What kind of experience did you have being in a study
Great! I would do it again - 57.1% - 4 votes
So So Not good or bad - 28.6% - 2 votes
Inconvienced would not do again - 14.3% - 1 votes
Terrible would not do it again - 0.0% - 0 votes
awful I pulled out early - 0.0% - 0 votes
Bess
Regular Member
Joined : Apr 2013
Posts : 97
Posted 4/20/2013 1:09 PM (GMT 0)
My GI says I might qualify for a study don't know what kind yet but I want to know about
your experiences with being involved in a study. knowing what I might be facing will help me make a wiser decision I think
be sure and let em know if the study was straight forward so you knew what you were taking or if it was double blind
thank you
chcl
Regular Member
Joined : Jun 2010
Posts : 97
Posted 4/20/2013 7:09 PM (GMT 0)
I volunteered for a short 2 day study about faecal calprotectin (http://en.wikipedia.org/wiki/Faecal_calprotectin).
It meant that I had to gather samples every time I hit the bathroom and write down when I went. I also had a sigmiodoscope after those days.
So this study was not for treating the disease as much as diagnosing it better in the future. It was somewhat annoying to gather samples and a sigmiodoscope is what it is but overall I think it was alright. It was only two days and perhaps I helped further the science a little making it better for future UC patients.
deltaforce
Veteran Member
Joined : Jun 2010
Posts : 2373
Posted 4/21/2013 12:00 AM (GMT 0)
It honestly depends on who is conducting the study. As someone who administered Phase III clinical trial for a megacorp, I have seen great as well as lousy doctors. I would not use yardstick. If you are interested, participate. If its hassle thereafter or the doctor isn't communicating well, pull out.
I am in contact with one doc for a study for 5 months now. He keep delaying my participation for various reasons but I am still interested. Sent him last update a couple of weeks ago and still not heard. Now I am close to conclusion that I will not participate in the study if he doesn't communicate within a week.
Teddtlove
Veteran Member
Joined : Jan 2013
Posts : 1038
Posted 4/21/2013 6:54 AM (GMT 0)
I was in a study for budesonide foam. I did not know if I had the real thing or not for the first 8 weeks then was given the real thing for 8 weeks. It was a good experience. My only problem was at the time I did not know I was lactose intolerant so even though my inflammation was getting better I was having D 15-20 a day. So ey were supposed to call me to continue the study but they never called back and ignored my calls. I was probably throwing off the whole study. I did have a flex sig at the beginning and end of the study. I had to do urine, stool, and blood test at regular intervals. It was supposed to work that you could stay on the med if it worked for you for a certain amount of time after the study free of charge. I got paid around 600.00 for I think 16 weeks with approx 12 visit and 2 sigs. I would do it again. I am happy to answer any more questions.
Posted 4/21/2013 3:48 PM (GMT 0)
I was in a few studies. Most were single day where you go and participate and then they pay you and there is no further obligation. Once I did a larger study through my old GI's office which required a scope and a bunch of other preparation. It was always with my own GI so I was comfortable wtih her and her skill level as a doctor. not sure how I would feel about seeing drs I do not know. Long story short, I went into remission right after I finished all the prep tests and they said I wasn't sick enough to participate.