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Remission from Enemas+ Canasa

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Ulcerative Colitis
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Posted 12/17/2012 5:14 PM (GMT 0)
Hello-

I am new to this site, but suffered from UC for 10yrs. I have been on everything out there except humira. I was lucky enough to experience remission once and it lasted for 2 yrs. I am currently in my first flare since remission and it totally sucks. As of now, my disease is only showing up as proctisis. (thank goodness) My dr has me back on enemas every night. (alternating rowasa & cortisone) And, I am doing canasa and cortifoam during the day. In addition, I am on the highest doses of 5ASA and 6MP. And, predisone at the moment.

I guess my question is has anyone really gone into remission doing enemas and suppositories? If so how long did it take? I am gettng impatient. Afterall, I have been putting stuff up my butt 3x a day for 4 months.

I have done enemas for months on end without any success. This time we added canasa. I have only been using it for 4 weeks.

Any thoughts or advice? I am trying to remain optimistic.

Posted 12/17/2012 7:47 PM (GMT 0)
Have you had any progress at all?
Posted 12/18/2012 8:24 PM (GMT 0)
I have had some progress. I am not bleeding every day, but I am still bleeding a few times a week. And sometimes my stool is formed. I am on 20mg of predisone still. So, I am not sure if it is the predisone that is working or the topicals. I am scared to taper.
Posted 12/18/2012 11:49 PM (GMT 0)
Butterfly03
Welcome to the forum.
Have you considered diet changes? I found that going lactose and gluten free made a big difference.
Do you take probiotics?
I've never taken Prednisone or anything "heavier" than Colazal generic (balsalazide), mesalamine enemas and a few corticosteroid enemas. With all the meds you're taking, it seems you should see some improvement. So....I'm thinking you need to look beyond the meds to feel better.
From what I read in posts, the heavy duty meds seem to mask the symptoms for a while, then become ineffective.

Have you considered trying LDN? Check out InSoFla's posts on the subject.
Posted 12/19/2012 12:00 AM (GMT 0)
Butterfly,

Welcome to the forum.

It's great that you were able to achieve remission for so long, sorry you're now experiencing a flare.

I agree with IAS, for many of us, there are a variety of things that work in combination:

diet modification as in going gluten and dairy free, adding certain supplements like probiotics, slippery elm, L-Glutamine, and then LDN, low dose naltrexone.

By all means keep on with the meds, and I hope they'll start relieving your symptoms, but the prednisone may be having some temporary effect as well.

If you are interested, there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

 

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