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Does Anyone Else Get Emotional?

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Posted 7/18/2012 2:05 AM (GMT 0)
As a 22 year old male, I feel like the stereotype for this age and gender is anything but (emotional)- but sometimes I find myself so upset over the situation (of having UC) that I cry and bury myself in bed. Not all of the time, just when I'm overwhelmed.

Anyone else feel like this?
Posted 7/18/2012 2:18 AM (GMT 0)
Yes.
Posted 7/18/2012 2:20 AM (GMT 0)
Yes... sometimes i need to hug my dad and cry it out. Hes turning 60 this year, ill be 20 in less than month.
Posted 7/18/2012 2:27 AM (GMT 0)
In the beginning, I was. Now, I'm just pissed. What pisses me even more is people that just accepting it. The problem with just accepting it is ultimately slowing down the progress to cures and stuff. World example: People in eastern Europe were under communist regime for quite a few decades. They were accepting until it just wasn't ok anymore and we had mass revolution in 1989 and communism fell there.

The point I am trying to make is that we should not accept our fate and we should moan and ***** until we have a cure.

/rant over.
Posted 7/18/2012 2:35 AM (GMT 0)
yes, but i havent cried yet. I did get really upset on fri after my GI app as i was told that
A) ill have to postpone having anymore babies for a possibly 2 yrs.
B) im gonna have to choose between remicade or humira because no drug has helped so far and
C) im having another colonoscopy next wk. eeek. my bums on fire enough without all that prep.
I just wanna hibernate for a while..............
Ju
Posted 7/18/2012 2:36 AM (GMT 0)
Absolutely! In fact, I had a breakdown today talking to my husband about how frustrated I am with being sick and meds failing. It's totally understandable to get overrun with emotions when we are sick and feeling overwhelmed. (((hugs)))
Posted 7/18/2012 2:38 AM (GMT 0)
you know, i watched the movie "soul surfer" on saturday and sunday because i was having a bad week with my UC. just crying and saying how it's bull crap that i have this disease and how i'll never have a life blah blah blah.

this surfer girl, who got her arm bit off by a shark, makes me realize that even though i have a piece of #^&$ colon, i have all my limbs, eyesight, hearing, speech, and i'm funny and smart and all those other good qualities. we need to count our blessings and focus on those because that will make us happier.

somedude, but i agree with you. i will never stop trying to get better. i will not accept feeling this crappy all the time.
Posted 7/18/2012 3:50 AM (GMT 0)
I am just thankful for today. To be honest, I've never been a happy-go-lucky person or the type who felt like life was a "blessing" so UC is just another thing to make me feel like a failure. I don't know what else to say about that, but yes, I cry, I get over-emotional, I am irrational (maybe or maybe not). I think it's life More than UC lately. Life itself, beats me down. I think I'd rather be beat down by life than by UC though, I was beat by UC in the past and it's worse.
Posted 7/18/2012 4:11 AM (GMT 0)
Heck yeah!!! I've cried lake fulls in the last 21 yrs, maybe that's partly why I've never reached full remission...I've been stressed and sad and angry over this DD, and as much as I try and stay positive, it's sooooo hard...IBD can really make life feel pointless but I'm thankful that exercise helps me cope better with it.

((((HUGS))) Stero!!
Posted 7/18/2012 7:19 AM (GMT 0)
I'm pissed and emotional most of the time! lol But about other stuff in which I don't have control.

UC, however, makes me ticked when I flare, but I at least have the meds and a good GI...I'm not emotional about it anymore.

Be realistic about what you have and what treatments you have available to you. UC is a pretty much forever...but that doesn't mean you'll be flaring forever. If you want to cure it, a reality check is in need.

SomeDude...get over it already! You talk like you're a 90 year old...crotchety old fart.  You need those rectal meds to set you straight....and in reality, I doubt there will ever be a cure.

sheesh

q
Posted 7/18/2012 12:18 PM (GMT 0)
At first, I had a few moments of "woe is me, this isn't fair!" but to be honest, I got over it pretty quickly. I had been sick for about 2.5 months and was actually somewhat glad to finally have a diagnosis and to be able to start treatment. I also viewed UC as being a treatable disease, rather than a lifelong struggle type of thing. Plus, I had a newborn to take care of and a job to go to each day -- I didn't really have time to pity myself. Since gaining remission, and being in such a stable remission for so long, I haven't had any poor me-related thoughts. I mean, why would I? I'm healthy, I'm doing what I want, and UC hasn't really affected my life.

