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SCDers - first day fever?

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Ulcerative Colitis
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Posted 10/14/2012 8:17 PM (GMT 0)
Hi all. I'm trying SCD again -- tried it once before when I was first diagnosed, but I ended up needing to go on pred so I didn't keep up with it. I was also diagnosed with SIBO recently so trying SCD seemed like a good idea.

Normally I do eat a LOT of grains and starches -- bread or rice or potatoes with every meal -- since I find it helps a tiny bit with binding things up (not much though - usually have 4-5 very loose BMs per day).

I started SCD intro today and so far I've had 5 completely liquid BMs -- the last one was even kind of clear like you would see during a colonoscopy prep. I'm also running a low fever. Even though I was flaring a lot worse the first time I tried SCD, I didn't react like this. I wonder if it's because I didn't eat as much grains/starches before?

I read that this can be a "die off" reaction. Did anyone experience something similar? I admit I'm a little nervous and considering calling my doctor or eating a slice of bread!


dx'ed UC pancolitis 5/12 w/ moderate-severe inflammation; scope 9/12 shows pancolitis with mild inflammation
past meds: asacol hd, prednisone, VSL#3, cipro, apriso
current meds: cortifoam, rowasa, pentasa, xifaxan, cholestyramine
Posted 10/14/2012 8:31 PM (GMT 0)
your body is just detoxing so i wouldn't worry. you are doing something different with your body and it's just reacting.
i remember when i started a raw foods diet my body detoxed for six months!

what did you eat today?

also, what test did you get done for SIBO? my doctors have never mentioned this to me, but i have read about it.
Posted 10/14/2012 8:47 PM (GMT 0)
hey joanna! so far today i've had farmer cheese, grape juice, and a big bowl of the SCD chicken soup (just shredded chicken, broth, and pureed carrots). i'm going to make hamburger patties and have two for dinner. it is so hard to get enough calories on the intro diet -- i checked and all of that is less than 1000 calories! i'm pretty small though so it should be OK short term.

i had a breath test done for SIBO. it is pretty interesting -- you eat a special diet for the day prior (i don't remember all the rules but i think i had plain chicken and white rice for every meal). the day of the test you drink a special liquid (some kind of sugar solution), then a nurse collects your breath (you breathe into a tube) every 20 minutes for three hours. depending on how much bacteria you have in your gut, they'll excrete different kinds of gas while they're digesting the sugar from the liquid. i tested positive even though i was taking antibiotics at the time, so my doctor said i probably have a pretty severe case. of course my doctor just prescribed different antibiotics and didn't mention ANYTHING about how diet could be involved... sigh
Posted 10/14/2012 8:58 PM (GMT 0)
do you usually eat cheese and grape juice or is it just something you added since starting SCD? i don't think the soup could be a problem at all but maybe the dairy. i don't do any dairy because of all the GI problems i get from it. i started eating meat the day i began SCD/paleo and i noticed a lot of really smelly gas and diarrhea. it let up after a week or two but i'm pretty sure it was because i was introducing new foods.

i'll have to ask my doctor about that breath test. did you see a naturopath or a regular GI doctor? have the antibiotics helped at all? i noticed antibiotics help me when i'm flaring, but it's a vicious cycle of killing all the bacteria and trying to take enough probiotics before the bad ones take over again.

also, when you can, you MUST make the SCD meatloaf. i made it a few weeks ago and it is awesome! literally the best meatloaf i've ever made. the veggies are all pureed before you mix them with the meat so it's easier to digest.
Posted 10/14/2012 9:06 PM (GMT 0)
interesting, that meatloaf sounds awesome! when i was on pred i used to make mini meatloaves in a muffin tin with chopped veggies but i won't even risk that nowadays.

i see a regular GI doctor. i used to see a local doctor who was really nice but after i failed prednisone it seemed like she wasn't that "interested" in figurings things out, just rushing me onto remicade, so i switched to a more well known/academic doctor who is also a professor. antibiotics, cipro especially, help me too but only while i'm on them, there's no lasting effect. in the first two days after i started xifaxan to treat the SIBO i saw an improvement, then backslid. i'm still better on the xifaxan than i was before (my stools are still really liquidy, but i don't have debilitating pain anymore) but it hasn't been the miracle i was hoping for.

i typically do eat cheese but usually no juices. did you ever try the SCD yogurt? i'm kind of scared of the idea of homemade probiotics!
Posted 10/14/2012 9:21 PM (GMT 0)
i've noticed every doctor has such a different protocol of what they want to do. i've seen like 4 GI docs in the past two years, and for my first flare, my doctor (i'm not even kidding) put me on cipro, flagyl, prednisone, 6mp, canasa, remicade, prilosec, and zofran all within a 10 day period. i had no clue what i was doing or really anything about the disease so i just figured this was normal. looking back on it, i am so upset that my doctor took advantage of me like that- he's one of the "best" in pittsburgh. i still have no idea which medicine was helping and what was causing all my horrendous side effects.

i haven't tried the SCD yogurt. i'm doing a SCD/paleo/FODMAPS combo and eating the foods that all of the diets agree on- which isn't a lot haha i just figured i'd have my best change of getting better that way. since dairy isn't allowed on paleo or FODMAPS, i figured it would be best if i avoided it all together. i'd be scared of making my own yogurt, too, just because you have to let it get warm and i'd probably screw it up or my dog would eat it.
Posted 10/15/2012 5:06 AM (GMT 0)
Hey I'm not on scd anymore but was for a year. Kudos cause it is HARD to sacrifice all that sugary food. I had different symptoms when I first started that I attribute to die off but I'd say if it doesn't last more than a few days its just your body adjusting and you're fine. Also when I was going on it I had trouble having bowel movements (I swing between diarrhea and constipation) which I thought was because I wasn't getting my normal fiber, but it only lasted a few days and the same exact thing happened when I started to eat carbs again. I would say get through the first few days before u worry- unless your fever goes way up.
Posted 10/15/2012 5:06 AM (GMT 0)
Hey I'm not on scd anymore but was for a year. Kudos cause it is HARD to sacrifice all that sugary food. I had different symptoms when I first started that I attribute to die off but I'd say if it doesn't last more than a few days its just your body adjusting and you're fine. Also when I was going on it I had trouble having bowel movements (I swing between diarrhea and constipation) which I thought was because I wasn't getting my normal fiber, but it only lasted a few days and the same exact thing happened when I started to eat carbs again. I would say get through the first few days before u worry- unless your fever goes way up.
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