fruitgirl said...
I don't really think Remicade is like that, nor any other UC medication. Sure, if you have underlying food issues, then you should still probably avoid those foods when on Remicade. But I haven't needed to change my diet due to UC (although I'm not arguing that some do) and have been in remission for over three years. I mean, there are so many foods that people with UC have to avoid, that it's hard to know what to avoid if you're not having any symptoms. I've had people suggest I need to change my diet (which is far healthier than the "SAD"), but how would I know what to eat/not eat in my current situation?
I am not suggesting you need to go on some SCD diet or whatever but like i said before if I had the power of hindsight and knew then what I know now I think I'd be alot better off. I had myself in remission for over a year with just diet and i got cocky and started drinking alcohol and soda again and "boom" right back into flare. FInally found Remicade which was a god send and thought I could do and eat whatever i wanted again and 9 months later it stops working for me. Now when I say "whatever I want" I still was not eating fast food cuz I think that stuff is aweful anyway but I did not learn my lesson regarding alcohol and certain trigger foods for me. I wish I wou dhave avoided alcohol and those trigger foods, I also wish I had known abut probiotics, slippery elm and L-Glutamine back then. I didn't know anything about those supplemetns back then, I think had I avoided alcohol and some of my trigger foods and added those healthy supplement back then while I was in remission I might have been able to stay in remission rather than thinking those meds were just curing everything. They weren't, they were keeping symptoms under control and in some ways masking the disease but not "curing" but maybe through proper diet and those health yhealing supplements I could have stayed in remission and even healed my colon with time, the longer in remission the longer your colon can properly heal, may be "not cured" but close enough. Just sayin I think it's sound advice that just because a med starts helping doesn't mean you should fall back in to old patterns, it's a lesson I believe I have learned the hard way and now it may be too late for me as I face the nightmare that is the surgery decision....