I also honestly don't think that griping is going to do any good -- I donate money to the CCFA (ie, put my money where my mouth is) and I try to educate people (in my "real life") about UC.

stereo, I really wish you'd give the enemas a shot.
Posted 7/18/2012 12:23 PM (GMT 0)
oh yeh! i have cried and cried too many times to remember. The thing is UC hit me right when i had my dream -a beautiful son and a lovely family, a nice house, a job im passionate about. Everything was perfect!

But i think im over that stage -now im just really angry!! like i could literally smash someone's face off....lol
Im just so angry that nothing is working...im so sick of sticking these disgusting enemas up my bum. Im so angry that not enough is being done to find a proper cure for this disease. Somedude is right!!!
I mean sorry Quincy but seriously do you really think that sticking those enemas night after night after night for months on end is a proper treatment? to me that sounds like middle-ages treatment. I mean there has literally been no advances in the treatment of this disease since the 1950s!!! it's either 5 ASA or the pred (oral/supp)...and no i do NOT consider remicade or humira or imuran treatments because they wear off after a while and also because they come with a side effect list that is worse than the UC sometimes! and also because they are insanely expensive.
Meh anyway...im having a flexible sig tomorrow to see why i haven't responded to months of mesalazine enemas and over 2 weeks of pred enemas.
Till then i continue to poop blood.
Posted 7/18/2012 12:31 PM (GMT 0)

bananagirl said...
you know, i watched the movie "soul surfer" on saturday and sunday because i was having a bad week with my UC. just crying and saying how it's bull crap that i have this disease and how i'll never have a life blah blah blah.

this surfer girl, who got her arm bit off by a shark, makes me realize that even though i have a piece of #^&$ colon, i have all my limbs, eyesight, hearing, speech, and i'm funny and smart and all those other good qualities. we need to count our blessings and focus on those because that will make us happier.

somedude, but i agree with you. i will never stop trying to get better. i will not accept feeling this crappy all the time.

This is how I see it too. I try to look at it like a 'minor ailment' because most of the time people can't really see it. But now that I'm living with my family at home for the summer, they see the up and downs of me more.

I'm so afraid to have a relationship, I thought I was done being that melancholy person that I was when I was growing up. But now with UC, I'm going to have so many ups and downs, I wouldn't blame a person for leaving me, if that were the case. When I see people and how they stress about things that are now on the back burner for me, I get this attitude like "you don't even know what else you could be dealing with", and I am envious. Constant changing with supplements, diets and meds is what bothers the crap out of me. Oh, and looking like i'm a 17 year old boy when I'm 22.

I think my weight is the biggest self esteem burner. The fact that I have no fat on me, barely any muscle, and am very slim, I feel weak. I feel like I look like death, I know I don't, I only lost 10 lbs overall prior to disease, but still, if I could just stop the diets, the meds, supplements all which may be impacting my weight with this disease, I could look myself in the mirror and feel happy, because at least some part of me would look 'healthy'.
Posted 7/18/2012 1:34 PM (GMT 0)
Yes! I usually try to have a positive attitude about everything, but I definitely get emotional after I've been in a flare for a while and my body is totally run down. I've also been emotional lately from tapering off Prednisone. It's a rough disease to deal with when you're flaring.
Posted 7/18/2012 2:47 PM (GMT 0)
I haven't really cried - I've come awful close - but I have gotten really depressed over it.  Flare ups are very depressing and there are times when you wonder if it isn't worth it just to go ahead and have it cut out.  I've come really close and am struggling with that decision now.  Between the meds and just the issues related to this disease sometimes things get quite difficult.  While only on here for a short time, I have found this forum to be very helpful in addressing both the physical and mental issues associated with UC.

 

Posted 7/18/2012 3:48 PM (GMT 0)
      Wow!  I feel like crying just reading these posts.  As a former sufferer of UP (no longer because I had surgery in 2010), I can remember feeling despair.  In the beginning, I believe I was ignorant to the fact at just how devastating this disease could be.   You people are soooo young and I can sympathize completely with how you are all feeling.  Yes, there is always someone worse off and that is what I told myself for the twelve years I had the disease, but, that still doesn't erase your own suffering.

      I was 52 when diagnosed and decided on surgery at age 63 (almost 64).  UP was killing me....the disease AND the meds.  I wanted to live another twenty years but NOT with the poor quality of life I was living.

