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Ulcerative Colitis
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Posted 8/4/2012 5:37 AM (GMT 0)
What i seriously don't get is why doesn't the uc go away once the stressor is gone? I mean it would only make sense that once you remove the trigger and take care with your diet then it should resolve..
Posted 8/4/2012 5:58 AM (GMT 0)
Because it's the permanent result of a trigger...it's how the colon has ended up reacting after the trigger has resolved.

q
Posted 8/4/2012 11:43 AM (GMT 0)
I grew up in a family with only the normal small bits of dysfunction, no abuse, no hitting, no belittling. No one in my family has ever had any autoimmune disease that I'm aware of. I guess I'm just the lucky one.

I've decided to look at it as I must be the one who got all this stuff so no one else did. Our minds do struggle to find explanations, don't they?
Posted 8/4/2012 4:49 PM (GMT 0)

quincy said...
Because it's the permanent result of a trigger...it's how the colon has ended up reacting after the trigger has resolved.

q

This is pretty serious statement!

So after our colons have made this permanent change, there must be a way to change it, or trick it back to normal (preUC)
Posted 8/4/2012 5:35 PM (GMT 0)
The hope is to find a way to change our intestines back, and it would most likey be via our immune system which fixing that would in return fix our GI tracts.
Posted 8/4/2012 6:19 PM (GMT 0)

mindoverbutter said...
Stress is huge for me.

At the time of the birth of my UC, I was in an emotionally manipulative relationship. I was just trying to wrap my head around everything my girlfriend was saying and keeping up with the lies. She was brutally insane.

I still can't get her out of my head 2 years later...

So sorry to hear this! It's hard to let things go sometimes. I think it a sign telling us we have something left to learn from it. It was hard giving up my immediate family after my dad passed away...but I always knew the day would come. It just wasn't good timing due to grieving for my dad on top of it. It hard to detach emotionally.

My mom lied to me too..about everything...about loving me, about there being something for me when my dad passed away. I later find out that there was NO will! I just got tired of the lies and figured leaving showed some self respect. We all got to give ourselves a hug once in a while. Don't forget to take care of the person inside you first.

Every night before I go to bed I plat this video on my phone. It helps. youtu.be/sue_ufnvqcs
Posted 8/4/2012 9:19 PM (GMT 0)

mindoverbutter said...
Stress is huge for me.

At the time of the birth of my UC, I was in an emotionally manipulative relationship. I was just trying to wrap my head around everything my girlfriend was saying and keeping up with the lies. She was brutally insane.

I still can't get her out of my head 2 years later...

Hmm, we share that similarity. Although, it helps to move to different places, try different things, go back to school, get a new job, new friends, new surroundings and develop new interests.

On another note, I was also stressed when I was younger. My dad was a little abusive with his words, put my sisters and I down constantly, he was a perfectionist and a hard night-shift worker (which amplified his attitude).. But today its no longer an issue.

I was very shy and nervous when I was younger, not much confidence at all, but once I got away for college I had too much fun, and I think trying a hard drug set me over the edge. I started having GI symptoms right then and there, anxiety, withdrawing from my friends and a relationship... and eventually UC hit hard. I think stress has a lot to do with it for me. I remember in high school I had GI symptoms when I was in my first relationship/breakup, which hit me pretty hard.
Posted 8/4/2012 9:40 PM (GMT 0)
I don't believe anything in our bodies changes permanently until we pass on.
We live with the results of many things but we have the ability to adapt and most of our body tissue is replaced over time.
If theres anything to be learned from this life, it's that nothing is permanent, including emotional and physical scars.
Posted 8/5/2012 12:14 AM (GMT 0)
Do you mean that UC will just go away or that our body will get used to it and it won't eventually bother us?

q
Posted 8/5/2012 2:07 AM (GMT 0)

beatUC said...
I don't believe anything in our bodies changes permanently until we pass on.
We live with the results of many things but we have the ability to adapt and most of our body tissue is replaced over time.
If theres anything to be learned from this life, it's that nothing is permanent, including emotional and physical scars.

Very wrong! nono

I broke my foot at age 12 and currently suffer a bone spur and arthritis. They say physical abuse (broken bones) heals but the emotional side can be damaging for life.
Posted 8/5/2012 7:04 AM (GMT 0)
I don't believe in the idea of 'permanent damage'...the gastro instestinal epithelium renews itself every 2-5 days...there is only a permanenr damage if there is something permanently there causing this damage.
They just haven't found out what it is for UC.

You know my mum, who is a doctor, was telling me how years and years ago like back in the 70s and 80s many people with stomach ulcers would get massive bleeding and would have to have a gastrectomy. Do you ever hear of that now? No never (the only people who have stomachs cut out are usually the ones with cancer).. Because now there are PPIs and antibiotic therapy and nearly everyone with a stomach ulcer can fully recover and live a normal life.
Im hoping the same thing will happen to our disease one day colectomies will be a thing of the past. But we need more attention to this disease.
Posted 8/5/2012 3:55 PM (GMT 0)
I don't think we (who used the word) mentioned permanent d"amage"...we mentioned permanent results...maybe "changes" would be a better word.

That could mean the reaction as well.

