Anyone have problems with Apriso making their whole body ache

Hi all,

When I was first diagnosed with UC, I was put on Asacol enemas for a while along with Apriso (4 x day) and I remember aching while on the Asacol.  I remember it getting "better", but not completely.  about nine months ago, I started aching horribly in my extremities.  I questioned my GI doctor about this and he said there wasn't any chance the Apriso was making me ache all over.  I've been to a Rheumatologist, Neurologist and I do have a borderline test for Lupus and have Reynaud's phenomenon , but don't meet the four criterias.  So......I am back to the Apriso question.  I am 46 y.o., eat Paleo style 90:10, run marathons, and I just can't get a grip on this.  It gets so bad that I am wakened out of sleep....anyone else with this problem that is on Apriso.

 

I've thought of the carb thing too. I do eat sweet potatos and my mileage is relatively low right now....keeping it between 2 - 5 miles. I've actually slowed my racing down because I need a break, but actually the best I feel is when I have had physical activity!!! I basically say I do a 90% Paleo/10% carb diet, but I do throw in pizza and breads once in awhile...breads just make me feel crappy so not often!! I think I might read a little more about the carbs....but carboloading is a big topic right now...and they say it might not be necessary. Our world is ever changing though and I like your thought.

I do the necessary carbs for running....bananas, fruit, sweet potato, and occasional pizza. I just don't do pastas or heavy amounts of bread. I will even drink Gatorade and do the Gu's and stuff like that....so I do feel I am good that way. All my Vitamin levels except for Vit D are good and that's not so low it should affect me in this way. I drink a ton of water...no soda and a small amount of coffee. Before I came out here, I really did exhaust all my other options. I am a super healthy eater and a fairly well-advised runner so I really don't think this is it, but I do appreciate your thoughts and will read some more. Thank you so much.

I cannot take Apriso because of hypersensitivity to some secondary ingredient. This manifests as a dehydrated feeling and cessation of gut motility, though, not as body pain. / Old Hat (32 yrs with left-sided UC; presently in remission taking brandname Colazal)