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TEDxEast - Ari Meisel Beats Crohn's Disease

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Ulcerative Colitis
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Posted 1/25/2013 8:55 PM (GMT 0)
Let's not make this about me. BeatUC has his own issues with me and focuses on my apparent negatives. Debbie Downer subjectively perceived.

q
Posted 1/25/2013 9:00 PM (GMT 0)
BeatUC has a crush on Quncy. You know how when you were young and you pulled the hair of the girls you like in junior school, same thing here. lololol
Posted 1/25/2013 9:03 PM (GMT 0)
beachlife: Nobody has a cure for UC, nobody - Eastern, Western, Northern, Southern, regular docs, natureopaths, chirocpractors - nobody. A cure is when you develop a treatment and it works for everyone, something like you have a sinus infection, take an antibiotic, and poof, you are cured. There is no one thing from anyone, anywhere that is guaranteed to cure everyone with UC. Many people can go into remission using a ton of various treatments, both medical and natural but no one thing is guaranteed to cure everyone and I really hate it when some act like there is. I doubt there is anyone anywhere who has more than a 20% success rate in curing UC.
Posted 1/25/2013 9:16 PM (GMT 0)
shocked  D....ewwwww..shreiking like a schoolgirl.
q
Posted 1/25/2013 10:09 PM (GMT 0)
haha, I have no issues anyone, just enjoying all your banter. Q you sound like Sarah Pailin, I am neither focused on your or care much what you say/post, I simply like to point out what my version of truth is.
You can always just ignore me, it's OK
Posted 1/25/2013 10:29 PM (GMT 0)
i watched this video after reading all the comments just to see what the fuss was about.

i think it was inspirational and not preachy at all. he was just saying how he fixed his disease, not cured it. he noted that the disease is incurable. he is very lucky to be able to do those competitions and live a healthy life right now. we all know too well how that can come and go for no reason at all. i wouldn't lessen his success just because he is happy now.

i hope i can make a video like that myself one day!
Posted 1/25/2013 11:26 PM (GMT 0)
Gary - that's your definition of cure and I respect that. I posted the definition from merriam webster, which is the same as mine. As I've met people who were diagnosed with UC and Crohn's, who are off meds, and have been for 5, 10, 20+ years - that's remarkable and cured - to many. Similar stories I've encountered with fibro, cancer(even late stage), heart disease and more. It's all possible. Also, you may consider not hating. Hating leads to anger, which leads to inflammation - medical studies have shown this. As Martin Luther King taught us: "I have decided to stick with love. Hate is too great a burden to bear".

@bananagirl - I look forward to your inspirational video!
Posted 1/26/2013 12:34 AM (GMT 0)
I am with garylouisville and ilovecoffee on this- indeed I was like Ilovecoffee- ten year remission entered into while going off meds and eating whatever I wanted, but nowadays not getting into sustained or full remission in spite if trying all meds, diets and alternative therapies. This disease has a very random pattern of its own sometimes, and a lot of supposed "cures" are just spontaneous remissions, in my opinion. That is not to belittle the value of trying and keeping trying though.

Post Edited (Probiotic) : 1/26/2013 12:39:00 PM (GMT-7)

Posted 1/26/2013 3:14 AM (GMT 0)
The only thing I hate is when someone represents something as a sure fire cure for UC and that it would work in everyone if they just gave it a chance and believed in it. I also hate it when someone tries convincing us that we got UC because we didn't eat right or live the right lifestyle. Beachlife, you seem to have seen so many people cured and yet you're not. Why is that? You know all of the secrets the rest of us can't see because we have so much hate in us. The fact is that the biggest lifestyle change that people with UC can make that has actual scientific proof of working is to take up smoking. Smokers have lower rates of UC, people that smoked and then quit have a higher rate of UC and returning to smoking put their UC back into remission. So, the best lifestyle change we could make to beat UC would be for nonsmokers to start smoking and people who have quit to resume smoking. That's the only lifestyle change that has been proven to work in the masses.
Posted 1/26/2013 6:11 AM (GMT 0)
Maybe check Merriam Webster for the word "remission" then you'll have more clarification of the word "cure"...IBD is to date an incurable disease but can and often does go into remissions (not the same as being cured)...besides, the only real known "cure" for UC is getting your colon and rectum removed and it's hardly fair to call that a cure, but sadly it's considered the only "cure" for UC.

A cure would work for everyone, take stem cells for example, now if that worked for IBD then in reality it would cure all IBDers, not just some of them....just like getting your colon and rectum removed, that would cure all UCers of their disease.
Posted 1/26/2013 7:34 AM (GMT 0)
respectfully disagree. a cure would not necessarily work for everyone. There is no ONE cure for alcoholism, stress, insomnia, hiccups, for hangovers, for pinkeye, for gambling, for acne, . But there ARE cures. Our bodies, minds, genes, environment, are all different. What works for one may or may not work for another. It is not black and white. Health isn't black and white. Call it conquering, call it remission for life, call it no longer sick. Whatever it means to you.

