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Colifoam ADvise Please!!!

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Ulcerative Colitis
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Posted 6/8/2012 12:54 PM (GMT 0)
I have been using the Colifoam for 2 days now to try and get me outta this flare which has started late january..the mesalazine enemas and suppostiories did the job for the first 2-3 months but now they are doing nothing. Lately, the mesalazine enemas stopped working and started to actually give me MORE pain and bleeding and toilet trips the following day after using it.

So now im on the colifoam to try and control things...im really praying this works coz if it doesn't; well then im screwed big time coz i cannot go on the pred again (will have to make a booking in the psych ward the same day i start it ) :P

Anyway my question is: how long should i stay on the colifoam (aka cortifoam) if it works? i.e, how long is safe?
im asking because i know it can thin the skin as a side effect of long term use...but what is 'safe' term use?

Words of advice anyone?
Posted 6/8/2012 1:23 PM (GMT 0)
Didn't your doctor give you a tapering schedule? Usually I would remain on the steroid enema's (not foam - but it's essentially the same thing) for about 6-8 weeks and then taper down. I was actually on the steroid E's off an on, mostly on for nearly a year with no ill effect.
Posted 6/8/2012 4:27 PM (GMT 0)
I remember another member saying she was on them for a year before tapering at all. Was it pb4? Anyway, I don;t know if that is right for you, but I use the steroid supps a good amt and that story always makes me feel better.
B
Posted 6/8/2012 7:44 PM (GMT 0)
yes, that was pb4 as well.

Regarding the enemas...see how you do after a few weeks. Basically, your butt will tell you when you need to taper.

You can use the steroid supps during the tapering phase or in support of the enemas.

q
Posted 6/8/2012 9:29 PM (GMT 0)
I've been taking my Cortifoam enema daily for the past 7 months. For the first month I took it twice a day but all of my symptoms were getting worse. The blood finally stopped after my first Remicade infusion. Hoping to start to taper in July.
Posted 6/9/2012 6:33 AM (GMT 0)
If Colifoam = Cortifoam, it is only 10% steroid, far weaker than the liquid steroid retention enemas. Try not to panic because you are unlikely to experience side effects like thinning of the skin from using foam over time. In my experience it can be an inflamed rectum's best friend. It's also a lot easier to tote around in case you need to medicate while away from home, and you don't have to lie on your left side after inserting it. It stays where you put it, unlike suppositories, which can ooze out after a couple hours due to greasy base. / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 6/9/2012 9:02 AM (GMT 0)
COLIFOAM IS THE BEST FOR FLARES blush

YOU HAVE TO USE IT TWICE A DAY FOR AT LEAST 1 WEEK WITH ASACOL 3 TIMES A DAY .

AWAY FROM STRESS , SPICY FOOD AND FRESH FRUIT AND VEGETABLE . KEEP ON EATING GRILLED FISH AND BOILED POTATO

IT WORKS cool

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