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Need your help on this-one day seems like I'm healing next day bloody all day long!

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Ulcerative Colitis
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Posted 6/14/2012 3:01 PM (GMT 0)
My gosh I would I could figure this out. Yesterday was a pretty good day some of my poop came without blood, little white mucas attached to it, when I see this its good for me. Felt really good, no inflammation. Today, omg since I woke up painful bloody D. How come it can switch day to day? I'm taking my fricken meds! Also if you can tell me WHY DOES MY GUT PUSH ON ITS OWN LIKE ITS PUSHING OUT A BABY? THAT'S WHY I HAVE FISSURES. I CAN'T STOP IT FROM PUSHING, I'VE TRIED BREATHING TECHNIQUES BUT IT DOES IT ON ITS OWN. IT'S SO PAINFUL WHEN IT PUSHES OUT MY WHOLE BUTTHOLE. I would think that's chrons, someone told me this.

How do I stop the bleeding now? I just had a cup of marshmellow root tea to coat the gut.

I could cry, one day it looks so hopeful, today I'm dying. I throw up my hands to GOD and ask why?

Thanks for helping.

Linda

Posted 6/14/2012 3:30 PM (GMT 0)
Why don't you try remicade...maybe it will heal you to the point where you probably won't need to use remicade in the future.
Posted 6/14/2012 5:13 PM (GMT 0)
Wow, I can totally understand your frustration. I hate the unpredictability of this disease from one day to another - I've had the same experience where I feel like things are improving and then WHAM! I'm way worse the next day. Do you keep a food journal? I have realized that certain foods really trigger my UC symptoms when I'm in a flare, and knowing what these foods are can definitely decrease the "bad days" when you're in a flare. In fact, I think most of my setbacks can be attributed to eating something my gut couldn't handle.
Posted 6/14/2012 5:35 PM (GMT 0)
This disease if very unpredictable. Even if I ate the exact same thing 2-3 days in a row my movements would be different during a flare. The only way I was able to get rid of the blood was to try Remicade. It literally worked overnight and the blood was gone after the first infusion. Things are still going in the right direction so I am grateful that it is working for me.

Are you taking anything besides Colazal? Rectal meds? Prednisone? Are you only trying natural remedies and clay?
Posted 6/14/2012 5:36 PM (GMT 0)

laurar said...
Wow, I can totally understand your frustration. I hate the unpredictability of this disease from one day to another - I've had the same experience where I feel like things are improving and then WHAM! I'm way worse the next day. Do you keep a food journal? I have realized that certain foods really trigger my UC symptoms when I'm in a flare, and knowing what these foods are can definitely decrease the "bad days" when you're in a flare. In fact, I think most of my setbacks can be attributed to eating something my gut couldn't handle.

This is my situation exactly. 2 years ago everything made my gut unhappy, no single food/drink I could point to. After getting down to the few foods my gut could handle without reacting I slowly added foods one by one, testing my gut reaction. It was rarely a simple answer of yes/no, more like "maybe not" unless too much of something and then it was "hell no".

Even today I will have reactions and have to remove something. I can't tell you how many times coffee and yogurt have been in and out. It would be smart to leave them out wouldn't it? What can I say, temptations calls and I answer.

However not everyone is able to connect food to their symptoms. For me being able to control how my colon acts is such a relief after years and years of no control and no answers.

Best wishes.
Posted 6/14/2012 7:46 PM (GMT 0)
Take a look at this website that describes rectal prolapse.
What you describe sounds similar.
Could be a structural problem rather than just the UC.

http://www.emedicinehealth.com/rectal_prolapse/article_em.htm
Posted 6/15/2012 1:15 AM (GMT 0)
What you describe sounds like a typical flare to me. When I am flaring, my symptoms are completely unpredictible from day to day. Usually when I am really bad, each day is pretty unbearable but there is a chance that one day is OK and the next terrible. I also have a lot of that pushing and pressure. Are you using rectals? I hate to sound like a drug pusher but I think I'd drop anything that's unnecessary - meaning all supplements or anything unapproved for UC treatment and try to start over with the basics.

Are you on 6mp? or Imuran? I wish you would get a break from this, you've been dealing with it for too long!
Posted 6/15/2012 1:25 AM (GMT 0)

therearemiracles said...
My gosh I would I could figure this out. Yesterday was a pretty good day some of my poop came without blood, little white mucas attached to it, when I see this its good for me. Felt really good, no inflammation. Today, omg since I woke up painful bloody D. How come it can switch day to day? I'm taking my fricken meds! Also if you can tell me WHY DOES MY GUT PUSH ON ITS OWN LIKE ITS PUSHING OUT A BABY? THAT'S WHY I HAVE FISSURES. I CAN'T STOP IT FROM PUSHING, I'VE TRIED BREATHING TECHNIQUES BUT IT DOES IT ON ITS OWN. IT'S SO PAINFUL WHEN IT PUSHES OUT MY WHOLE BUTTHOLE. I would think that's chrons, someone told me this.


How do I stop the bleeding now? I just had a cup of marshmellow root tea to coat the gut.



I could cry, one day it looks so hopeful, today I'm dying. I throw up my hands to GOD and ask why?



Thanks for helping.

Linda

I'm sorry Linda :(

Teas should coat the gut, but maybe something more is needed,

Curious, how much iron are you taking a day?

Any way you can find/order some slippery elm powder or loose leaf tea form? L-Glutamine also?

For diet, maybe try adding more Omega 3 in, at Costco that have huge cans of Tuna fish and Salmon that you can right out of the can.

How is the colazal working?
Posted 6/15/2012 6:10 AM (GMT 0)
I have that same, uncontrolled pushing spasm, which just started a year ago for me, and it is scary. I described it to my docs like a contraction also, but I don't think that indicates crohns from what my docs said, just bad inflammation. They always ask about pain, and I say so, just the rectal spasms and that overwhelming build up in the gut during a bowel movement. This new development has caused more issues like hemmoroids, which I never had either. I believe pain is more associated with crohns.
Posted 6/15/2012 2:24 PM (GMT 0)
Hi Stereo, I should change my signature line AGAIN since I'm on asacol now. I was having butt leak and thought it was the colozal. But if I have (which it showed last time) ulcers by the cecum I guess the asacol is better anyways. So I'm on asacol. I tried the l theronine last night and was ok this morning. I hope the butt leaking stops that just sucks!

allswell, the spasams sucks so bad, it caused a fissure and a ton of hemmroids!

Thanks for responding everyone!

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