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What do you like about having UC?

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Posted 5/4/2012 5:19 PM (GMT 0)
Someone asked me this and my first thought was "NOTHING!!!! UC has taken my health and life away from me!!!!"

But then, I thought of something.

Since I can't work or go out, I get to watch as much tv as I want, read all day, lay outside in the sun, and take long baths.

What about you?
Posted 5/4/2012 5:30 PM (GMT 0)
Bananagirl: This is a joke right. Nothing Nothing Nothing. And when I really think about it.
I come up with NOTHING!!!!
I think we are the sampe page with diet, you might want to cut out the soy,if you eat processed soy

foods check the package for veggie oils,and methyl cellulose,also check the fat content,and

eliminate all linoleic acid.
Old Mike

Post Edited (Old Mike) : 5/4/2012 11:41:51 AM (GMT-6)

Posted 5/4/2012 5:40 PM (GMT 0)
haha old mike, i was just trying to think of the positive side.

also, i had cut out soy for 3 years and it didn't make a difference at all. the only soy i've been using is bragg's liquid aminos for flavor.
Posted 5/4/2012 5:44 PM (GMT 0)
How about....a good excuse when I don't want to go to the in-laws?
Posted 5/4/2012 5:45 PM (GMT 0)
Well if you are going to do FT you still must have some UC.
I dont see fish oil on your diet,how about nuts,if nuts many contain high levels of linoleic acid.
It looks like you are low linoleic and arachidonic acid,but your fat stores still might contain quite a bit.
Fish oil might tip the balance.
Old Mike
Posted 5/4/2012 5:46 PM (GMT 0)
Not one #*^!$@# *#^@%&^$ #@ #$(*&@ thing!
Posted 5/4/2012 6:06 PM (GMT 0)
old mike, let's just say that diet doesn't affect my UC. i am starting FT tomorrow because my UC is horrible right now. i am hoping it will put me into remission.
Posted 5/4/2012 6:11 PM (GMT 0)
Right now, at 4:00am (up for the fifth time tonight), absolutely nothing. I wouldn't wish this disease on my worst enemy.

That said, and in keeping with the spirit of the thread, UC has taught me not to take my health for granted. Between flares I try to be as fit and healthy as possible so I can pick myself up again when I'm knocked down.
Posted 5/4/2012 6:11 PM (GMT 0)
Nothing, honestly. If I had to pick a disease to have, I'd pick UC over quite a few others, but that doesn't mean I like anything about having it.
Posted 5/4/2012 6:27 PM (GMT 0)
The only thing I like about UC is that it taught me patience, compassion, empathy and resilience.....other than that NOTHING!!! Lol
Posted 5/4/2012 6:31 PM (GMT 0)
not a dang thing - but i do thank my almighty God that i have a life - one that is a challenge, but still very liveable - so MANY, MANY, MANY people have lives that i can't even begin to imagine - i am very blessed -

would i be rid of this thing if i had a choice - absolutely ! but it, along with my 6 year old son who suffered severe brain damage when he was born, have given me a kind of forgiveness and understanding that i would have never experienced otherwise -

Lonnie

Post Edited (soystud) : 5/4/2012 12:36:58 PM (GMT-6)

Posted 5/4/2012 6:32 PM (GMT 0)
Grossing people out when I have my poop talk.
Posted 5/4/2012 6:34 PM (GMT 0)
I would say what Red_34 said, especially compassion, compassion for others. And that when I'm in remission one day, I will smell that rose I was told about so many years ago and go out and do all that I want to do, like run outside.

I agree other than that above, this dis-ease is not right! But when I asked GOD to look me over and if he sees anything that needed to be fixed in me, spirtually, mentally or PHYSICALLY he took me for my word. He erupted my whole body, to put it back again at a 120% I'm 80% now. Remission would be 100% and running outside, traveling, driving my car carefree, would be %120!

Posted 5/4/2012 6:36 PM (GMT 0)
A life long journey with colitis has lead me to live a healthier live and to learn about the science of the human body as much as possible. This has lead me to be healthier and more fit than all my obese pale people around me, and I have gained a large amount of education around the topic of health. I have been able to pursue gymnastics and dance, and be at a highly competitive level.

