HealingWell
Search Close Search
☰

Perfectly formed BM...

Support Forums
>
Ulcerative Colitis
✚ New Topic locked
1 2 3 4 56 7 8 9
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/5/2012 12:02 AM (GMT 0)
Cool, thanks for sharing that.
:-)
Posted 6/6/2012 5:09 PM (GMT 0)
INSOFL this is not your fault but the company is on back order and when I called to ask last week they said it was in and going to ship on Friday today they tell me now next Monday! So frustrating when you want to get better and you can't get your supplements! Urgh!!!!
Posted 6/6/2012 5:14 PM (GMT 0)
therearemiracles, did you order yours last week and then call to ask when it would arrive by mail? I ordered mine yesterday! I hope it gets here sooooooon. :)
Posted 6/6/2012 6:00 PM (GMT 0)
Well just to chime in- after dropping down to 15 mg pred things have got a bit more difficult. Stool started out soft formed but then shifted to mud by the third and last BM that I had in the morning... So for now I will stop tapering at 15 mg (hopefully won't need to bump up a bit again) and wait for stabilizatiom before resuming tapering. This makes me question whether threonine has actually benefited me after all, or if it was merely the pred. I am keeping up the threonine in any case.
Posted 6/6/2012 6:12 PM (GMT 0)
therearemiracles,

I'm sorry they're on back order. I had to wait 2 weeks for mine to come too, because they were on back order.

Stereo,

Hopefully you'll get yours soon too.

Probiotic,

I'm sorry - I hope it's just a blip, and you'll start to get back to pre-flare conditions.

We're rooting for you. Let us know.

Posted 6/6/2012 8:39 PM (GMT 0)
I'm on day number# 6 with no positive movement yet. I am currently flaring so I think it will take longer for me to see results. I'm going to continue with the L-Threonine for a few more days to see if anything happens. My next step is to jump into the SCD diet. I've been resisting the diet but I'm down to my last options.
Posted 6/6/2012 10:31 PM (GMT 0)
I am in the same holding pattern waiting for news it has shipped. Probably going to be like clay was, no change as I am almost getting perfect poop now, formed and solid just want the perfect finish, seen that at times but not consistently.
Posted 6/7/2012 1:52 PM (GMT 0)
aguywithuc, how is that you're having remission? Tell us please. Thank you. Any RX you're taking?
Posted 6/8/2012 12:02 AM (GMT 0)
InSoFla

Thank you for all this great work and your diligence on this site.
Posted 6/8/2012 12:49 AM (GMT 0)

therearemiracles said...
aguywithuc, how is that you're having remission? Tell us please. Thank you. Any RX you're taking?

Well according to the Doctors it will strike when it wants to and I am just being lucky right now.

Here is what I have settled on, as each change showed improvement I dropped sulfasalazine, then lots of non-meds that were suspected of not helping. ( Generally only foods you could get 500 years ago with various exceptions and exclusions ).

Drinking lots of water
- Pure water with Ultima powdered electrolytes + some trace minerals
- No coffee
- No soda etc
- No juice either
- Coconut water, cheapest tall cans available

Each morning I have turmeric, powder capsule or Turmeric force liquid or both.
- Eggs for breakfast, usually boiled in advance for speed during the week
- Enteric coated protein with 7 Grams of L-Glutamine 1-3 servings per day
- Pure Protein vegetable source + algae
- Chicken, or Steak, or Salmon
- Spinach
- Apple pectin pills
- Unique bread 'Harvest seeded' has sunflower, pumpkin, oats - its not whitebread
- Chobani Yogurt
- No candy no chocolate
- Biotin and Folic Acid for thick hair

Usually can eat about anything, get a touch of food poison or bad reaction and I tighten up and stop trouble in its tracks
( Salmon, Filet Mignon, butter and eggs, Protein powders, Psyllium products, spinach and plenty more water, VSL#3DS if its more than a day )

Cheats : Lots of stimulant powder drinks for pre-workout and analytical computer tasks, my gut does not like them if I feel things are worsening out they go for a few days.

