch (didn't take any yesterday as I didn't eat anything) and possibly a pentasa later today.

EATING: According to SCD but not eating yoghurt. Mackerel as part of my lunch for omega3
DRINKING: Green tea, chamomile tea with honey. Coffee in the morning
SYMPTOMS: 1 BM/24h, no/tiniest traces of blood, no urgency, no discomfort, no mucus
MEDICATION: 5 mg prednisone (been eating for 47 days now, tapering down), Asacol
WEIGHT: stable around 73 kg (I'm male, 1.74m tall)
DAY SINCE STARTED FT: 36, performed 27 so far

Post Edited (curl3d) : 4/2/2012 12:28:44 PM (GMT-6)

Thanks Trojen, my daughter had a regular bowel movement, so I might try again. Sorry if I asked you that question before, there are so many things on here , it is hard to find old ones.

Just bumping my thread; no change in symptoms. Have not done any more FT's. Will lower to 0 prednisone in two days. Happy easter holidays!

Today's update;
No change in symptoms. Not eating prednisone from today. Hope I won't be too grumpy in the next 24-48h.

EATING: According to SCD but not eating yoghurt.
DRINKING: Green tea, chamomile tea with honey. Coffee in the morning
SYMPTOMS: 1 BM/24h, no blood, no urgency, no discomfort, no mucus
MEDICATION: Asacol
WEIGHT: stable around 72 kg (I'm male, 1.74m tall)
DAY SINCE STARTED FT: 41, performed 27 so far