I would love if healingwell was a place where people come together to reach out, find support, and understand, share what works for them with others. Where people encourage others with similar health challenges. Yes I copied this from the about us of healing well :)

Be well. Hope you find your path to healing. oh, and please don't take up tobacco smoking. thank you
Posted 1/26/2013 1:05 PM (GMT 0)
There is no one cure. Rather it's many things with small chances of curing. And you just have to keep experimenting until something kicks things into gear for you.
So there are 'cures' not 'a cure'. You are lucky if you find yours. And yes, having the right mental attitude is of PARAMOUNT importance. I cannot emphasise this enough. You have to keep believing; sometimes that's all you got. Attitude is important because stress/psychology plays a big part in the flareups. Nearly 100% of us get flare ups when afflicted with a certain type of stress. The feeling out of control/helpless stress. And that is why you need to feel in control. Yeh ok even just pretend if thats what you have to do.
Posted 1/26/2013 2:05 PM (GMT 0)
Of course I don't really recommend starting or resuming smoking either but, I hope most people got the point that the solution to UC is not as simple as a lifestyle change, in most cases anyway. I find it interesting that those who highly recommend a lifestyle change as being beneficial to UC refuse to recommend the only true lifestyle change that has been proven to work in the most cases - smoking. In other words, they just want to recommend a lifestyle change to recommend a lifestyle change, not because of UC. If they truly wanted UC'rs to make a lifestyle change that would be of the most benefit to help those with UC they would recommend the one lifestyle change which has been proven to to be the most beneficial for UC - smoking. Smoking will help way more people with UC than diet changes and exercising. So, in reality, the most effective lifestyle change to help those with UC is to change to an unhealthy lifestyle, not a healthy one. In other words, a lifestyle change to help UC is not all it is cracked up to be. It works in some, just like an unhealthy lifestyle change works in some. In my particular case I can honestly say that the healthiest foods like fruits, vegetables, nuts, and fiber give me a lot more trouble than eating a burger and fries. Fortunately, I can eat a well rounded diet but I do try not to overdo on the "healthy" stuff.
Posted 1/26/2013 2:09 PM (GMT 0)
I believe that IBD is a syndrome - common symptoms with many causes. It's much more complex than UC vs CD. So, if there are many causes then it seems sensible that there would be many treatments or cures. It's clear to almost everyone that "everyone's different, what works for one won't necessarily work for all" so I don't see why we should expect that this guy's treatment will work for us all. But for those interested, it's worth pursuing.
Posted 1/26/2013 8:01 PM (GMT 0)
To come to HW and tell a story about someone being cured is kinda mean in my opinion, not helpful since there are many newbies that come here looking for answers and come across a topic like this and get all excited about being able to be cured when in fact it's not true.

This is a very supportive place to come and just because not everyone agrees with everyone doesn't mean it's not supportive and helpful, it needs to stay realistic and that's often the problem here.

Being optimistic is one thing, leading others to believe there's a possible cure when in fact there isn't is just mean in my opinion and not realistic.
Posted 1/27/2013 2:26 AM (GMT 0)
Yes bananagirl, thats how i'm feeling about this too! Its inspirational if anything.


pb4, have to disagree. Saying that presenting a case in which someone might have healed themselves is angering but then deeming HW as a supportive place where people should agree to disagree on subjects is contradicting.

Sounds like some people are too sensitive to bear their eyes against the realm of possibility. We don't live in a world of just realism, we need idealism to keep moving forward.
Posted 1/27/2013 2:37 AM (GMT 0)
I can read through the jealousy and hate in some of your guys' posts, its disgusting.

Because a sentence like that shines with agreeing to disagree.

Edit: If anyone wants my opinion (of course you do :p), then optimists are in danger of being too optimistic because they can't bear the harsh reality and pessimists are in danger of being too pessimistic because they can't bear to raise their hopes only to see them dashed. Both approaches taken to the extreme are a way of denying reality.

Post Edited (NiceCupOfTea) : 1/26/2013 7:42:57 PM (GMT-7)

Posted 1/27/2013 2:55 AM (GMT 0)
LOL ...

wasn't trying to please anyone.

I'm not willing to accept disease, sorry to disappoint. In the same way that Ari represented himself, I would say that I can heal myself too, and whenever symptoms arise, I will be defiant to their power over my well being. Have the positive attitude to carry you through life. Because just coming to terms, and accepting that you have been defeated by 'reality' is shy from the truth. I can accept that I have a limitation in life that sets me apart from others, but I will not undermine someones possibility of healing themselves. To each his and her own.

