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Ulcerative Colitis
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Posted 8/21/2012 5:46 AM (GMT 0)
Okay, everyone go look at the main forum intro page, and compare the number of our UC topics and posts to every other group on this site:

www.healingwell.com/community/default.aspx?c=4

If HealingWell was a game, we would totally win. smilewinkgrin

On a completely unrelated note (okay, it actually is slightly related)... HealingWell forums needs a mobile app. turn

LOL! I decided this just now while I was sitting on the john trying to see and reply to everyone's posts via the tiny browser on my phone.


-R.
Posted 8/21/2012 6:03 AM (GMT 0)
Yes i noticed that before...either we have the most life-disruptive disease OR we are the most vocal about our disease. Or both..
Posted 8/21/2012 12:20 PM (GMT 0)

my opinion is that we get to monitor our condition in a truly unique way....every day we poop is a new adventure!  We have more updates into how we are doing that people with other conditions.  UC is a sneaky ******, you can be truckin along doing your thing , feeling great, taking your meds, avoiding all the tasty bad for you food and then...boom... blood or mucus etc.

i popped over to the gerd board a couple times to ask a couple questions and they werent nearly as nice as they are here.  questions werent answered with as much patience.  i think its a really nice, helpful group here so it keeps people coming back and it makes you feel comfortable asking questions.

agree about the mobile app.

btw, how are you feeling bootstrap? did you ever see that specialist to talk about the next step?

Posted 8/21/2012 12:20 PM (GMT 0)
Lol, we used to be #2 - Crohn's being #1

It kind of saddens me though - to see so many new "faces" here on the Uc forum.
Posted 8/21/2012 2:38 PM (GMT 0)
Coffee- I have an appointment with a GI @UCSF for the 27th, and will be calling in today to see if my referral has gone through yet to make an appointment with the surgeon there as well. Trying to be patient... keeping things somewhat tolerable with my diet. If I eat the wrong thing, though, I'm in some serious hell.
Posted 8/21/2012 4:03 PM (GMT 0)
We still arent sure whether my bf has UC or crohns but either way i plan to stay here because the people are so nice and understanding(:
Posted 8/21/2012 10:26 PM (GMT 0)
MYBF,

checking in??

how r u guys??

any RELIEF yet??

moving?

take care:)

Posted 8/22/2012 3:31 AM (GMT 0)
I am not surprised at all the the UC forum is the most active. It has truly been a blessing for me. Seriously, who else wants to hear about all of our crap (literally). It's such an embarrassing yet serious illness. My son has Type 1 Diabetes (he is 18 and was diagnosed at 6)...no problem talking about that, but since my UC got bad this past April, this has been the only place where I can turn. Oh, not totally true..I was talking to my Dad, who told me he had UC (I never knew). He's been in remission for 6 years and takes 1 lialda a day. That's it. It was probably the most empathetic conversation we've had (I moved 1/2 way across the country for college and never went "home") He actually got it. So, that makes him and all of you. Thank you so much. I am learning so much from all of you. :)
Posted 8/22/2012 12:55 PM (GMT 0)
For many years I avoided talking about my UC because most people did not want to hear my "tale of woe" and some thought I was exaggerating. It was also inconvenient for some that I had to be near a restroom when we went out.
I was always apologizing.

After finding this forum and communicating openly about very private issues, I now have no trouble explaining any limitations I may have. I have also adopted a different attitude.
If it isn't "convenient" for some so-called friends, too bad.
I now socialize with people who understand that I didn't choose to have this disease.

This forum is a Godsend for many. :-)
Posted 8/22/2012 1:09 PM (GMT 0)

ItsAlwaysSomething said...

If it isn't "convenient" for some so-called friends, too bad.
I now socialize with people who understand that I didn't choose to have this disease.

This forum is a Godsend for many. :-)


I couldn't agree more.

In the beginning I was very shy and some would pick on me because I had to take a break from work just to go use the restroom. They would say very mean comments. Today I would say something back. Speaking with others openly who can relate really helps.

And yes, this forum is full with wonderful people :-)
Posted 8/22/2012 2:42 PM (GMT 0)
I remember when Crohn's was the top too. As much as it's unfortunate to see so many people struggling with UC, I am thankful that we have each other - of course I wish none of us were dealing with this awful illness.
Posted 8/23/2012 2:52 PM (GMT 0)

I have not been on here in ages, but when I had to be on everyday, searching for answers, you all were so kind and helpful. There is so much valuable information shared, and although the topic itself is kind of personal, everyone shares their stories. To a Mom, who was searching for information, this site was amazing.  Anyway, my son is almost 22, and has been completely UC free for over 3 years.  He began his senior year in college today!  Yesterday, he was prescribed Cephalaxin for an infected hair follicle, so I came on to resarch the possible effects of the antibiotic.  Also, he has had Molluscum, and I guess he is getting that from the 6mp lowering his immune system.  But, no UC. Yay!!!

Take care y'all!!

Martha

Posted 8/24/2012 12:35 AM (GMT 0)
I've been thinking we need for personalization for each member of this forum. Our own little pictures and icons or name plates, with birthdays and other junk. lol Ofcourse then I would never get off of here.
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