Since discharge from hospital Tuesday I have played nurse to a very sick 12 year old girl making meals putting her to bed with all the things she needs, 3:00 am repeat.
I am not supposed to be using my left hand.
I took her to the doctor twice, once tagging along for my visit and today on the weekend because strep culture was negative after 48 hours and she still looked like hell.
I let the doctor ask her questions and my daughter began to minimize the symptoms she was just crying about
in the elevator such as burning throat and dizziness.
I said to the weekend doctor 'I hate to foist myself into this examination but want to add that I am heavily immunnosuppressed on high dose prednisone as I was discharged from hospital just days ago and playing nurse to her is exposing me to whatever she has, she previously received antibiotics despite negative strep culture and improved. I think there is benefit to the entire household to do this again as I am her only care giver and already coping with flare, anemia and wrist thrombosis with heavy blood thinning medication. Just my 2 cents not telling her what to do. Later I pointed out I made my comment with 'respect'.
She proceeded to completely flipout on me which shocked my daughter and this woman proceeded to tell me I need to call social services if I cannot handle the care for her.
She then did her 10 point theatrical examination with the express purposed of proving her her pre-conceived outcome that it was viral and no medication would be granted - IOW she was going to show me who was boss.
She also looked at me and said I am sorry your so upset as I sat mute. This my daughter found even more bizarre because I was completely calm and while my daughter knows the difference because when on pred I can become quite volcanic suddenly with rebellious children but not adults.
I looked her straight in the the eye and said 'I am calm it is you who is visibly upset'. I wanted to tell her she should get onto a mood stabilizer before attempting to treat the public or get back onto one she is supposed to be taking.
Lucky I was feeling sleepy from all the anticoag meds or I would have really given her a peace of my mind, no Harvard educated specialist here, just some lightweigh GP who probably got her Dr degree thru mail correspondence in the cayman islands.
After a week of dealing with 10 different cardiac/stroke/hospitalist Doctors in Boulder who were very accomplished caring professionals I was disgusted. I can process competing goals and diagnose far better than her cookbook recipe approach.
She may suffer from god syndrome but all she is, is another fallable mortal who made some observations and formed an 'opinion' there was no scientific test for other bacterial infection but she wanted to act like she possessed my magic powers of observation. Power tripping loony and probably accountable to nobody.
Post Edited (aguywithuc) : 2/24/2013 1:08:43 AM (GMT-7)