24-year old just diagnosed with UC

Hi all--

I'm so happy to have found this site! Thank you for taking the time to read this.

In brief: I was on an antibiotic for a sinus infection that I believe triggered an episode of UC. I had an increasing # of BMs per day (no blood) and the Dr scheduled me for a colonoscopy immediately. Before even getting the biopsy results, he told me I had "colitis" and put me on Sulfasalizide (1000mg twice per day) and Prednisone (20 mg twice per day, then once per day after the first 10 days). It had been over a week and I was going to the bathroom only a few times a day and it was fairly normal as compared to what it was. I've been eating plain foods, but don't see that much of a correlation between food and feeling.

BUT now, over a week later on the meds, I'm having different kinds of pains! Severe bloating and gas. And even a little diarrhea this morning, with no relief. It seems strange to me that I got better only to get worse in a different way. It's a constant dull ache with sharp pains here and there.

By the way, I called the DR yesterday for the biopsy results and the nurse told me over the phone that I had UC like it was no big deal. When I told her I still wasn't feeling well, she said the drugs take time....

Does anyone have any experience with these specific drugs or this course of treatment? Or any general advice? This came out of NO WHERE for me so I really feel lost in the dark.

Also, I am anticipating my period. Any experience with menstrual cramps during this already painful time?

MANY THANKS.
Wishing you all good health!

You should definetely get so answers from your doctor about your UC, where it is located, how severe it is, and dealing with everything. I am 25 and was diagnosed when I was 14; so it was a big deal at a children's hospital and not only did they want to know how you were doing health wise, but also emotionally. I think that is very important in a doctor.

I agree that you need a good relationship with a doctor and if you don't feel comfortable with the one you have, check out other ones. I know sometimes doctors get busy and don't return calls, but UC is a big deal, and to me I have to have a doctor who calls me back or at least has a nurse call me back is important.

The medication does take time and finding the right one can take time also. I also think different symtoms come and go and your new symptoms seem like UC symtoms, but defintely tell your doctor about what's new. Maybe the prednisone has helped cut down on your bm's per a day? I tried a few different meds before I finally found the right one. I had tried Pentasa, Asacol, and a few others I don't remember before finally getting to Imuran. I never tried what you are taking.

I suppress my period by only taking the first 3 weeks on birth control pills and then starting a new pack, not taking the sugar pill. I would see about doing this if that is an option to you. At least until you get a good idea of how your UC is and what your symptoms are. And it is one less thing to deal with at this time. I know some people go into a flare whenever they get their period also.

You will begin to learn how your UC is and what works and what doesn't, but sometimes it can take time.

Good luck and make sure you post what you find out!
A.

I think it's weird that your dr prescribed Prednisone. It sounds like your symptoms weren't really severe so it is possible that your symptoms could have been knocked out by something like Asacol and a rectal med.

Also, lots of people are sensitive to sulfa- maybe ask your dr about a sulfa-free med to replace the sulfasalazine.

Sarah18, I had some issues years before my tell-tale sign of UC. I believe those were my signs...If you want to read more, here's my story: http://simplisticwholistic.com/blog/2012/06/my-gaps-gut-healing-journey

Gut imbalance doesn't happen overnight, nor does it heal overnight but it can be done without meds! Best wishes.