Posted 11/19/2012 10:51 AM (GMT 0)
Lodi,
I have had UC for over a decade and have also experienced similar problems with dysuria/incontinence for several year, probably at least as long as I have had UC. It seems like it has gotten progressively worse over the last 10 years or so. At first I thought I had a UTI, sometimes it would burn terribly when I peed, but then that symptom would disappear usually disappear within a few hours after it occurred. It would often feel like I would have pee 5 minutes after I just went. Sometimes, it is extremely difficult to hold it in, or once I get the to the bathroom it takes forever to feel like I have finished peeing and many times it feels like I still had to pee and have to wait there for the last few drops that seem like they take forever to come out.
I have been tested for UTI's several times and none have ever come back positive, CAT scans have always been negative as well, recently also have had my prostate checked again and it's still normal.
I know it's hard not to feel like a hypochondriac, I felt the same way. I have all kinds of symptoms that are seemingly unrelated to UC, but you regardless it's important to mention all of these symptoms to your doctor. There are a lot of co-morbid disease associated with UC. In my case, all these symptoms finally led to a diagnosis of Acute Intermittent Porphyria which has a known association with some cases of UC.