Sleep with 5-htp or Relaxall, sometimes GABA and DMAE, got a new flavored one from the workout store that has a lot of GABA in it. Arginine-Ethyl-Ester if I feel tension.
Posted 6/8/2012 2:28 AM (GMT 0)
aguywithuc, thats great your following a plan that works for you... I'm still baffled on how apple pectin helps you?! Ever since I was younger, warm apples always gave me d right away, and I now suspect the sugar pectin in apples, so i'm surprised thats helping you. Also, Chobani, because there is alot of sugar in their yummy yogurts right?
Posted 6/8/2012 4:10 AM (GMT 0)

stereofidelic89 said...
aguywithuc, thats great your following a plan that works for you... I'm still baffled on how apple pectin helps you?! Ever since I was younger, warm apples always gave me d right away, and I now suspect the sugar pectin in apples, so i'm surprised thats helping you. Also, Chobani, because there is alot of sugar in their yummy yogurts right?

That makes sense. I consume apple pectin pills, well I stopped because the enteric coated protein powder was working so well I put them on a high shelf. However I did bring home an apple pie today and ate the big cooked pieces of apple, did not eat the crust or sugary goo and tossed it when it had only small pieces left. That never bothers me. There is research about apples and apple pectin BUT it sounds like it is not a TRUSTED food for you so you are correct to avoid it. Pectin pills would require a trial to see if you can get the benefit without the problems.

Chobani is higher protein than other brands, I dont like all the carbs especially the sugar. I normally eat the top yogurt, because enough flavor penetrates the top from the bottom then I discard the bottom fruit. This is immensely better than plain yogurt. PLAIN yogurt is part of my exit hospital regime => Salmon, Plain Yogurt and eggs. Out the door I go and off to consume VSL#3DS because I ate them out of plain yogurt last time.

I seem to tolerate REAL sugars pretty well outside of a flare. Fake sugars kill me. So in a flare I will avoid anything with sugar in it.

So I am mapping out a basic plan, the salmon, filet mignon, they have no sugar at all, a little sugar in my yogurt is fine. You have to follow the theme but tailor it for your system, if spinach works for many of us but backfires for you its off your trusted food list. Sounds like you may need a super-low sugar plan, high in protein and investigate oats for slow, long burning carbs. Oats-n-whey is great. Oats are supposed to be good for UC. Oats-n-whey is a nice combo, a bit high in salt but sounds like the right carbs for your system.
Posted 6/8/2012 3:46 PM (GMT 0)
Sounds good AGWUC, no sugars helps me a ton! It's getting easier for me, replacing table sugar with a piece of fruit. I can't do dairy at all, causes gas. I can't do oats, they hurt my guts too. If I had a personal chef, I'd be all set!

I work out too! I've been taking Eboost (to jump start my day) and then sometimes, only sometimes I take myoplex light and only half in the morning and half in the afternoon so I don't get too much dairy at one time.

I get my theronine on Tuesday :) hope it helps.

I did a probiotic enema last night, when I say enema I mean the rowasa bottle full. But on Livestrong website it says to put probiotics in water and sit overnight? I wonder why that is?? I did that, feel no real difference today.

 

Posted 6/8/2012 5:01 PM (GMT 0)
Salmon, plain yogurt and eggs is a great flare diet for me too... infact I'm starting this today and sticking to it for a bit. Also whey protein or any other protein shakes to add calories. I've been so stupid eating lots of sugary baked goods (although gluten free), they caused quite a bit of inflammation. I just gained 7lbs since i've been home though! And I really don't want to lose it. My sister's friend who does the raw diet, says she eats about 5 avocados a day! Packed with calories and good fats, I think I might do the same, I have no problem with the fiber in that fruit either.

therearemiracles, I get my threonine early next week also! I ordered a the smallest (750grams i think) ? It'll be a great supplement regardless of whether it impacts my UC or not. :) Although, God bless, i've never had sleep problems really. It's my fault if I have to get up and go to the bathroom, i drink too much water before bed.
Posted 6/8/2012 5:16 PM (GMT 0)

stereofidelic89 said...
Salmon, plain yogurt and eggs is a great flare diet for me too... infact I'm starting this today and sticking to it for a bit. Also whey protein or any other protein shakes to add calories. I've been so stupid eating lots of sugary baked goods (although gluten free), they caused quite a bit of inflammation. I just gained 7lbs since i've been home though! And I really don't want to lose it. My sister's friend who does the raw diet, says she eats about 5 avocados a day! Packed with calories and good fats, I think I might do the same, I have no problem with the fiber in that fruit either.

therearemiracles, I get my threonine early next week also! I ordered a the smallest (750grams i think) ? It'll be a great supplement regardless of whether it impacts my UC or not. :) Although, God bless, i've never had sleep problems really. It's my fault if I have to get up and go to the bathroom, i drink too much water before bed.

