Thanks for all your replies! Quincy, I am not on it, my daughter is---was. 10mg for 5 days, and it was terrible--at least the GI and I think it was from the ami. Severe dizziness, saying words completely out of context, fatigue (although that could be the UC), problems writing words, really bad headaches, etc. If things don't get under control, we may give it another try and see if it happens again or if it was a fluke--maybe side effects from the colonoscopy anesthesia?? Never had a problem with that before, and for that many days afterward, but who knows. Now we are giving cortisone enemas a try--and is that torture or what??!! I will have to post on that one. She had a scope last week and it showed her disease to still be mildly active. She just had 2 remicade infusions 4 weeks apart, so that was a bit discouraging! We are hoping this is just a little flare that we can get under control, she was doing so well!!
Kelsie (mom of teen with UC)