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Highest ranked U.S. hospitals for IBD

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Posted 5/17/2012 2:34 PM (GMT 0)
health.usnews.com/best-hospitals/rankings/digestive-disorders


For those who might need a higher level of care I found this ranking for IBD hospitals/centers. Nothing I didn't know such as Mayo and Cleveland Clinic in #1 and #2 positions. I have never been hospitalized so haven't gone this route. The medical community in general doesn't support the protocol that gave me remission--diet modification--so don't think I'm saying go here or there. Just thought it's good to know for people in bad shape and not getting results.
Posted 5/17/2012 3:30 PM (GMT 0)
thanks for posting this! it's really cool looking for your own hospital on the list!

i'm kind of sad though. i was first seeing doctors at #10 UPMC and i changed to #43 allegheny general because it was easier to get an appointment. i wish i never changed because i know why it's not rated as high now.
Posted 5/17/2012 4:11 PM (GMT 0)
Well I'm going to the #1 hospital/clinic on this list and I can definitely say it STILL matters what doctor you see no matter how great the clinic is.  The first doctor I saw there sucked and I blame him partially for my current flare (I should have insisted on seeing another doc so I blame myself as well).  The current doc I have is awesome with so many years of knowledge - definitely better than any doc I saw down here in the cities and deserving of the #1 ranking for sure.

Thanks for posting, very interesting!

Posted 5/17/2012 4:38 PM (GMT 0)
Ima,

Thanks for posting this.
I agree with you about how you got in remission, and having to get there no thanks to the medical establishment.

I went to Cleveland Clinic in Weston, FL and saw some jerk gastro who had a god-like attitude to go with it. He proceeded to discount all my experiences, including my intolerance to the 5asa, and insisted on giving me script for more 5asa!

I guess wherever you go, you need to find the right doctor, one who cares, listens to your concerns, is empathetic.
Posted 5/17/2012 5:23 PM (GMT 0)
MNbeachgal and InSoFla

I absolutely agree with you, your doctor has the largest impact on your health and improvement.
I think the people who will benefit from this list the most are those at the hospitalization or diagnosis level, but how many get to choose where they are hospitalized in an emergency?
I wonder if I would have travelled to one of these in my early UC years to see if they knew anything more than my doctors did?

At this point I am very sure "they" don't have any magic answers for my UC but I don't think that's true for everyone. Someone I know locally is struggling to get a diagnosis for a GI problem that has her in and out of the local (pretty good) hospital. None of her doctors can give a diagnosis therefore she isn't getting better. Since she is a snowbird here in Florida I encouraged her to go back to Ohio where she has access to Cleveland Clinic doctors. I think she'll do it soon.

I've spent a big amount of time and effort keeping well enough to avoid hospitals. Part of that means not being in denial about how bad symptoms are IMO.
Posted 5/17/2012 5:30 PM (GMT 0)
Back 20 years ago when my brother was having GI issues no doctor could figure out what was wrong with him in WI.  He ended up going to Mayo in MN and they were the only ones who figured out he had UC.  I suppose that's why I went there way back then too - from his experience. In fact I am seeing the same doctor now who he worked with back then!

For me I suppose its that I feel I can trust the doctor, even if they don't have any 'magical' answers for me.  As long as the listen to me and work with me, ask me how I feel about what they are suggesting rather than just assuming they know it all.  If I trust the doctor and feel that their knowledge is based on solid research and experience then I feel better about taking the medications they prescribe me. I feel as though at least I can trust they know the risks and benefits and what is best for me in that situation and they aren't just looking at a list of meds in a book and picking the 'next' one one in the course of treatment.  I definitely feel that way now but in the past with other docs have felt the exact opposite!

 

Posted 5/17/2012 7:40 PM (GMT 0)
     Although I had to resort to surgery, I am glad to see #7 ranked Univ of Pa Hospital in Philly.  My colorectal surgeon is head of the department there and trained at the Cleveland Clinic yeah !  He's  awesome, did NOT push me into surgery.  I had decided on surgery because I was so ill and my GI doctor only wanted me to try more and more biologics.
Posted 5/17/2012 11:44 PM (GMT 0)
I went to Mt. Sinai which is ranked #5. Dr. Chin, who performed both the Jpouch surgery and the takedown, did a stellar job. Like Christine said above, my GI also wanted to keep me on biologics which were not working at all.
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