Wow, what does she eat to balance out the omega-6 from the five avocados (3396mg omega-6 per avocado)? I checked my cod liver oil and it would take 15 teaspoons to get to a 1:1 ratio.
Posted 6/8/2012 5:20 PM (GMT 0)

therearemiracles said...
I've been taking Eboost (to jump start my day)

I am going to try it too. Vinpocitine and Huperzine are great, surprised to see 5-HTP I take that for good sleep.


stereofidelic89 said...
..protein shakes to add calories..

I take pure green protein because it improved my poop, l-threonine and spirulina. The enteric coated protein I take also has a lot of l-glutamine and l-threonine.


Yesterday I had my daughters kashi cereal with cinnamin and soy protein powder ( dry no milk ) and I had burning rinse mode several hours later. Back to normal this morning and wont try that again.

Good that we are all finding a safe path. I stopped avacados and justins almond butter and frequent salmon to cut the calorie dense foods and get my 6-pack back.
Posted 6/8/2012 5:23 PM (GMT 0)

tap said...

stereofidelic89 said...
Salmon, plain yogurt and eggs is a great flare diet for me too... infact I'm starting this today and sticking to it for a bit. Also whey protein or any other protein shakes to add calories. I've been so stupid eating lots of sugary baked goods (although gluten free), they caused quite a bit of inflammation. I just gained 7lbs since i've been home though! And I really don't want to lose it. My sister's friend who does the raw diet, says she eats about 5 avocados a day! Packed with calories and good fats, I think I might do the same, I have no problem with the fiber in that fruit either.

therearemiracles, I get my threonine early next week also! I ordered a the smallest (750grams i think) ? It'll be a great supplement regardless of whether it impacts my UC or not. :) Although, God bless, i've never had sleep problems really. It's my fault if I have to get up and go to the bathroom, i drink too much water before bed.

Wow, what does she eat to balance out the omega-6 from the five avocados (3396mg omega-6 per avocado)? I checked my cod liver oil and it would take 15 teaspoons to get to a 1:1 ratio.

Well, lucky for her this is assuming she has no digestive issues, she just does the diet to do it for health I believe, but yes good question...
Posted 6/8/2012 5:37 PM (GMT 0)

stereofidelic89 said...

tap said...

stereofidelic89 said...
Salmon, plain yogurt and eggs is a great flare diet for me too... infact I'm starting this today and sticking to it for a bit. Also whey protein or any other protein shakes to add calories. I've been so stupid eating lots of sugary baked goods (although gluten free), they caused quite a bit of inflammation. I just gained 7lbs since i've been home though! And I really don't want to lose it. My sister's friend who does the raw diet, says she eats about 5 avocados a day! Packed with calories and good fats, I think I might do the same, I have no problem with the fiber in that fruit either.

therearemiracles, I get my threonine early next week also! I ordered a the smallest (750grams i think) ? It'll be a great supplement regardless of whether it impacts my UC or not. :) Although, God bless, i've never had sleep problems really. It's my fault if I have to get up and go to the bathroom, i drink too much water before bed.

Wow, what does she eat to balance out the omega-6 from the five avocados (3396mg omega-6 per avocado)? I checked my cod liver oil and it would take 15 teaspoons to get to a 1:1 ratio.

Well, lucky for her this is assuming she has no digestive issues, she just does the diet to do it for health I believe, but yes good question...

My understanding is that a healthy diet would have as close to a 1:1 omega-6 to omega-3 ratio as possible.
Posted 6/9/2012 1:47 AM (GMT 0)
What a thread. I love it.

tap, how much cod liver oil do you take, and how are you present symptoms, and how are you doing with the CLO?

aguy, I believe I am allergic to cinnamon and causes all sorts of digestive symptoms. My grandmother is DXd allergic to cinnamon and reacts in non-digestive ways.

stereo, how do you do with organic apple sauce, nothing added? I am on SCD, I do fine with apple sauce, I get some strange brand from wholefoods that says nothing but apples in it. When I try cooked apples I think I am ok, but not trying this now. With raw apples, I show symptoms hours later. Also, How have the naturopaths suggestions worked for you?

