How to make it between infusions?

So far I have had 3 Remicade infusions, 1st one, one 2 weeks later, and one 4 weeks later.
Initially I seemed to see some improvement each time, though I was tapering down from 40mg of prednisone. Now I am down to 15-10 trying to stay functional.

I am about 2 weeks away from my 6 week dose, but have started up with pretty bad urgency and frequency again and overall feeling not very well. Pretty much flare like. I'm hoping I'm still in the loading phase as I hear it takes some people 4-5 infusions to see if they'll get remission.

Anyone have any tips on how to make it through those last days/weeks before the next infusion with just jumping up on the steroids again?

I hope you see improvement after you have a few more infusions. Sadly, I think the effectiveness of Remicade is only about 60-70% and Humira is under 50%. I am not sure about those statistics so don't take this as truth but what I am saying is that nothing seems to work for everyone and some have immediate results while others take longer to respond. Have you tried 6mp or imuran? They take a long time to provide results but they can be very helpful for some people. Try to keep thinking positive, you will get better.

Finished my 3rd two weeks ago. Im also tapering pred (on 20 now). and have doubts ill make it the 8 weeks. GI says he can change it up to 6 weeks or increase my dose if need be or even have an emergency rescue dose. Lotsa options for me.

sounds kind of like what happened to me, took me a full 6 months to reach remission w/remicade. I would flare up a couple of weeks before my next dose and sometimes it would take a week to kick in after it. Also, when I got off pred 2 months after starting remicade, I flared up then too. I needed to get off pred and there wasn't much else I could do, I just tried to live with the symptoms the best I could (bathroom avg 8x a day, cramping and blood, my worst pre-remicade was upwards of 25 x a day), though for me the mental part was much more difficult. If you are seeing results that is positive. I would take 5 steps forward and 3 steps back for about 5 months.

Right before I got better my GI wanted to talk about upping my dose and/or decreasing the intervals to 6 weeks.

I also avoided caffeine and acidic fruits, those seemed to increase my symptoms.

I just had my 4th loading dose moved up a week, so itll have been 5 weeks instead of 6. Hopefully this will move me in the right direction. After this I'll head back to GI doc and see if I need to go at 6 week intervals or up my dose. My weight fluctuated a lot during the past few months so maybe my dose needs to be adjusted.

Now tonight I have a low fever around 100 and chills, and feel pretty blah. It's cold outside and I'm having trouble feeling warm. I figure this could be from my flare, or maybe a stomach bug. Since I'm still on Prednisone, think I should still get my Remicade infusion on Friday? I will of course ask my doctor first, but does anyone else have any similar experience?