     

Posted 7/18/2012 3:51 PM (GMT 0)
Yes. Sad. Sad and pissed.
Posted 7/18/2012 4:02 PM (GMT 0)
I have definitely cried over this disease. It is awful when I am really flaring and I can't do anything with my 2 little girls. Meds have also not been working so it has been a roller coaster ride trying to find something to work. Keeping fingers crossed that the imuran is finally working and my liver tests will stop bouncing around. I try to keep the attitude and perspective that things could be a lot worse! What you are feeling is normal Stereo... Just try to not let it consume you. Once you let it do that, the disease has won.
Posted 7/18/2012 4:08 PM (GMT 0)
Being in pain really sucks. Even if it's not the worst pain, just constant low grade pain can really tear you up, emotionally.

I have a friend who's a physiatrist. She works with injured vets. She was telling me about a patient who complained over and over again about something really minor - none of his DRs were worried about it because he had much bigger issues going on. Finally she heard his complaints (for maybe the third or fourth time) and realized that a simple change in meds would probably eliminate the problem. She did it, and the patient was so very, very grateful to not be suffering that annoying and debilitating side effect. It totally changed his outlook on his life.

I think that when we are under the weather, inflammatory process is increased, or our appetite is not right, we might not have any specific terrible complaint but overall we are just not happy. And it can make you feel sad. I totally get it.
Posted 7/18/2012 4:12 PM (GMT 0)
Yes, I have cried over this disease. I did so all the time when initially diagnosed but then as I learnt more about the disease and my symptoms, I started to calm down. It still bums me out occasionally but I am at least grateful I have improved.

I also appreciate that the disease has made my diet much healthier and has given me more motivation to eat healthy. The last time I ate any fast food was about 2 years ago. A big difference for me considering I ate it every week pre-UC.
Posted 7/18/2012 4:18 PM (GMT 0)
Huh, I have to say I don't really get emotional. Maybe the first year or two, it bummed me out that I couldn't do certain things- early AM excursions, etc. But overall, no. I actually consider myself pretty lucky to "only" have UC, comparatively. And I too am a fairly negative, glass is half-empty person. Maybe it's the length of time one has UC- I notice that the majority of the ppl. who post Yes were diagnosed within the past 2-3 years. Accepting that I have UC is the only way I can deal with it- why fight? I'm no researcher, I have no desire to "find the cure!", there is absolutely nothing I can do on a personal level to impact the diseases course. It's a lot easier if you accept it.
Posted 7/18/2012 5:50 PM (GMT 0)
conquer..I don't use them nightly, only when I'm flaring...and for 23 years, yes...they help. Middle ages treatment? OK, if you say so.

I would so love for them to work for everyone.

But they don't work for everyone, but for those they do, their soapbox is higher than mine, and with that success, I hope they still continue to make them.   If only all GIs would prescribe them sooner.

What if you tried a quick taper of pred, for 2 weeks, starting at 60 to 0?

Are you on other probiotics rather than just the Kefir?

q

Posted 7/18/2012 6:06 PM (GMT 0)
Absolutely. And every time a flare starts, I go through it all over again.

It's exhausting.
Posted 7/18/2012 10:52 PM (GMT 0)

quincy said...


SomeDude...get over it already! You talk like you're a 90 year old...crotchety old fart. You need those rectal meds to set you straight....and in reality, I doubt there will ever be a cure.

sheesh

q

LOL ! smilewinkgrin
Posted 7/18/2012 11:16 PM (GMT 0)
Sad at times but mainly determined to figure this crap out!! I've always heard that "Life isn't fair" and that is the truth. I have to agree with somedude. I echo his words exactly. The medical community is just too complacent and accepting of the diseases that they don't have an answer for. My son's GI just reiterated that yesterday when he said "UC is a very mysterious disease and we don't know exactly what causes it, but if you have surgery it will be gone". No $%#@, but surgery is a last resort for us. I did amuse him with my comment that we will try " whipworms", "fecal transplant" and everything else out there before surgery. I wonder if he wouldn't try a little harder if that were his 19 year old child with UC? Bet he would! So with that being said, I am my son's advocate and I will keep experimenting and I'll get 100 different opinions if that is what it takes. I will not accept the fact that UC is a mystery and has no cure other than surgery. So mostly I would say that this disease just urks the hell out of me and so do most of the doctors.
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