Posted 3/3/2013 6:40 PM (GMT 0)
Hello all. So i have been stalking healing well as i dont know anyone with UC and thought i would share and see if anyone has some insight for me.
My history, diagnosed in 2004 after a massive flare, had blood transfusion, colonoscopy which could only go so far. Was put on asacol. Then about 6 years later had another colonoscopy which showed multiple pseudopolyps due to the bad flaring. Scopes came back normal, luckily, but still have tonnes of them as they couldnt remove all of them.
have been on asacol every since. I have times of flare with a lot of loose stools, some blood but since christmas i have been flaring badly badly. Constant bleeding, mucous etc. Im on 40g prednisolone, 1,600mg asacol x 3 day, 2 foam enemas per day, 1 omeprazole. Today, i had such a bad bleed that was filled with clumps of mucous, and blood just poured out of me like a tap! So, i went to get checked at my hospital (only one here) and had blood pressure taken, temperature and sent home! They said they couldnt test my blood count until the morning so have to wait until then. Just have to wait, see if i loose any more blood or wait till morning. Just had another trip to the bathroom but luckily there wasnt as much blood as this morning.
Anyway, im supposed to be going on medical to the UK next month, IF they can get me an appointment to have a colonoscopy and meet a GI. At the moment am being dealt with by a GP who asks the GI for advice :/.
Im starting to freak out about this whole thing. Worried about how much damage is being caused by this flare, having so much blood loss, and the fact that i already have polyps on top of it all.
If anyone has any advice, on how to deal with flaring, food (chicken soup today and toast), or just general insight i would much appreciate it. Im supposed to be reducing my pred tomorrow by 5mg but i think that just isnt going to happen anytime soon.
Thank you for reading :)