after 7yrs Remicade may have stopped working for me; c-diff; suggestions

Hey,

I'm not doing well right now. Just submitted some stool samples to be tested for cdiff, parasites, etc. I've been flaring for 3-4 weeks now. Had remicade last week. Never in the past 7yrs have I had any bad reactions to remicade. Yet, since remicade last week I have had bad nights. At first throw up, now fever, chills and night sweats. Struggling to stay hydrated, eat some food, etc. Oh and top of all this I got my period today. Just adding to my misery.

Has anyone been on remicade with success for a long time and then have it stop working for you? If so, what did you do next?

Also, need some helpful insight about cdiff: how did you know you had it, symptoms, etc. Once you were diagnosed, did you take antibiotics, how long did it take?

Feeling really crappy. Any and all helpful info is GREATLY appreciated.

I found out I had C. diff. a few months before I was diagnosed with UC. I'm not exactly sure what symptoms went with what, but I had lots of diarrhea and urgency, plus blood and mucus. I dropped 25 lbs that I really didn't have the luxury of losing (I've always been thin). The first round of vancomycin didn't help, but in June I was hospitalized and given first Flagyl for a few days and then sent home with a 2 week course of vanco, which finally did in the C. diff. The Flagyl gave me pretty awful D. I also started taking probiotics, which I think helped, and which I continue to take. Now I'm doing a lot better.

I've put back on the weight plus a few pounds, and I'm down to 2, maybe 3 BMs per day that are pretty good (formed but soft).

still feeling horrible.. one thing that helps is tylenol, but first day or 2 i prob exceeded the daily amt. now im trying to tough it out but i'm miserable

any suggestions?

similar story, something funny, anything...

Jay 79. Thank you.
I have submitted stool samples. Anxiously waiting for results.
I still have some flagyl from a few years ago. Do u think there would be any harm if I started taking it without the diagnosis. I keep considering it because it's so tempting

Is Flagyl an anti-biotic? Don't take it unless you have a full set of it! Doctors prescribe a certain amount of it so that it should totally kill off a disease. If you don't take a full course of it, then you start contributing to letting the slightly stronger bacteria in your body survive. That's also why you are supposed to take your entire antibiotic prescription when sick.

also wanted to add: would you be interested in kefir grains? i can send you some if you want to make your own homemade kefir, google it to see why its so beneficial for ucers. i could mail them to you next week, right now im laid up at home recovering from having my gallbladder out

UPDATE-
So I started this post on tues. had issues starting Sunday night. Kept getting worse. Fever, chills, sweating, nausea, vomiting, huge headache that wouldn't go away; debilitating. Thought it was migraine..
Finally, went to walk-in clinic, hoping the dr would prescribe migraine meds...
(before I continue, it sucked at the time but is a lil funny. I had to wait almost an hour to see dr. You all know how dr offices blast AC. So I brought jacket. Had tank top on. It was so embarrassing, but showed the dr first hand I was sick, I was sweating profusely, thru my tank top. Omg I felt so gross and embarrassed.)

So I see dr he runs some labs, then calls me back in and says he has to send me the emergency room. Scary. I even questioned him like is it really something that serious..
Go to ER- got chest X-ray, CT scan, labs, EKG, then a spinal tap.

Turns out because of so many years on remicade & methotrexate my system has been very immunocompromised or immunosuppressant. I had a-symptomatic pneumonia.

So was admitted to hospital last night (thurs night) and may be out Tom (sat evening) fingers crossed.


***oh and because I've seen it posted often. My GI DR is of course, out of town. Of course. Seems to happen to everyone on here so often.