But, a real truth is, is that you don't deserve a point of view if the only thing you see is yourself in this situation with Ari.
Posted 1/27/2013 8:31 AM (GMT 0)
@ConquerUC - Right on. we seem to have similar thoughts - would love to chat further with you offline about this. Please message me. have a good night
Posted 1/27/2013 1:24 PM (GMT 0)
BEATUC said: haha, I have no issues anyone, just enjoying all your banter. Q you sound like Sarah Pailin, I am neither focused on your or care much what you say/post, I simply like to point out what my version of truth is.
You can always just ignore me, it's OK


Stop please. This thread is not about Quincy.

One more dig at Quincy, I will lock this thread.
Posted 1/27/2013 3:41 PM (GMT 0)
I'm not willing to accept disease, sorry to disappoint

Implying that everyone else is of course. Do you not even see the underlying arrogance in a statement like that? No of course not. Because if you did, you wouldn't say it.
Posted 1/27/2013 4:22 PM (GMT 0)
plenty of digs at me though.... no problem, and no digs, lets keep to the issues, sorry if i offended anyone.
Posted 1/27/2013 4:41 PM (GMT 0)
NicecupofTea: That's really the bottom line of my point. I really don't have any problem with the actual video. It really means kind of nothing in a way. The audience wasn't even made up of UC'rs or others with health problems. The audience was there to hear motivational speaches from several different aspects of life. The video wasn't even really about curing a disease it was just one of a bunch of speaches designed as a motivational tool. This guy's particular video just happened to be about health and a particular disease.

The problem is when certain posters come on here and have this kind of arrogance that they know the cause and the cure for UC, like they are Gods and are trying to preach to their flock that the reason we got our disease is because we have sinned because we didn't eat right or live the correct lifestyle (which is very insulting) and that the key to our salvation is to eat right and live the correct lifestyle and only then will we be cured. They come off with this arrogance (intentional or not) that if we follow them and believe in them and have faith in their holy word that they can lead us to the promised land and be cured. They refuse to admit that something like this video only helps some, and many of those times only temporarily. They talk down to us like this is the answer for everyone.
Posted 1/27/2013 10:15 PM (GMT 0)
Literally could not agree more with the whole of that post...

The treatment regimes themselves I truthfully couldn't care less about. If you reckon raw fruitarianism healed your UC, all power to your elbow. But don't join a site like HW and preach about it as a "cure", because that $*** does not fly well with me. It's pointless as well as insulting, because you might just as well preach about Remicade being a 'cure': there are thousands of people with clean scopes and no visible signs of disease due to the biologics. Diet works sometimes: that much is beyond dispute: the SCD, Lutz's low-carb diet, enteral nutrition, the Japanese semi-vegetarian (more like 95% vegetarian) diet, etc. The catch is that, if diet works (which isn't guaranteed), just like meds, you have to stay on the diet for it to keep on working - that's one reason why I don't buy into the belief that diet is a cure.

The trouble is, a 'healthy lifestyle' has replaced religion in modern societies to some extent - instead of finding purity and goodness through faith and worship of a god, some people find it through trying to be healthy or having low bodyfat instead. And some of those people in turn will start applying their standards of healthy living and 'clean' eating onto the rest of us - whether it's an enthusiastic promotion of their personal protocol or something darker and more insiduous, such as chunkerman's tirade of abuse against the overweight.

And, of course, the subtle or not so subtle implication that we are all in "control" of our disease, if only we made enough lifestyle changes, believed enough. It's that last one which really gets to me. Okay I've waffled enough; I shall stop typing before my post becomes actually unreadable... <_<.
Posted 1/28/2013 4:22 PM (GMT 0)
Hold up NCOT, if you're to pull a typical pity party bus on this thread, you need to speak soley about this topic inparticular. He did not PREACH about a CURE. He said the difference between remission and cured is a state of mind for him. Take that into account, before you go on a selfish bout of rage.

He is implying that the word has a difference for him, and I am too. I'm not arrogant, what we are saying is that we do our best to not let crohns rule out lives like the first time. It doesn't mean we have absolute control over the physical aspects of disease. Mind you, disease is more than just the physical, its grueling on mental health. This is what he is referring to.

NiceCupOfTea said...
The trouble is, a 'healthy lifestyle' has replaced religion in modern societies to some extent - instead of finding purity and goodness through faith and worship of a god, some people find it through trying to be healthy or having low bodyfat instead. And some of those people in turn will start applying their standards of healthy living and 'clean' eating onto the rest of us - whether it's an enthusiastic promotion of their personal protocol or something darker and more insiduous, such as chunkerman's tirade of abuse against the overweight.

Alright, this is garbage. You need to get out more, sorry.

Don't think for a second I shouldn't take this as an insult like you claiming someone else's positive lifestyle change is an insult to your well being.
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