Do you have any info on Pseudo Addison’s Disease. I have it and my Dr has been reducing my Hydrocortisone to try to get my body to produce. No luck yet. I have reduced my dosage from 35 mg. to 15mg. right now. The first week or two after I cut down I have pain In my joints.
I was wondering if this is standard practice or are there other ways to get my gland started. I just had a test I am still really low. .4. I started my problem when I had Ulcerative Colitis undiagnosed for over 3 years. I was using over the counter Cortisone cream for irritation on my rectum daily for over 4 years. No one asked me aboutusing over the counter Cortisone. Who knew I would have a problem using it to relieve irritation. I was using less when a different Dr. gave me Prednisone to help with my colitis. That worked fine. After I stopped taking it the second time in 3 mounts. Two ten day treatments I started to get weaker and weaker. All the things that happen with no cortisol. I wound up in the Hospital for a week and a half. I lost all my ability to walk get out of bed and so on. The first Endocrinologist Thought I had Addison’s and started me on the 30 mg. dose of Cortisone. That got me going. When I first entered the hospital my blood presser the High number was only in the forty’s and was vary dehydrated. I was not asked if I had used Cortisone. I was out of it. After I was recovering they told me they didn’t think I would make it that night. Finally one of the many Dr’s asked for the right blood test and saved my life. After about 4 months I changed Doctors. I was not happy with the Endocrinologist that was assigned me in the Hospital. I had a hard time finding a Dr. that had experience with Addison’s. I went to Milwaukee to the Medical school of Wisconsin. I picked one from the group of Endocrinologist. He figured it was Pseudo Addison’s the first visit. I was asked ton’s of questions and that helped. No one told me
there was a correlation between adrenal insufficiency ulcerative colitis
thanks tom
Tom