InSoFlaaaaa, thanks. I am on to diet and supplements, although pred got me my life back. I am on day 160 of SCD, doing good, did have a setback, and currently taking 2 g's L-Glut. I just moved for a summer job, I am making bank, and live next to a guy who sells lobster live in a tank, plan on eating it atleast 2x a week for this L-T....! Please tell me more about L-Glutamine. I just take 2 g's usually after exercise, but you are up to 15? Please tell me more about this! How has this affected your BMs

Also, I believe some things work better after remission, aka, these things are used to sustain remission, not to achieve it. If you are doing stuff in the toilet that doesn't even slightly resemble a normal BM, (no hard feelings, you will get better), I don't think L-T will get you to normal BMs. InSoFla, has been posting for a while, she used LDN to get her towards remission and is now adding this supplement to solidify it (no pun intended ;) )

I am on SCD, only sugars on it allowed are honey and sugars found in fruits and vegetables. It is a great way to limit your sugar. I take probiotics every morning, it SILENCES my gut for about 3 hours after breakfast.

If you are taking probiotics with dairy, it is worth testing whether you have intollerance to either lactose, or cow milk protein. Try goats milk and avoid soy
Posted 6/9/2012 2:09 AM (GMT 0)
Good advice mindoverbutter. I'm fine with apple sauce, just sometimes warm apples (think carrot, apple, ginger soup) or apple crisp, causes me to have diarrhea ever since I was younger.

I'm in a rut right now, got myself down, but need to remind myself how foolish im being for not wanting to stick to the SCD anymore, even though its worked for me well in the past. I'm hoping these test results I get back soon will help pinpoint some real triggers about how my immune system and gut are working together and if I have adrenal fatigue or not.

Stock up on that lobster! Lucky you! Hey, do you find the raw goat milk is working for you?
Posted 6/9/2012 3:06 AM (GMT 0)
Tonight will be my second night on l-threonine. Im also planning to start LDN again after a few weeks off (I didnt realized my Dr gave me 5 refills on the 4.5, discontinued bec I didnt have time to sechedule another appt/ make the drive). Took it last night, got up less in the night (once or twice only maybe).. but had a bit more blood today.... Ill give it a few days.

Im hoping to empty the LDN capsule into the threonine water... Anyone see any problems with that?
Posted 6/9/2012 4:39 AM (GMT 0)
stereo, yeah I make yogurt with raw goat milk every chance I can find a source lol I'm like a goat head. Raw makes a much more tastier and "yogurty" yogurt than the store brand, so it is more enjoyable in that sense. You actually feel like your eating yogurt when you eat it so you tend to eat less, where as the store is more like a drink, takes a little more to feel full. What I am getting at is , is sometimes I feel issues if I eat too much yogurt so I eat a little, all the time.

Dude if you really feel SCD got you into remission, then who knows how much more healing you could have done if you kept with it, especially since you are doing pretty well even when you got off it. the goal of the diet according to Elaine is a long term remission or a cure that usually takes atleast 2 years on the diet for UCers. I am willing to do it and am still in the process.
Posted 6/9/2012 2:01 PM (GMT 0)

mindoverbutter said...
tap, how much cod liver oil do you take, and how are you present symptoms, and how are you doing with the CLO?


I take one teaspoon with breakfast. I just started taking it again back in April after checking my daily nutrition and determining that my omega-6/omega-3 ratio was higher than I thought would be best. I used to take a tablespoon between 2004 and 2011 and eventually came to the conclusion that it aggravated my symptoms a little and stopped taking it. One teaspoon seems not to cause any issues that I have noticed.

Presently I am in complete remission. I usually have one well formed stool and have no symptoms. The bleeding from my last flare concluded in June 2011 and complete remission (no symptoms / one stool a day) began around November 2011. I swear that my digestive system hasn't worked this well since my pre-teen years.

I must be out of the loop on the latest slang since pre-teen without the dash becomes **** when I previewed this post.
Posted 6/9/2012 2:42 PM (GMT 0)
I WILL HAVE A NICE LOBSTER DINNER TONIGHT....HEHEHE WE LL SEE ... HOPE IT WORKS...
Posted 6/9/2012 2:45 PM (GMT 0)

tap said...
Presently I am in complete remission. I usually have one well formed stool and have no symptoms. The bleeding from my last flare concluded in June 2011 and complete remission (no symptoms / one stool a day) began around November 2011. I swear that my digestive system hasn't worked this well since my pre-teen years.

I don't believe in going overboard by spamming the forum, but the explanation for your awesome remission could be shared with us by at least printing your signature once in a while. Thanks
✚ New Topic locked
123456789