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Remicade and Achy !

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Ulcerative Colitis
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Posted 2/18/2013 12:04 AM (GMT 0)
So I have been on Remicade for just over a year now 900mg every 8 weeks. Ever since I have been taking it I get really Achy almost arthritis like aches and pains. Just want to know if anyone else have these kind of side effects or any others from Remicade? Also want to add Remicade only works for about 2 weeks or the 8 for me. I get it again in just over a week and I am flaring right now. Not on any other medications. 27yrs old.

Jo*
Posted 2/18/2013 12:52 AM (GMT 0)
Hi, my son is on Remicade as well, he is only early into treatment but I know with UC he has arthritis like symptoms as well. I can tell you that he is getting Remicade and is taking colozal and so far, he has his next treatment this week he is finally after a year starting to feel better again, he has been in a bad flare since September! We have also started taking fish oil which is an anti inflamatory which has shown to have huge success in helping the achy pains. Good luck to you
Posted 2/18/2013 3:52 AM (GMT 0)
I also get really achy but it seems to go away, the best thing I can do is keep moving and don't sit in any cramped positions, like try to stay as straight as possible, it's kinda weird but it works for me.
Posted 4/7/2014 1:43 AM (GMT 0)
Hi, I have been on Remicade every six weeks 500 mg. I go back to pain and fever after 2 weeks of Remicade. I have tried everything and now i have no clue what's next....
Posted 4/7/2014 2:25 AM (GMT 0)
That sounds like Remicade all right. Sounds like you need additional meds like oral and rectal mesalamines.
Posted 4/7/2014 2:30 AM (GMT 0)
Today i started Sulfasalazine 2 pills three times daily and I injected methotreaxate yesterday. I go back to my rheumatologist on Thursday. I had a nuclear bone scan about three weeks ago and he said that if that comes back normal, he would want me to get off all the arthritis medication and wait for my inflation to come back (he is nuts)...BTW, I am HLA-B27....
Posted 4/7/2014 3:34 PM (GMT 0)
Remicade certainly seems to aggravate my joint pain, although I had joint pain years before starting it (been on Remi for a year now). I definitely ache a lot more after an infusion and it fades slowly as the weeks go on afterward, never going away completely.
Posted 4/7/2014 3:56 PM (GMT 0)
I have been on remicade since July 2013. I am currently getting a double dose of remicade every 6 weeks. My remicade treatments usually last around 3-4 weeks before I start flaring again. However, this past treatment I am still feeling pretty good at 5 weeks, so I think its starting to work better. Maybe talk to your GI Dr about moving your treatments to every 6 weeks instead of 8.

I also have been taking 75mg of 6mp since May 2013. My GI told me he has had really good success with most patients being on both medications, the combination of them works well. I also sometimes use rectal meds when need be (I don't see much improvement with those though). I would talk to your doctor about possibly putting you on another medication so that the combination of that and remicade could help you better.

As far as the aches, I definitely get those! I use a lot of over the counter arthritis creams or natural arthritis creams, take tylenol, and I take Glucosamine vitamins or turmeric (which is what a rheumatologist told me to try). I just recently started taking collagen supplements too (mostly for my skin and hair lol) but it can help with joints as well. I had joint pains before the remicade though, so I can't 100% attribute it to that or another side effect of UC or previous prednisone doses. If your aches are bad, my previous GI sent me to a rheumatologist and my current GI said a lose dose of arthritis meds was always a possibility (but how many more meds do I really want to take?!)
Hope You Feel Better!!
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