As for the haters out there, why would anyone want to me negative about their own situation? I choose to be happy, positive and the future will bring good things for me, even if its a one way ticket to discover God someday :)
Posted 5/4/2012 6:43 PM (GMT 0)
ColitisMastery, I'm PLENTY happy with my life. PLENTY. I have a lot of great things - supportive family, wonderful spouse, gorgous son, financial stability, nice home, etc. And my UC is well-controlled. But that still doesn't mean I like having the disease and I don't appreciate being labeled a "hater!" UC hasn't really taken anything from me. But that doesn't mean I like it.
Posted 5/4/2012 6:46 PM (GMT 0)
What a great question, although I think the way it's phrased is what turns everyone off.

At first I def agreed with everyone who says I don't "LIKE" anything, anything, aaaannnnyyyttthhhhiiiiiing about UC. What have I learned from UC is more like it. I've learned to dance in the rain, not wait for the storm to pass, meaning to make the best out of everything, which is a CONSTANT struggle for me because I'm a very negative person. That is ultimately where God is taking me with this disease.

But then I thought about it, and I do "like' somethings about it:

It helped me loose a ton of weight, which now that I'm in remission I'm having a really hard time keeping off (superficial I know, but for someone who struggled with anorexia as a teen, there's issues there, don't judge me).

I liked being forced to be quiet, stay still and rest. I learned so much about myself, and was much more present with my kids when I did so.

I liked having a valid excuse to get out of doing a ton of stuff I didn't like doing ;)

It sounds cheesy and superficial, but for me this disease is about making the best of of a crappy situation every day.
Posted 5/4/2012 7:00 PM (GMT 0)
I'm averse to questions like this for various reasons. there's nothing positive or that I like about having a disease and having to accommodate it.

Yes, we eventually have valid excuses or reasons to do/not do whatever....I can say the same with having a cold..but I dread that even more than a flare because a cold exacerbates my other disease asthma, which I have to deal with using more meds, etc and lasts a LOT longer!

q
Posted 5/4/2012 7:06 PM (GMT 0)
guategirl, i only used the word "like" because someone asked it to me just like this. i just wanted to see everyone else's reaction to the question.

obviously, i HATE having UC and i don't like anything about the condition, but i have learned to make the best of things when i can. i am as active as can be when i am not flaring and get out as much as possible when well. i've had digestive problems since i was born and UC has been the worst one. i'd go back to having just plain, old IBS any day.
Posted 5/4/2012 7:18 PM (GMT 0)
I hate hate hate this disease :(
So stubborn
And I even dont know why I caught this, especially when I am the only one at my family with this

sad
Posted 5/4/2012 7:18 PM (GMT 0)
Actually HAVING UC would be the best part about it, if that's what I do actually have. It's likely I have Crohns colitis; if I do that's even suckier. A UC diagnosis would mean the world to me - wow that's incredibly tragic. I'm going to change my answer to 'NOTHING!' like the majority of people in this thread lol.

Yes, I am probably more understanding, empathetic etc. But do you know who benefits from that? OTHER people! Lucky them. Where's MY prize then?
Posted 5/4/2012 7:22 PM (GMT 0)
Whenever I don't want to go to something, I just say I'm not feeling well -no muss, no fuss
Posted 5/4/2012 7:22 PM (GMT 0)
We live with it and deal with it....now you've learned how some of us react to certain questions.

Some things don't need to be turned into a positive....most of us are realistic..it is what it is.
I, personally, can see when positive can be actually denial. But..that's a comment that can bring out interesting reactions.

q
Posted 5/4/2012 7:37 PM (GMT 0)
so Heather, how bout if i'm a positive realist :-)
Posted 5/4/2012 7:39 PM (GMT 0)
oh, and Beat, been there and definitely done that :-)
Posted 5/4/2012 7:46 PM (GMT 0)
stud...Absolutely...be a positive realist.
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