so does anyone thus far have anything good to say about uceris?

Still trying to get the drug.. Seeing gi today. Assume he will push pred if ins doest cover uceris but still wanting to try it first. Dont really want either actually... Anyway, at first i heard promising things... Then maybe not so much. Anything positive to report on this crap?

Well the side effects of Uceris are not as bad as they were on Pred. for me. I've been taking Uceris for only 7 days FYI. The last time I went on Pred I had immediate swelling in my joints especially the ankles. I was up all night from the joint pain. My face was swollen and I felt terrible. With Uceris, some of the urge symptoms are still there but they are minor compared to before - like instead of 20+ bowel movements, its only 4-5. Also, they aren't assplosions either, just firm to soft stools.

If it was priced like Pred I'm sure more people without insurance coverage would be willing to try it.
Try asking for some samples from your Dr. and see if you can at least try it out for a week or two.

I am on day 14 and seeing small improvements. Like Eva Lou, my RX only cost like $65, so it was worth the gamble. I still have symptoms (urgency, blood, pain, M, on-and-off D), but they are gradually improving. So, it definitely doesn't work as quickly as Pred, but I expected that going in. Side effects I've seen include slightly blurred vision, a little nausea and some bloating - really nothing compared to the major mood swings I experienced on Pred. I am also an avid spinach eater and have added some Resistant Starches, but am trying to keep the fiber low since I'm still bleeding; also on Rowasa.

I seem to have one good day and then one bad day, which is annoying - I remember with Pred it was like straight-line improvement. I don't think it's a wonder drug, but my hope in trying it was that it would dig me out of this flare and help me avoid a round of Pred. We'll see...6 more weeks.

Today I went to the bathroom 20+ times all blood and now I'm so fricken tired I was sleeping at work! You would think there would be some improvement in 8 days instead it's worse.

I'm happy though for those that it's working for.

I will see maybe tomorrow if eating brown rice today and yesterday and green bananas today and yesterday if my stool tomorrow am will be better. Wouldn't it be awesome if the resistant starch was my golden key?

Ive never taken pred, but didnt have the best results from hydro cort enemas.. swollen face, instant slight improvement that then reversed, it seemed, but I dont know if that was the culprit. But I got worse after 2 weeks of hydrocort.

Im thinking if I havent heard by now my stingy insurance company isnt going to cover it, so I bet he will be trying to get me on 40 mg pred. Really dont want to go there, but honestly may have to. My Dr seemd to think that within a few days on 40 mg pred Id be formed stooling it.

Im pretty "good" now, going 5-7x per day, down from 12+ a month ago, some formed soft stools, some more minor D. Did see some pink in bowl yesterday but no real blood for quite a while. Def feel rectal inflammation. Just need to get over this G darn hump.

Well I got it approved so I hope it works.... Fingers crossed.

Thankfully, my GI gave me samples of Uceris for two weeks prior to having to pay for a prescription. Luckily, my insurance covers most. My GI doc also had a coupon for it, so make sure to ask about a Uceris coupon to go along with your insurance.

So far, I do notice some side effects from having been on it for a couple weeks. A little joint pain is one side effect especially in my knee area. Another side effect that I notice is when I stop taking it, it seems that I get a horrible headache/migraine afterwards that lasts for about two days. Not sure if it coincides with the Uceris, but I do find it odd since I rarely get headaches anymore since I've gone gluten free.

The last side effect that I notice is my libido seems to decrease a little.

Other than that, I ignore my decreased libido (LOL), I take Tylenol or Excedrin for my migraines, and try to manage the joint pain. I try to not go longer than 3 weeks on it if possible so my body can have a break.

My flares are pretty consistent. Mainly in the morning and then late afternoon. One of the worst feeling is when you are in the middle of grocery shopping with your small child and you stop and pray that you can hold it together until you get home. I'm always scared of having an accident or going somewhere in a very public place.

Hope Uceris becomes a miracle drug for all of us that needs it!!

Ulcerative colitis/30/female
Found out I had colitis 1 year ago and my life has completely changed since then

I have some good days and then some very bad days. Each day is a surprise because you never know how your GI tract is going to treat you...

I have been on Uceris for exactly a month now and have little to no improvements (I tried entocort for two weeks before the Uceris fyi). I recently went and saw a new GI in the town where I got to school and though I am having no benefit from Uceris he kept me on at because he said he was afraid that I might go downhill more without the Uceris. He also upped my liallda dosage to 4 pills every morning and I am on Cortifoam retention enemas at night (been on it 3 days). No real improvements thus far.
So for me the Uceris did not help. I only noticed improvements the first week on it then back to a full on flare. I really think it depends on how bad your flare is if it will help you or not. But definitely worth a shot because there are way less systemic effects than that of pred. No swelling and way less insomnia. I had headaches the first week but thats all I really noticed.
Hopefully it helps you though!

wow I'm sorry to hear some of you are not getting relief like me. I thought maybe I was being a big baby, I see that I'm not. Today is my second day off of it.

Back on asacol and canasa and resistant carbs (brown rice, green bananas, navy beans) I hope i improve in the next few days. Yesterday was the worst day I ever can remember! Bloody d all day long until 8pm at night. Today a little better. No energy to work out though and I was on a roll, dang it!

Is it hard to breath? I'm wondering if it's bronchitis? It's like a dry cough sometimes too, especially at night? Don't worry you'll be better soon!

Well the nurse called back. She called me in a Medrol Dospack. So it's only a week of Pred. She also called in Levaquin (antibiotic) for the cough. She thinks it is an infection. I will take that for a week as well. I feel much better now knowing I have meds to help. She said the acid reflux probably caused some sort of infection (since I don't have any history of acid reflux problems or respiratory problems.. non-smoker). So hopefully the antibiotic will knock that out. She recommended over the counter Zantac for the acid-reflux. One last thing.. surprisingly she told me to keep taking the Uceris (which I find weird, but ok).

I suspect Levaquin may have given me my UC. I got my UC while I was in the hospital getting IV antiotic, which the followed up with Levaquin. I discovered some links between Levaquin and UC.

I am having a lot of knee pain. Pain also in my finger joints. I saw the PA at my Gi's office today (I was due for my 4 week ck). She said it was the uc not uceris. I don't buy it. I definitely think is uceris. Pred gives me terrible joint pain as well.