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Got CAMEL Milk?

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Posted 8/20/2011 7:40 PM (GMT 0)
I personally don't buy it - cures autism??? Crohn's? It reminds me of the claims of that overpriced Aloe Vera that doesn't provide much benefit.

I would be interested to see someone try it but it sounds like expensive snake oil to me.

Dr Hinkle isn't even an MD.
Posted 8/20/2011 11:22 PM (GMT 0)
Indeed indeed. I tried aloe vera (serovera in particular) for quite a while, and discovered it was actually making me much worse.

I can't imagine this would harm anybody, but whether it is as beneficial as it seems is up in the air. Only way is to try it. If I could get it legally, I would try it in a heartbeat. Nothing to lose but your disease and a few bucks :-)
Posted 8/21/2011 1:06 AM (GMT 0)
 

I'm on my second day of camel milk now. I think it tastes like regular milk, at least the way I remember it tasting - I haven't had regular milk in ages...

My first day was a little rough - I found it hard on my stomach, just the way regular milk used to be for me.

But then I started taking it right after taking my slippery elm powder mixture, and had no more problems with it being "hard on the stomach". Other than that, things are going well.

I'll keep you posted.

 

Posted 8/21/2011 1:24 AM (GMT 0)
InSoFl, aren't you feeling pretty good with LDN and supplements? I thought you were nearly in remission (or in remisison)..
Posted 8/21/2011 1:31 AM (GMT 0)
notsosicklygirl,

Yes, I am feeling pretty well with the LDN and supplements, but my main diet is still only protein. Yes I am in remission, however I would like to be able to eat like a normal human being... maybe that's too much to ask for, haha?

I'm still searching for the ultimate CURE, and I'm hoping this is it for me.

I've read lots about it helping kids with food allergies, crohns patients being cured, etc...
So, I'm hoping it will be that for me too... call me a dreamer, perhaps...

Is it too much to ask for, do you think?

Posted 8/21/2011 3:26 AM (GMT 0)
I don't think it's too much to ask.

Hopefully the camel milk helps.

I eat whatever I want but I am on 6mp. I don't think 6mp is helping me too much, I was on it for a year without any stability. I just became stable about a month ago out of the blue. I haven't started any new UC mediications. I have no idea why my UC is behaving better than it has in years all of the sudden. I am hopeful that things stay calm. I would like to stop 6mp if it's not doing anything for me but I am scared if I stop, what if I get symptoms again? sometimes you can't tell what is the key to keeping things at bay.
Posted 8/21/2011 5:18 AM (GMT 0)
Keep us posted indeed InSoFla :-) The pioneer as always!
Posted 8/21/2011 11:59 AM (GMT 0)
notsosicklygirl,

Do you think the pristiq is what's keeping all the symptoms at bay?

I understand about not wanting to shift things and take a chance on getting worse.

I hope you keep doing well :-) .

Posted 8/21/2011 2:17 PM (GMT 0)
notsosicklygirl,

I'm sorry... re-reading my answer to you, and I didn't mean to sound rough. My frustration and anger is directed at UC, and not you.

Even though I am in remission with the LDN, I feel so frustrated and angry at this disease and how it has affected so many lives, dashed so many hopes and dreams...

All I want for myself and for others is not to be a prisoner of their colons...albeit the dreamer in me keeps looking for the CURE.

Please forgive me for sounding rough to you.

Posted 8/21/2011 3:25 PM (GMT 0)
No worries. I completely understand. I have been battling this illness for 5 years now and I know how frustrating it is. I barely ever had any stability for years at a time. I've been so stressed out that things will get worse, I can't focus on anything except my health sometimes, it's very scary. I do think the Pristiq may be what has helped to push me over the hump. As I said, I am a big worrier and I think it has helped to ease my concerns. As with all medications, I've heard that these types of medications are not effective forever. All I can hope for at this point is to get a long remission out of whatever is helping. If that fails, and I know it could at any moment, I will be back to the drawing board. I am happy you're trying to find some statistics for LDN through asking members. It would be nice to get an idea of what % of people are doing well with it and how many had to drastically change their diet to see results. I would definitely give it a try along with diet modification but I am hopeful that things stay stable for a while. I will try to avoid doctors for as long as I can... I was going too much when I was sick.
Posted 8/21/2011 4:29 PM (GMT 0)
notsosicklygirl,

Thanks.

