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G.I. gave me a script for LDN

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Ulcerative Colitis
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Posted 3/29/2012 12:43 AM (GMT 0)
Saw my G.I. today and asked him to write me a script for LDN. He whipped out his script pad and asked me how I wanted it written. He told me he has one other patient taking it and it's helping that person. I really like my G.I. I like that he makes my care a team effort from both of us. I'm really hoping this is what I need to get into remission.
Posted 3/29/2012 1:19 AM (GMT 0)
That's great new Luv.
Do you know which one he gave you - with which filler if oral or transdermal LDN?
Posted 3/29/2012 1:38 AM (GMT 0)
I saw my GI today and asked about LDN today and he said that he would write me a script but none of his patients have had success with it. His attitude seemed quite negative about it but I didn't know exactly what to ask for. I ended up leaving without the prescription but I want to learn more about it.

Can oral LDN be taken in conjunction with prednisone or 6mp?

Is transdermal better than the oral dose with a filler?

What should I ask for next time?
Posted 3/29/2012 1:43 AM (GMT 0)
I asked him to write it for transdermal 1.5 mg for two weeks, 3.0 mg for 2 weeks and 4.5 mg thereafter. I was going to take in the PA study to show him but I forgot and it turns out I didn't need it. I had contacted Crystal and was set to do a phone consult if he said no. I'm really glad I didn't have to spend the money for one.
Posted 3/29/2012 1:43 AM (GMT 0)
Filler should not be an issue with oral LDN if you ask for something innocuous as filler- eg vegetable cellulose in a gelatin capsule. My 4.5 mg LDN capsules are tiny in comparison to the many supplement capsules that I take in daily, and cause no side effects. It is absorbed in the stomach and small intestine, so if you have UC it will long be in your blood before it ever reaches the colon, anyway.

Post Edited (Probiotic) : 3/28/2012 7:46:45 PM (GMT-6)

Posted 3/29/2012 1:47 AM (GMT 0)
I'm waiting for my transdermal LDN to arrive but it's great GIs are starting to hear to about it.
Posted 3/29/2012 1:55 AM (GMT 0)

ManhattanMama said...
Can oral LDN be taken in conjunction with prednisone or 6mp?

According to the info Crystal sent me, LDN should not be taken with either of those. I'd call Skip's Pharmacy and ask them.
Posted 3/29/2012 3:11 AM (GMT 0)
MnahattanMama -
I am on LDN and both Prednisone and 6MP.
Posted 3/29/2012 12:01 PM (GMT 0)
There is no problem taking LDN together with 6mp.

Many on this very forum started out taking one of the biologics, and added LDN to their meds, and thereafter were able to wean themselves off the biologics and stay on the LDN - in remission -  and doing great.

As far as fillers, some can be an issue for  people, these are: lactose, avicel, slow release. And that's the reason I always recommend getting the hypoallergenic filler which is sucrose.

As far as whether oral vs. transdermal and which is more effective, this is very individualized. Some of us do great on oral LDN, and others of us who have absorption issues need the transdermal LDN.

I am happy to hear more doctors are open to prescribing LDN.

That's good news.

Posted 3/29/2012 1:22 PM (GMT 0)

This is very good news that GI's are starting to consider LDN for treatment.  I'm going to contact my group here in Minneapolis, MN to see if they are perscribing it.  I had to go to another physician to get the script.  It does take LDN awhile to work....patience will pay off.  Knowing what to eat and probiotics to get the good bacteria in the gut to aid with the digestion is also a key for improvement.

Thank you for sharing....

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