The body is very smart and remembers very well....unlearning some reactions or responses can cause prevention, but some changes can adapt to work/function in spite of the alterations that have occurred.



q
Posted 8/5/2012 6:30 PM (GMT 0)
Scars are permanant, including physical and emotional ones...people with CD can get severe scarring in their intestinal tract and that is permanant scarrring.
Posted 8/5/2012 6:43 PM (GMT 0)
Honestly, I believe in myself enough to know that this isnt something that will plague me forever. You can tell your body to do things. I know it sounds silly, but think about it -- how often do you let your mind run wild and fill yourself with all of these emotional doubts? And the more we speak to ourselves in a victimized manner like "Oh I cant do that, I would never be able to make it up that mountain" --only sets the tone for what we allow ourselves to do based on what our minds tell us. The mind is a dangerous thing and can make you go crazy, and the more you tell yourself and others negative things about yourself, the less chance your body has at recovering. Instead I follow my heart, truthfully, and tell my mind to stop thinking about all of those things, unless they are positive. This is just what I think, but I've also explored this through some of my own research and my faith.
Posted 8/5/2012 6:55 PM (GMT 0)
We can't control everything though, and to think that we can is unrealistic and that isn't a healthy way of thinking either...sometimes we just have to accept the things we can't control and make the best of the situation....I can try and "will away" the scars from sores I have on my ankle thanks to my crohn's but realisitically they won't, they might get better, but only so much, afterall, the sores were there for 10 yrs straight so I'm not expecting any miracles.

My CD will plague me forever, as long as I live, if they happen to find a cure for me, that's great, but my emotional scars from living with this disease for over 2 decades will never go away completely.

Everything's a learning experiance....lot's of people find a silver lining in their grey cloud(s), it's all perspective.
Posted 8/5/2012 7:11 PM (GMT 0)

pb4 said...
We can't control everything though, and to think that we can is unrealistic and that isn't a healthy way of thinking either...sometimes we just have to accept the things we can't control and make the best of the situation....I can try and "will away" the scars from sores I have on my ankle thanks to my crohn's but realisitically they won't, they might get better, but only so much, afterall, the sores were there for 10 yrs straight so I'm not expecting any miracles.

My CD will plague me forever, as long as I live, if they happen to find a cure for me, that's great, but my emotional scars from living with this disease for over 2 decades will never go away completely.

Everything's a learning experiance....lot's of people find a silver lining in their grey cloud(s), it's all perspective.

All in bold exemplifies what I'm getting at. My approach is a little different, it sounds, but I have to catch myself before I say or think certain things.
Posted 8/5/2012 9:47 PM (GMT 0)
I find this topic interesting. I also grew up in an abusive situation. My dad was physically, emotionally and verbally abusive. He was also a bully. He basically stopped trying anything with me as a high schooler when I developed a spine and went after him with a baseball bat after he knocked me and my mother down. At that point, I probably would have killed him if he had not locked himself in a room. I was seeing red literally at the time.

I am not sure that stress makes UC develop because I sure should have developed it as a kid or teenager. Or I should have developed it because college was stressful, commuting 2 hours a day, working 40 hour work weeks and taking a full 15-18 hour course load AND still having an active social life. Instead, I developed it as an adult after having two kids and being happily married for 12 years. I believe I developed UC after being felled by a mystery virus. I looked through all my medical records and my symptoms started appearing AFTER "recovering" from the virus, which I caught twice. It took several years before the symptoms became serious enough to warrant serious attention.
Posted 8/5/2012 10:06 PM (GMT 0)
Long term stress can at some point in the future cause health issues...it doesn't happen overnight...besides, researchers feel strongly that it's more likely a combination of environmental triggers that can bring out IBD....stress can definitely make IBD symptoms worse so it's very likely to be linked in some way to IBD along with other illnesses.
Posted 8/5/2012 11:18 PM (GMT 0)
Not sure what triggered mine at age 20 (22 now) Had pretty crap teenage years bullied a lot as I was v overweight (18 stone). Which caused me to shut off from society. Now I am the complete opposite 15 stone ripped model & dancer, but still have extreme anxiety, depression, self-confidence issues, complexes and obsessed about image and appearance.
Posted 8/6/2012 1:04 PM (GMT 0)
Stereo: i like your approach. Reminds me of the law of attraction

The only problem with this approach is finding ways to keep up your faith and optimism when life knocks you hard. I have gotten my hopes up too many times and every time it is harder ot believe that something will work again. You become afraid to put your heart on the line and then get smashed.

But i continue to try new things, believe, and pray. I also try to visualise myself healthy again.
Posted 8/6/2012 4:51 PM (GMT 0)
"But i continue to try new things, believe, and pray. I also try to visualise myself healthy again."

Sometimes that's all we can do...at least it's something!

Let go, Let God!

Thanks for all the supporting in the thread. I really needed a way to get this off my chest and hearing this from others really helped. It's great to know you're not alone.

Group HUG!
Posted 8/6/2012 8:55 PM (GMT 0)
And I will admit, my approach is actually through my faith ;) but no matter what you or anyone believes in, the mind needs to be silenced some times, -- i know it makes me go crazy.
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