Yes, I agree about staying away from doctors too...lol

Posted 12/9/2011 3:14 AM (GMT 0)
I am following this - very interested. I'm starting to believe more and more this is bacteria related. I would try it too if I could get my hands on it. Let's think of it this way. What is worse, some milk, or a pill specifically designed to shut down parts of your body and cancer risks all over the fact sheets.

Easy answer - Got any cookies to go with the milk??

Great Thread - keep us posted if it actually gets tried
Posted 12/12/2011 1:17 PM (GMT 0)
Lori888,

Camel milk powder gets through customs fine, now that's very interesting.

Are you using it? How? And what have your results been?

Posted 12/12/2011 8:34 PM (GMT 0)
InSo, Lori888 was a spammer. So I thought I would let you know why you don't get a response. :)
Posted 12/13/2011 12:19 AM (GMT 0)
Red_34,

Thanks for letting me know.

How have you been feeling?

Posted 12/13/2011 2:28 AM (GMT 0)
Not too bad. I had a blip for a few days but I seem to be stabilizing again.
Posted 12/13/2011 12:43 PM (GMT 0)
Red_34,

Glad to hear you're stabilizing.

Can you attribute the blip to anything in particular?

Posted 12/13/2011 12:53 PM (GMT 0)
Not a clue. I think that my Remi is starting to wear off and I'm not due for my next infusion until the 28th. So I'm hoping I can hold on for the holidays.
Posted 12/13/2011 12:56 PM (GMT 0)
Red_34,

I hope you can hold off until after the holidays too.

Posted 12/15/2011 7:48 PM (GMT 0)
How's the Camel Milk working out for all of you who are trying it? I realise it's still too early to tell of its effects, but an update would be appreciated :)
Posted 12/16/2011 12:22 PM (GMT 0)
gavin92,

I've read some amazing anecdotal stories about how it's helped people with UC, Crohn's, and especially Autistic kids too. DId you know that there's a huge correlation between IBD and autistic kids? I found that fascinating.

Anyway, to answer your question: even though I was in remission with the LDN, I found my diet to be very restrictive still: only proteins.

What camel milk did for me was to enable me tolerate a wide range of foods without problems. I've read  studies on how kids with food allergies are cured of them once they've completed their camel milk treatment (over many, many months).

I would certainly highly recommend camel milk to anyone, and especially if they are on  LDN and still not able to expand their diet enough as I did. However, many folks have had success with LDN putting them in full remission and being able to enjoy a full range of foods without any issues, unfortunately I was not one of them.


 

Posted 9/24/2012 5:17 AM (GMT 0)
I put together a post on the latest research & patient reports (hat tip to InSoFla!) on camel's milk for autoimmune disease, including autism, crohns, lyme, me/cfs:

blog.healclick.com/camels-milk-for-autoimmune-disease-buy-or-sell/blog.healclick.com/camels-milk-for-autoimmune-disease-buy-or-sell/
Posted 9/24/2012 5:20 AM (GMT 0)
For those with yeast issues, it seems that camel's milk may exacerbate this. Interestingly, I've heard from a few ME/CFS patients where LDN also cause yeast flareups. One theory for why is that LDN suppresses TH17. Although upregulation of TH17 has been implicated as a key mechanism in autoimmune diseases, TH17 also plays a role as a natural defense against candida. For every reaction there's a reaction, and this is also true when we tinker with an immune system which we'll never fully understand.
Posted 9/24/2012 11:33 AM (GMT 0)
Camel milk is rich in iron and vitamins, it protects the people from vitamin deficiency symptoms, results in healthy life. In Asia and Africa camel milk is considered as a natural remedy for health benefits.
Posted 9/26/2012 8:35 PM (GMT 0)
I have no doubt camel milk is a health food. Question is whether the medicinal hype is actually justified.

Besides the hype however, the way I look at it, many w/leaky gut syndrome can't tolerate any dairy, including SCD legal goat milk. Camel's milk may end up being a tolerable source of dairy for these folks.
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