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Ulcerative Colitis
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Posted 11/22/2012 3:41 PM (GMT 0)
hi
im so glad to see this website,i thought its just me having these problems,and i waana thank my boyfriend to show me this ..
im 21 yrs and having UC about 2 yrs ,and i used asacol 400 2 in a day, but about 1 week ago it get worse (having blood alot and dirriah every min) and i went to dr and did a colonscopy , now i am on 40 mg prednisone, use enema and asacol 800 3 in a day and feel beter..but i was so scare i dont know where its come from and how does it occur?I'm not feeling very confident!
plz help me about what to do , diet , how to deal with this situation !!??i have to study alot but i cant !!!
Posted 11/22/2012 4:00 PM (GMT 0)
Welcome to the forum!

First peice of info. We dont know where the hell it comes from. We just try to manage it. Though we guess its our immune system killing itself and we think its genetic. You colon gets inflammed then you get ulcers then the break then blood and all that fun stuff.

Dont get too dependent on the prednisone. I can see youre too concerned about studying and I am concerned you will be hooked on it so you dont have to worry about not having time to study.

Im not a diet person ill let others help.

Hope youre getting better though!
Posted 11/22/2012 4:23 PM (GMT 0)
Ulcerative colitis is a disease of remissions, where most or all symptoms go away, and flares, where they symptoms come back and we get sick again. The goal of medications is to extend the length of the remission periods as long as possible. When we do have a flare, the most common intervention is oral steroids and rectal medications added to our usual treatment, so it sounds as if your doctor is on the right track.

Some people feel their flares are triggered by stress, or specific foods, or illness, or antibiotics or even other things. This is different for all of us, and many of us can't relate our flares to anything we have or haven't done.

You'll probably get a lot of diet suggestions. Try these if you wish because different things help different people. It is a good idea to keep a diet diary where you record what you eat and what your symptoms are in the next few days. Over a period of months this may show you some specific foods that bother you.

Simply put, there are a lot of theories about what causes UC and what makes it flare up, but the causes haven't really been proven. So try different things if you wish, but please do yourself a favor and keep taking your medication even if you are in remission.
Posted 11/22/2012 4:35 PM (GMT 0)
Hello a.b and welcome to the forum.

I'm so sorry you have this awful disease. Studying is hard enough without u/c. and I can relate to that. It sounds like you have a supportive boyfriend which is wonderful:)

As far as diet: you could try the Specific Carbohydrate Diet or SCD. You can google it and buy the book "breaking the Vicious Cycle". Basically you eliminate all wheat, gluten, sugar, starches etc. Some people see a reduction in blood within 3 days and end up in remission. Sadly it didn't work for me but I would absolutely try it if I were in your shoes. It's very restrictive at first and a bit overwhelming. My suggestion is to read the book, the make a menu plan, shop and then start. Trying to do everything as you read was a bit too overwhelming.

Right now you can try plain foods such as eggs, soups, rice, bananas, yogurt. But also keep a food diary to see what foods you react to.

Wishing you all the best.
Posted 11/22/2012 5:16 PM (GMT 0)
all good advice above. probiotics may also be a good idea.
Posted 11/23/2012 12:16 PM (GMT 0)
Prednisone, Asacol and enemas are exactly what I was on when I flared badly the first time.  It might take a little time but it usually works.  If you are still having problems, the diet recommendations are probably good.  You could have sensitivity to certain foods unrelated to UC.  Mary

 

Posted 11/23/2012 12:50 PM (GMT 0)
Thank you all so much

i want my normal life back..
i want to go on vacation and my UC symptoms disappear...:(
Posted 11/23/2012 12:53 PM (GMT 0)
dear Scarecrow
can u tell me what are these herbs that help you get better ?
Posted 11/23/2012 7:05 PM (GMT 0)
a.b,
You feel better now because of perdnisone.When you taper it down and if the symptoms return then watch your intake. Keep a food journal.Being a student,following 100% scd,or paleo diet will be too much for you as you have to cook everything-nothing processed is allowed and no grains.If you are ready to take this challange then it's a very healthy alternative.Lots of information/blogs/recipes is available on the net. Otherwise, the best is to eliminate the most inflammatory foods like dairy,sugar and gluten.Many people benefit by just being gluten free.If my daughter(uc-pan colitis-follows SCD diet) flares again my first take will be fecal transplant.Check it out in this forum- there are many success stories.
Posted 11/23/2012 8:13 PM (GMT 0)
Bloom93
Thank you for your info..
But i dont know what you mean about fecal transplant that you said?
Posted 11/23/2012 9:00 PM (GMT 0)
Keep a food diary.
Posted 11/23/2012 9:56 PM (GMT 0)
a.b,

Fecal transplant is an alternative therapy. It's an FDA approved treatment for C. diff infection and last year's annual GI conference highlight was about fecal bacteriotherapy treatment for IBD. It's transplanting a healthy donor's stool into patient's colon. This is based on the context there is an imbalance of bacterial flora in many of IBD patients. So by transplanting a normal flora we can reestablish the bacterial balance. Many GI's though aware of it are not willing to practice it as it's not approved by FDI for IBD. If you can override the" Ick" factor ,there are many home fecal transplant protocols. Educate yourself  before deciding  and there are few recent success postings in this forum .Check it out.

 

Posted 11/23/2012 10:15 PM (GMT 0)
A.B., sorry to hear about your troubles. This disease presents us with a major challenge and can cause a great deal of suffering. Not knowing what to expect, not knowing what will work, and lack of good info from health care providers makes it even more frustrating. For me, it took several trips to a therapist to get my head around the fact that I've got this thing for the rest of my life and would have to learn to deal with it. Know that you're no alone in having to deal with it. There are family, friends, and health care people all willing to help you. Seek out as much info as you can about your disease. I got two second opinions, input from my PCP, saw a naturopath, and read a lot of material. Be willing to try things to see if they will help. Some will and some won't. I started out on Asacol, which by itself didn't seem to do anything. I tried immunosupressants and biologics which caused me more problems. After about 2 years on and off Prednisone, I found that rectal therapy (enamas and Canasa) helped a lot, probiotics (VSL#3) helped, diet changes helped a lot, LDN helped, Slippery Elm helped, along with some supplements. I still have some challenging days if I'm not careful with my diet, but I've got it to where its manageable. I've had to adjust my lifestyle (no early morning travel, scout out bathrooms) but I'm able to live my life. I'm hoping you find the solutions that will work for you. This is a good forum to ask for info and to learn from others.
Posted 11/24/2012 10:08 AM (GMT 0)
Thank you so much..
your info really helped me..
but At first my mind have to deal with it,
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