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Is it a flare?

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Ulcerative Colitis
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Posted 12/3/2012 12:26 AM (GMT 0)
Ok since being diagnosed in April, I have had two flares. The last one was August, most severe.
I started seeing minor blood a week ago and now starting to see mucous. I am getting freaked out. I started the enemas again and now tonight I started the cort enemas. My stomach has been feeling mildly crampy and I have had horrific gerd.

I think I will call my GI and see if I should up the LIALDA. I am definitely nervous!!
Posted 12/3/2012 12:33 AM (GMT 0)
Yep. You are starting to flare again. How much Lialda are you taking now?
Posted 12/3/2012 12:39 AM (GMT 0)
I am taking 2 Lialda a day. The crazy thing with me is that my bm's have been slow...whereas I was going 1 every day or two but last week I went 4 days without one.

Also I have really bad gerd??
Posted 12/3/2012 12:40 AM (GMT 0)
Says your taking 4.8 grams Lialda. That is the maximum dose. If your doing the enemas you should start seeing improvement. I would never stop the enemas completely but taper down to every other night and then down to two or three times a week. Are you also on pred right now too?
Posted 12/3/2012 12:55 AM (GMT 0)
I thought I fixed my sig...I am on 2 Lialda 1.2 grams each..half of max dose. My doc told me to cut it down in October. I finished pred om 9-9-12 with additional 15lbs!!
He also told me I could stop the enemas....wish I didn't. Is it possible to keep this from going into a full blown flare?
Posted 12/3/2012 1:05 AM (GMT 0)
Yes I think you can. Up the Lialda back to the 4 pills a day and do those enemas nightly or twice a day if you can. When I get any kind of symptom returning I bump my Lialda back up and do the enemas. I have halted symptoms from antibiotics a couple of times this year. Just stick with it and once all your symtoms are gone do the enemas nightly for at least another week. Don't go completely off of them even though you may want to. My GI knows I kinda play with my meds depending on how I feel and that they can vary. She still prescribes the maximum amount so that if I need it I have it.

Don't you just hate that pred weight? I hope to never go on it again. I gain weight just thinking about pred.
Posted 12/3/2012 1:05 AM (GMT 0)
Are you still taking the protonix too for the gerd?
Posted 12/3/2012 1:12 AM (GMT 0)
Yes still on protonix... But I had stopped it for a bit since I was doing well Should I do the cort enemas now and when things improve do the regular ones?
Posted 12/3/2012 7:12 AM (GMT 0)
I wouldn't up the Lialda to 4 daily at this point...

You say you started the enemas...do you mean you're back up to 2 steroid or do you have mesalamine as well?

When you had the constipation issues....that's when you should have started nightly enemas.

The stomach discomfort, for some reason, is a symptom of low in the rectum inflammation. Must have something to do with slower peristalsis or spasming or whatever.

Try not to freak at this time....you do have the medication to treat.

Do you have probiotics as well?

q
Posted 12/3/2012 1:47 PM (GMT 0)
mybellyhurts,

You could also try some slippery elm powder - it would help coat the whole intestinal tract, and is  GREAT for Gerd too! Kind of getting 2 for the same buck...

Are you on any probiotics?

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