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Starting Uceris today

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Ulcerative Colitis
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Posted 3/20/2013 4:33 PM (GMT 0)
Saw my GI this morning. I have been stuck at 10mg pred for the last month or so. He wants me to go ahead and try Uceris. So I will take it along w/ the pred until I have tapered off the pred. Will try going to 7.5 pred in a few days.

They gave me a savings card that looks like each script will be $25.00. I haven't verified that w/ the pharmacy yet b/c I know they were having to order it for me. It should be there tomorrow. My doctor gave me samples so I went ahead and started today.

We were going to discuss the multistem drug trial but he wants me to try this first.
Posted 3/20/2013 4:34 PM (GMT 0)
keep updating on here of your progress...

thx
Posted 3/20/2013 6:24 PM (GMT 0)
Yeah. A great many of us are hoping Uceris is a wonder drug.
Posted 3/21/2013 11:28 PM (GMT 0)
Picked up my Uceris script from the CVS today (I have used samples the last two days). Thankfully my insurance paid all but the $25 co pay. It said on the label "insurance paid $1,206.00".
Posted 3/21/2013 11:30 PM (GMT 0)
Send me a few too I wanna try..

Kk?
Posted 3/21/2013 11:50 PM (GMT 0)
Holy cow...that is alot of dough for coated Budesonide. Glad insurance covered it. I hope it works great..I think we are all watching the Uceris gang's progress. Good luck!
B
Posted 3/21/2013 11:55 PM (GMT 0)
Somedude...does your doc have samples?? Apparently my GI's office has been giving them out like candy b/c I got the last two sample packets.

I was a little nauseous after I took it yesterday and today but nothing I couldn't deal with. It could of been in my head though...

I'll be happy to get off this last little bit of pred. Tapered to 7.5 today.
Posted 3/21/2013 11:57 PM (GMT 0)
Its not even approved in Canada yet..
Posted 3/22/2013 2:07 AM (GMT 0)
"Yeah. A great many of us are hoping Uceris is a wonder drug."

Asked the doctor again pointing out 18% is not great but the reference drug was 5-asa and it was only 12% thats a 50% better chance than what I am on.

He refused again saying he is 'not impressed' and asked me to start Humira to which I replied "I am not impressed".
Posted 3/22/2013 2:20 PM (GMT 0)
^Lol. I did 3 months of humira w/ no luck.
Posted 3/22/2013 4:55 PM (GMT 0)

pink1 said...
^Lol. I did 3 months of humira w/ no luck.

Thank you very much for that information.
Posted 3/22/2013 5:00 PM (GMT 0)

pink1 said...
^Lol. I did 3 months of humira w/ no luck.

i've been on humira nearly a darn year, initially it may have helped some but now it's doing jack. i'm finally no longer taking it (going on remicade)
Posted 3/22/2013 5:06 PM (GMT 0)
Before Humira was approved for UC I thought I'd read somewhere that it's remission rate was 18%. Many doctors themselves weren't very impressed and then all of a sudden after being approved for UC everyone's jumping on the bandwagon like it has a 100% remission rate.
Posted 3/22/2013 6:10 PM (GMT 0)
Humira had a very weak affect in me at weekly dose (twice the normal frequency) then stopped working and eventually was messing me up in other ways.
Posted 3/22/2013 6:34 PM (GMT 0)
hope you do well on it...for sure keep us updated on how you're feeling, etc.
q
Posted 3/22/2013 6:40 PM (GMT 0)
funny, Humira has been pretty good to me since I started it, 3 years ago now! I mean, on scopes there is still some active inflammation, but day to day I'm ok. I started Uceris this past week to try to knock that active ulceration out of the park. And god yes, pink- the nauseau! Gross. I take it in the AM with 2 Asacols. And I have about 2 cups of coffee too. The first couple days I wasn't sure if I could stick it out, it's BAD, the nauseau. But it seems to have subsided. I found myself with headaches also, every morning, the first 2 days. The website says to take it in the AM, so... I'll stick with it for now, see how it goes. I swear it's helping though, the urgency has gone down majorly- and it seems as if overall, my bathroom trips have gone down by 2-3 as well.
Posted 3/22/2013 9:24 PM (GMT 0)
Eva Lou....I have had a headache too. Nothing terrible but definitely there. The nausea was definitely less today (Day 3). Hopefully will continue to get better!

And yes everything I read says to take in AM. I have been making sure to eat first and then take it after breakfast.

Gary...my GI's office LOVES humira. Loves, loves, loves it. Did I mention loves?! They had me try that before Remicade. However, they have way more crohns patients than uc patients. I wish it had worked for me. I didn't mind doing the pens.
Posted 3/22/2013 10:32 PM (GMT 0)
I think the attractiveness of Humira is they are quick shots you can take at home as opposed to going to some medical office for hours of an infusion.
Posted 3/22/2013 10:40 PM (GMT 0)
^Agreed. And that was my GI's reasoning at the time. I have a 1st grader and the thinking was would be much easier just to do the shots at home. Too bad I ended up in the hospital for a week, and then on remicade. Oh well...I tried!
Posted 4/4/2013 1:56 PM (GMT 0)
How are you doing pink1 on this Uceris. Anyone else trying it? I have my scripts, afraid to try it! My GOSH I did humira and I know they are not the same but what  a terrible reaction I had to it, so I'm gun shy on drugs right now other than asacol which is NOT getting me remission.
Posted 4/4/2013 2:39 PM (GMT 0)
I am starting Uceris tomorrow AM as Walgreens had to order it in for me.

I started Xeljanz on Monday PM, eliminating Remicade (every 6 weeks since July) and Methotrexate (injection 1x per week since November.)

Hoping for some good results!!!
Posted 4/4/2013 3:00 PM (GMT 0)
I'm on day 2 of uceris. Nothing noticeable so far.
Posted 4/4/2013 4:25 PM (GMT 0)
I'm on day 3 of Uceris. No nausea or any side effects, really hard to tell if it's improving symptoms because I re-started Rowasa at the same time, but I am feeling better - less urgency, blood, etc.
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